Finding HopeAutism Dogs – The Second Playdate
Posted on May 3, 2025
My second playdate with Daisy didn’t happen until early October 2024 due to both us and Autism Dogs having had to reschedule at one point. But we finally made it happen and we were headed back to the farm to see Daisy. We had Izzy with us again to give both of the dogs another chance to get to know each other. And since this trip included two sessions over two days, we booked a dog-friendly hotel for the night before and the night between the two sessions; it was a Holiday Inn Express, which turned out to be a really good choice because it had a lot of my safe foods!
NIGHT BEFORE
Mum and I drove up to Stoke-on-Trent the night before the first day; we’d be starting early and we never would’ve made it up in time if we’d driven up the morning of. We got settled in our hotel room and although Izzy still struggled with the noises from the hall and the surrounding rooms, she did better than she had on the last trip. We had some dinner, chilled out with some TV, and went to bed early so that I could manage the early start the next morning.
DAY ONE
We were up and out early to get to the Autism Dogs farm in time for our session with Daisy. I’m always so excited to see her and work with her again but I do find it quite nerve-wracking: there’s just so much to learn and remember and I get so anxious about doing things wrong that it can get pretty overwhelming at times.
Izzy and I waited in the paddock while Mum let them know we’d arrived and then returned with Daisy and one of the trainers. Izzy was definitely more excited to see Mum than she was to see Daisy. Having Izzy present for these sessions would hopefully allow the two dogs to get more comfortable around each other; starting out in the paddock gave them plenty of space to move around, to set boundaries and test them, and we even got them walking together after a while.
Then, in the training room, we used the smaller space to try and build on that. We encouraged them to interact a little bit more but just existing calmly in the same room together was a positive step forward, considering how they’d just barked at each other during the previous session. They did well: progress was definitely made and they were very cute to watch. They were still struggling with competing for my attention – and getting jealous when I engaged with the other – but I would’ve been surprised if we’d managed to solve that in two sessions: Izzy has practically been glued to me since I got her and, of the time I’ve spent with Daisy, she’s rarely had to share me. So neither of them are keen on the other being with ‘their person.’
I also did some more lead walking practice with Daisy – I find the multi-tasking aspect of it really difficult so I wanted as much practice as I could get – and, to my surprise, it did feel easier this time. That was a big relief to me: I find it really easy to spiral about not being good at any of this and finding it so overwhelming, so to tangibly feel that progress was definitely reassuring.
We spent the rest of the session in the training room, just hanging out and letting everyone get used to each other. It was a chance not just for me and Daisy to bond but for my Mum and Daisy to build a relationship too, for Daisy and Izzy to get more comfortable together, to reassure Izzy that everything was still the same with Daisy around… It’s obviously easier for me and Mum while the dogs need a lot more reassurance and rewarding for every positive interaction. As you can see from the photos below, Izzy still wasn’t convinced and really just wanted me to herself but this is all still very new to her and so it’s going to take time. At the very least, they were a lot less bark-y, which my ears were very grateful for.
Ever since The Eras Tour ended in August (I know I haven’t written about that experience yet but I do want to – the brain fog has just been brutal), I’ve been feeling bereft of making friendship bracelets and so I’d been making as many as I could for the staff at the farm. I’m not sure how many I ended up making up in the end but I left them there that afternoon to be passed around during the afternoon, evening, and the next morning. I’d made a personalised set for myself and for Mum and then for Caroline (the founder and CEO) as well, as a thank you for all of her support.
Back at the hotel, I had to have a nap, exhausted by the intensity and focus of the playdate, and then Mum and I checked out the hotel’s pool. It was small (which was fine) and busy (which wasn’t ideal) but I got to stretch, do some of my hydrotherapy exercises, and get some gentle exercise, which definitely helped my chronic pain. The amount of time I spent scrunched up in the car on the drive to and from the farm isn’t great for my body as a person with Hypermobile Ehlers Danlos Syndrome so having access to a pool was really great.
Between the playdate and the swim, I was completely exhausted – even with my nap – so we had a quiet evening. We had dinner (with an awesome chocolate pudding!) and cuddles with Izzy in front of Red Eye before going to bed early since we had an early start the next day.
DAY TWO
The second day began earlier than the first day, which was a bit of a struggle for me since I hadn’t slept particularly well (which I generally don’t when I’m away from home). But we made it and began the playdate in the paddock, giving Daisy and Izzy a chance to get reacquainted: they were much calmer than the day before, which was reassuring and pretty cute.
Then we headed inside and went over some of Daisy’s commands again, which was really good because there are a lot of things to remember and in the time between playdates, I’d worried that I’d forgotten all of it. But having said that, I felt like I’d retained a lot more than I’d thought, which was very reassuring. That was actually good timing because, on that particular day, Daisy wasn’t at her most well-behaved (I think she was just overexcited). That sounds odd to say but it meant that I got to see how the trainers correct the undesirable behaviours and regain the dog’s focus and then practice it myself. Again, it’s really good knowledge to have but I was exhausted! I was learning a lot, learning it fast, and having to concentrate and process information really fast; it was hard work. In hindsight, we probably could’ve taken it a bit slower but between my anxiety about learning everything and just getting caught up in everything, that didn’t occur to me until later.
After that, we had a break and I got to have some good cuddle time with Daisy, which I always look forward to: she’s so gentle and sweet and affectionate – once she’s settled down a bit and worked off her excitement! I was so tired that I practically fell asleep curled up with her and could’ve happily stayed like that for the rest of the day.
After the break, we were headed out to the paddock but, before we went outside, I was shown how to get Daisy’s slip lead – her working lead – on quickly and efficiently. I needed to watch it a few times but once I had all of the steps in my head, I actually didn’t find it too difficult; I even managed to do it smoothly on just my second try. That was very pleasing, especially since I’ve struggled with feeling like I’m just not very good at any of this (regardless of whether it’s objectively true or not – or the idea that I’m still learning and it’s the practice that makes you good at something).
Out in the paddock, we did some recall practice, which Daisy did struggle with initially; she is, after all, very used to doing recall with the trainers. But once she realised that I had treats and made a huge fuss of her when she came to me, we had it down. I had to laugh: labradors are so predictable when there’s food in play.
Then we went out into the lane to practice her lead walking, which is how she’ll walk with me when we’re out in public, when she’s working: she stays close to my body and keeps her attention on me and (at least at this point) I reward her whenever she makes eye contact with me, checking in. It was actually starting to feel a bit easier and not so overwhelming, which definitely felt like an achievement.
That was officially the end of the day but the farm did have a relatively new litter of puppies that they will hopefully be training to be more Autism Dogs and I got to spend a little bit of time with them before we left. They were gorgeous in that way that puppies just are, especially Labrador puppies in my opinion; they were all soft and warm and snuggly. And for some reason, they smell amazing. I was besieged by them the moment I put my hands in the pen and although my Mum joked that I couldn’t kidnap one, I think the real danger was them kidnapping me: they just attached themselves to my jumper and every time I peeled one off, another had got their teeth into it, and eventually I had to be rescued because two hands just weren’t enough. They were utterly divine though and I had some lovely cuddles, which just gave me such a serotonin boost.
The sessions are pretty intense and require a lot of mental energy at the very least so it was a really nice way – the perfect way – to just decompress for a couple of minutes before getting back in the car and getting on the road. I would’ve been content to spend hours with them but eventually Mum pulled me away and we said our goodbyes, got in the car, and headed home. It was a very long drive after some very long and tiring days but it really did feel like progress is being made, despite my anxieties trying to tell me otherwise.
So that was the second playdate! Even though it was obviously more tiring to do two days in a row, I did really start to feel like I was making progress and I felt more confident with two back-to-back sessions under my belt. I have no doubt that I’ll probably get super anxious again with no way to practice the skills between the playdates but I’ve also now had proof that, even when I feel like I’ve forgotten it all, they’ll come back as soon as I was using them again.
Next up, my first sleepover with Daisy!
Eight Month Pupdate
Posted on April 13, 2024
This was supposed to be a six month update post on life with Izzy in it but, between the trauma of breaking up with my therapist and trying to write that out of my system, it’s become more like an eight month update. I’m not sure how that much time with my baby has passed already but I’m so grateful to have found her, that we made the decision to bring her home. She’s snuggled her way into my heart and I adore her more than I really understood to be possible. As well as being a consistent source of joy, she’s an incredibly grounding presence and although I’m not sure I can describe it, she gives me something that I desperately need. I love my cats dearly but the relationships are very different and the way Izzy loves to be close, responds to my emotions, clearly tries to make me feel better when I’m struggling… it helps me in a very specific way and I’m so, so grateful for that.
If you’ve been following me for a while (on here or on either Instagram or TikTok), you may remember that I got a puppy – a Pomchi (half Pomeranian, half Chihuahua) called Izzy – last September. Back then, she was an excitable handful of fur with huge ears and there was nothing she loved more than a snuggle. And now, suddenly eight months have passed and her personality has become even bigger than her ears…
Now, at almost ten months old, she’s become such a character. She’s the sweetest little soul and she’s almost always up for a snuggle (sometimes the desire to play is just too strong). I completely adore her and she completely adores me; she always wants to be, at the very least, in the same room as me (and preferably pressed up against me) and she jumps up into my hands when I reach for her. It’s so cute. She hated sleeping apart from me, no matter how many different strategies we tried, so she does just sleep in my bed with me. I love it and she seems to as well; I worried that that would become a problem when I needed to be away but she’s handled it fine, as long as she’s with someone she knows. She’s also become a proper little guard dog and she takes her role of defending our house very seriously. I should’ve seen that coming since protectiveness is a core trait in both Pomeranians and Chihuahuas. She’s especially protective of me, which is very cute but it is a behaviour that we need to work on: the amount of potentially scary barking just isn’t necessary, especially when that level of protectiveness hasn’t been required once so far. But she’s young and bright and we’re working on it; I’m not worried.
At only a few months, she was curious and excitable and smart and now she’s even more so. She’s so quick to pick up on what’s going on – especially when I’m upset – and she’s learned so many tricks: my personal favourites are ‘high five’ and ‘spin,’ both of which she picked up so fast. She’s really good with a lot of the more basic ones too and between her getting better at communicating what she wants or needs and us getting better at interpreting that behaviour, we’ve worked out a good routine together in which she really seems to thrive. She’s gotten so much more confident too and she’s really grown into herself (although not her ears – they are still huge and it does make me smile to think about whether, when she cocks her head in a certain way, she’s listening to messages from NASA).
She’s still desperate to be friends with the cats. And although they’re all much more settled and able to coexist reasonably peacefully, most of the cats still keep their distance – her bounciness is clearly still a bit too unpredictable for them – but they all stand their ground when she rushes up to them. They’re not quite ready to be best friends. But Lucy, the eldest, has started to engage with her, on her own terms of course. She’s starting to play and seems to enjoy provoking Izzy, only to leap out of her reach. So they’re not there yet, but you can see the relationships growing. It’s a very interesting process to watch, to see them learn how to communicate and how to create and respect each other’s boundaries. They’ve made a lot of progress since the early days and it gives me hope that, sometime soon, those relationships will grow even further and they’ll be able to interact gently and affectionately.
We’ve been able to leave her alone for longer periods, alone and with other people, and we just got back from two weeks away in Nashville: Izzy stayed at home with an experienced house sitter so that both she and the cats wouldn’t have their routines disturbed too much. I was a little worried about her being without us for so long but, as I knew deep down, she would be fine. And she was, but she was beside herself to see us again. That was a very joyful reunion, on both sides. And we’ve been glued together ever since, which has been lovely. She’s been grinning almost non-stop and it’s beyond adorable.
I can’t believe that I’ve had her by my side for eight months now. As I write this, she’s tucked into my body with her chin resting in the crook of my elbow, snoring softly. She’s soft and warm and perfectly content. And with her next to me, as close as she can get, everything feels a little less overwhelming.
Grateful 2023
Posted on December 25, 2023
TW: Mentions of depression and suicidal thoughts.
This has been a fucking hard year and there were multiple moments when I wasn’t sure I’d make it to this point; I’m not convinced I’m glad that I have. My anxiety and depression and chronic suicidal thoughts have been doing their best to swallow me whole; several people have suggested that I’m in autistic burnout and I wouldn’t be surprised but I don’t know how to be sure of that with the depression and CPTSD in play. I’m just putting one foot in front of the other, even when I’m not really sure why.
It’s somewhat confusing to still recognise the good things and be grateful for them in amongst all of that. While I never thought depression and suicidal ideation were simple, I never would’ve imagined that they could be this confusing and conflicted. But that’s a train of thought and discussion for another time. For now, these are some of the things I’ve felt grateful for this year…
Mum – I don’t know what else I can say about my Mum that I haven’t already said in my previous Grateful posts (2017, 2018, 2019, 2020, 2021, 2022) but, holy shit, am I grateful for her. Something I’ve thought a lot about over the course of the year is how she always seems to take things in stride. I know it’s not that simple: she’s human and so, of course, she has feelings about everything that happens but the way she handles things with such openness and grace blows me away.
Family and friends – Despite how hard this year has been and how desperately I’ve wanted to just hide away, I’ve managed to spend a surprising amount of time with my family and friends: over Zoom, at music events, at each others homes, even abroad. I honestly don’t know how I got so lucky to find and keep the friends I have but I am so deeply, deeply grateful. I look back at all of the bad things that have happened to me and I find that can’t hate them completely because, if they hadn’t, I wouldn’t have met and become friends with the people I have.
The cats – My gorgeous pride of cats. I love them all so dearly. We’ve had some health scares this year, which have been very scary but, fortunately, everyone has recovered and we’re celebrating Christmas as a healthy family. Izzy has thrown a spanner in the works to a certain degree and the peace of the house has been disturbed dramatically; we’re still finding a new normal and all of these new relationships are still evolving. On the whole, the cats are still avoiding Izzy because she gets so overexcited; she just wants to play but often, that either scares them or they don’t understand and so they take a swipe at her. It’s slow going and although progress is being made, I miss the cats being around and struggle with the frustration of just wanting everything to be okay and peaceful right now. I love them and I don’t like not seeing them as much.
My time and friends in Nashville – My trip to Nashville this year was a serious emotional rollercoaster. There was a school shooting in the city on the first full day we were there; I saw some of the most amazing Tin Pan South shows I’ve ever seen; I became a Madeline Edwards fan; I saw some of my lovely friends; I hung out with new friends; we weathered the edge of a tornado (and had a little party in the motel room we were sheltering in; I got to go to Song Suffragettes’ 9th anniversary show and catch up with the lovely Natalie Hemby; I struggled with some serious chronic pain… It was a lot to take in, a lot to process. It was a really tough trip but the good moments were really good and I am grateful for those.
My therapist (and the dogs that joined our sessions) – It’s been just over a year since I started seeing my new therapist and, if I’m honest, I’m still getting used to her and all the little differences. I saw my previous therapist for eight years and the loss of her from my life was a trauma so it’s not surprising to me that it’s been a really difficult adjustment; I still miss her and our sessions. My new therapist is good and I really like her and we’ve had some really productive sessions but it’s been a very different scenario: my mental health has never been so bad, the worst stuff so close to the surface. That makes therapy really fucking hard. It makes me feel triggered; it makes me feel like a frayed nerve; it makes me feel like I can’t breathe. It’s exhausting. But I know that nothing will change if I don’t go. Part of my experience of depression means that I don’t always want things to change but, as I said earlier, it’s such a confusing, messy, complicated well of feelings that it’s hard to articulate and this certainly isn’t the post to get into it, but it does provide some context as to why therapy is so hard. I can’t seem to clearly explain why I’m grateful for therapy and for my therapist, not with my headspace being the way it is right now, bit I know that I am. Sometimes I think that has to be enough.
The puppies – Over the summer, I got to spend a solid amount of time with a litter of four Pomchi puppies and it was glorious. One of them in particular, the only girl who was nicknamed ‘Skye,’ took to me straight away: it was like she saw me and went, “You. You’re my person.” It was adorable and I loved every second that I got to spend with her. I hadn’t thought I was ready to bond with another dog but Skye showed me that I was (and honestly, the name ‘Skye’ just felt like a sign – one of my biggest special interest characters, Daisy Johnson, having chosen that name for herself before she discovered who she was, who she was supposed to be) and it was such a joy. And then my heart was broken when I wasn’t able to keep her. I was devastated and the pain of it really shook me. I worried about her endlessly and although that has faded over time, it still hits me now and then; I hope she’s safe and happy and loved. And even though it ended in utter heartbreak and a lot of bad feeling, I wouldn’t take it back; it was a really special experience and showed me that I was ready to have a dog in my life again and ultimately lead to Izzy.
Writing songs again – Songwriting has been a difficult for a while now, as it usually is when my depression gets bad (and it’s been the worst it’s ever been). It feels like my creative brain goes into hibernation. Since I started taking Phenelzine again in March, things have gotten better in that regard. I’ve been writing again but it doesn’t feel as fast or as easy as it used to; like it takes actual physical effort to make my brain work when it used to come really easily. So it’s definitely not perfect but I’ve written some songs I’m really proud of and I’m grateful for that.
Getting to reunite with my friends from university – In the Spring, I went to Germany for the wedding of two of my friends and although there lots of stressful aspects to the week away, there were some truly joyful moments too and one of them was seeing some of my wonderful friends. Because we’re scattered around the world, we don’t often get to see each other and we rarely get to see each other altogether and, with COVID of course, it’s been an even longer time than planned so that was really special. It was really emotional too, more so than I’d expected, but then it was a very emotional week.
There’s five of us buried in this huddle.
Acceptance into the Service Dog program – A few years ago, we applied for the Autism service dog program but they didn’t have space for me. This year we applied again and I’ve been accepted! The process from being accepted to actually getting a dog is a long one but that’s okay: it gives me time to get used to it and to learn everything I need to know, with the assurance that support is coming. I’ve met quite a few people who are part of the organisation and they’ve all been so lovely and supportive and warm so I feel like I’m in good hands. I have my anxieties about it – it’s a big responsibility to take on a dog, particularly a specially trained one, and I’m aware that, by having one, I’m representing the organisation and, to a certain degree, disability and neurodivergence – but I think it would naïve and irresponsible not to. So I’m doing my best to prepare and to get into a healthy, balanced headspace about it.
Breathing Room – After years of loving the work known as ‘Breathing Room’ by Anna Berry, I finally got to see it. First in London and then in Croydon. Finally seeing it in real life was magical; it was utterly breathtaking. During each visit, I spent ages just sitting inside it, watching the cones flutter and listening to the gentle creak of the machinery. It was so calming; I could’ve sat there forever. And it had my mind spinning with new ideas for songs, both specifically about the piece and for other songs. I loved that. Both times, I had to all but be dragged out.
The London experience was also incredibly special because I got to help construct it before it opened to the public. It was a viciously hot, airless day (which resulted in a very stupid-looking sunburn, which unfortunately didn’t fade for months) and even with the gloves, I got some pretty nasty splinters that had my fingers stinging for days but I loved every second of it. I loved the repetitive movement, the soothing count, the intense concentration that had the rest of the world fading to nothing. I’d been in excruciating pain and I did struggle with my back during the session but I would’ve happily kept going; I only left because I had a prior commitment. I loved it and it was a really special thing to get to do. I also, by some magical serendipity, got to meet Anna herself and talk with her briefly about my love for the project and the idea of writing a song about it. She was really lovely and it was a very cool cherry on top to the day.
Discovering Maisie Peters – I’ve listened to Maisie a little, on and off, over the years but I think I just felt like I never quite had the brain space to really get into her music. But then I heard ‘Lost The Breakup’ and I was completely hooked. I played it on repeat until The Good Witch came out and then I was just obsessed; I didn’t listen to anything else for weeks and even when I did start listening to other stuff, I still often returned to it. I can’t quite explain what was so magical about it or why it resonated with me so strongly but it really did and I’m still completely obsessed with Maisie’s songwriting; I could talk about it for hours. I’d love to write with her. I also got to see her twice on tour and they were both really special shows: I saw her in Bristol on Halloween at the smallest venue of the tour and I saw her headline at Wembley, the biggest venue of the tour and a real milestone, at the end of the UK leg. She’s a fantastic performer and I absolutely loved the shows. I was also lucky enough to go to the VIP pre-show acoustic sessions and those were really, really special. I have a Week In My Life post half done about that week that I hope to get up soon where I talk more about that so I’ll come back and link it here – it was an exhausting week that took a long time to recover from but it was absolutely, 100% worth it. I saw her perform at the Communion Xmas Party too and got to talk to her briefly afterwards too, which was really lovely (her keys player, Tina, too). It was definitely my Maisie Peters season and long may it continue; I’m so glad to have her music in my life.
Listening to The Good Witch, making bracelets for the tour, dressing Izzy up as the song, ‘BSC,’ Maisie’s acoustic set in Bristol, the Halloween stop of The Good Witch Tour, the acoustic set at Wembley Arena, Maisie’s sold out show at Wembley Arena, Maisie performing at the Communion Xmas Party in London, and meeting her after she performed.
Getting a TENS machine – Given how bad my chronic pain has been this year, getting a TENS machine was a revelation. It has been so helpful and I’m so very grateful to have a way to reduce my pain when it’s really bad. I don’t know how I didn’t come across it sooner but I’m so thankful for the recommendation from my GP (who is an actual miracle worker).
Meeting Amanda Tapping at LFCC 2023 – Amanda Tapping is one of my favourite people in the world and has been since I was about fourteen. She’s played some incredible roles that have inspired me deeply and she is a truly wonderful human being. I met her several years ago and although I was almost paralysed by anxiety, she was so kind and open and it was a really special experience. This year she started doing livestreams with The Companion and it was so, so nice to see her again, regardless of the fact that she couldn’t see me. The livestream was great and I looked forward to the promised future ones. Then, in the summer, I went to my first Comic Con and got to meet her again in person. We had such a lovely conversation – as did she and my Mum, who was with me as my disability support person – and it’s a memory that I will always hold close and keep safe; it was a very special experience. And then, my third Amanda Tapping moment of the year was the second livestream, which was great on its own, but I also had a ‘backstage’ ticket and I was able to talk to her briefly afterwards. She’s so open to big, honest, vulnerable conversations and it feels like she really sees you and hears you when you talk and that’s such a powerful feeling; I remember thinking about that after I met her the first time and it was exactly the same this time. She, and the characters she’s played, have been a constant source of inspiration and strength for me and stumbling across her all those years ago was such a fluke but, my god, I’m so grateful I did.
Getting The ERAS Tour Tickets – Even though, it was incredibly, sickeningly stressful (and caused a fair amount of ableism-based trauma), I am very grateful to have gotten tickets to The Eras Tour in the summer – and not only one but multiple times, since several friends and groups of friends wanted to go and wanted to go with me. That felt very special and I’m both grateful that we were able to get the tickets and that I have been able to afford it, having been saving since The reputation Tour ended. I have a very complicated relationship with the future and with looking ahead but it was a huge relief to know that I wouldn’t have to watch the every show happening without being there even once. So I’m grateful for that. And, as always, I’m just grateful for Taylor herself: for her music, for being a person I can look up to, and for the inspiration and opportunities she has given me.
The Disability-Focussed Writing Workshop run by Sick Stories – I discovered this online workshop on Eventbrite and from the first one I attended, I had an absolute blast. Sophie, the host, is absolutely lovely and the prompts always led me down interesting rabbit roles. The first prompt Sophie suggested resulted in an idea for a novel that I would love to write at some point, my love of writing fiction returning that immediately. The fact that it was disability-focussed, along with Sophie’s excellent hosting, made it feel like a really safe and fun place to explore and share ideas that might’ve otherwise felt too personal and vulnerable, leaving all of the amazing pieces of writing I heard unwritten. I love a lot of the stuff I wrote in those sessions and although I don’t yet have anything to do with them, I hope that I will at some point find a way to share them.
Discovering Juneberry Red Bull – Among my family and friends, my Red Bull consumption is somewhat legendary, despite the fact that it seems to give my no caffeine hit whatsoever (I think I’m still living in denial that one day it will start helping again). But it had kind of waned… until I tried the new summer flavours. The other three didn’t do anything for me but this one has me in a chokehold: I love it so much. I would drink it all day if it wasn’t as unhealthy as Red Bull obviously is. But it’s a nice little treat that I’m very pleased they came up with.
Being able to afford a new laptop when my old one died – My laptop was dying a slow and painful death and, given that I use it for most of my work, that was a very stressful position to be in. But, thanks primarily to disability benefit, I was able to buy a new one and while that was obviously great for work reasons, it’s the first time I’ve had a brand new laptop in a long time so that was very exciting. I love shiny, new gadgets and, since they’re usually very expensive, I don’t get to do the whole “oh my god, a shiny, new gadget!” thing very often.
Nimona – Watching the film, Nimona, was a really emotional moment for me. I loved the story and the world and the animation style and the humour but the character of Nimona really resonated with me. I really related to her and saw a lot of myself in her: her feelings of otherness, her self loathing, her masking – there were so many parallels to being autistic. Seeing that was very moving. And I really, really related to her in her ‘monster’ form. *SPOILERS* The scene below is constantly on my mind and that scream has me in tears every single time: that is what it sounds like in my head, in my soul. That is what it feels like to be me. Being able to point at that and say to someone, “That’s how it feels,” has been so emotional. It’s hard to describe but I’m so, so grateful to have this film. It might mean more to me than any other film, specifically because of this sequence.
Swimming, hydrotherapy, and starting physiotherapy – For most of the year, I’ve kept to a pretty solid schedule with my swimming and hydrotherapy and then, halfway through the year, I met with an amazing physiotherapist and have been pretty consistently working at that too. Having now worked with both a hydrotherapist and physiotherapist who really understand hEDS, I can say with absolute confidence that it is a completely different experience; I’ve worked with good people before but that lack of understanding has always been a major obstacle and I’d find myself burning out and giving up. I’ve always loved to swim but I’ve found that I can really love hydrotherapy and physiotherapy (although I have had some periods of pain so bad that I had to take a break until it faded). We’ve found two really lovely pools to swim in, which makes it even more enjoyable, and I’ve made some real physical improvements. That’s been kind of mind blowing – to actually see that happen. And to the point where I was able to swim 5km for Mind! But more on that in a minute.
Izzy – I still can’t quite believe that I got a puppy this year, that I actually have a puppy now. That’s definitely not something I expected at the beginning of the year; it was probably the last thing I expected. But here we are and I’m madly in love with her. Izzy is a golden Pomchi (half Pomeranian half Chihuahua) and she’s utterly gorgeous: she’s soft and warm and snuggly and amazingly smart. The bond we’re building is already so strong and so special and that means so much to me, even though it’s kicked up some hard stuff. But I want nothing more to love and protect her and she seems to feel the same, guarding me at almost all times and trying to lick away my tears when I’m sad and looking to me when she’s distressed. My relationship with Lucky was incredibly special and always will be but, just as I learned after my first cat was put too sleep and we then got Lucy, I can love another animal and not feeling like the new relationship is replacing the old one. This relationship is new and special in its own ways and I feel lucky and honoured to have a puppy to pour all of that love into.
Getting to fundraise for Mind – Getting to fundraise for Mind felt really, really special, not just because we managed to raise so much more money than I’d expected (over £600 compared to my goal of £200) which was amazing, but because I was finally physically capable of doing it. I swam 5km for Mind, 1km a night over seven nights, partly due to managing my hEDS and partly do the logistics of pool time, but I was really proud of finding a way to make it work. I was exhausted and sore afterwards but it was absolutely worth it. I was so impressed and so touched by the generosity of everyone who donated it and I was so proud of myself for committing to it and competing it. I look forward to doing something similar at some point.
Spending my birthday with horses – My birthdays have been a source of stress for quite a long time now so I’ve taken to either ignoring it completely or trying to find something un-birthday-like but still special to do. And this year, I found myself going on a wellbeing course that centred around horses. I’ve always loved horses so, while the confidence building stuff was hard, it was so nice to spend time with these gorgeous animals again. It was a really cool, interesting way to spend the day.
The excellent books I’ve read this year – I worked really hard to get back into reading this year and I read a lot of really good books. The ones that have most moved and inspired me are Trista Mateer’s poetry, Blythe Baird’s poetry, The Anthropocene Reviewed by John Green, and Tomorrow and Tomorrow and Tomorrow by Gabrielle Zevin. All of these books had a really profound effect on me and they’ve all become so special, each a little piece of my personal creative and artistic mosaic. I don’t know why I picked them up when I did but I’m so thankful that I did.
A year of Duolingo – It’s hard to believe that I’ve now been learning Dutch for over a year. It’s hard to believe how far I’ve come. But I have and I have. It’s so strange to me: I hated learning languages at school but I’ve loved learning Dutch. There are plenty of obvious reasons for why I hated it at school but they’re not really worth dwelling on at this point but I had no idea when I started learning through Duolingo just how much I would love it, how restful I’d find it, how much fun I’d have. I had no idea that learning a language could be such an enjoyable experience – could be enjoyable at all – after my school experiences and it’s even inspired me to think about other languages. But one thing at a time. I love learning Dutch and I feel no need to change the way I’m currently doing things. I don’t know why I thought to download the app that day but I’m really glad I did and I’m proud of myself for opening it and practicing every day since.
As I’ve repeatedly said, to call my feelings a mess is the understatement of the year. I was re-reading my post from last year and I don’t know if I can describe gratitude amidst depression and suicidal thoughts any better than I did then: “When I feel like this, like I’m drowning in my depression with these near constant suicidal thoughts, things to be grateful for feel like a double edged sword. Sometimes they’re things that make me feel like I can keep hanging on, even if just for a little bit longer, and sometimes they feel like weights tied to my ankles, keeping me here when I desperately don’t want to be and I have to admit I resent them for that. So it’s anything but simple. It’s good and bad and hard and confusing; I can feel differently, ten different times in a day sometimes. But these are the objectively good things in my life and I can recognise that. I wanted to honour them for that.”
Finding Hope 