Metaphors For Autism

Autism is not always the easiest thing to understand. That’s okay. I’m autistic and I don’t always understand it. And that’s why words are wonderful: because they can help us make sense of things we don’t understand. The right words can show you a whole new side of something. That’s why I write this blog.

But for now, I thought I’d have a look at some of the most common analogies for Autism:

Possibly the most common analogy is the comparison of computer operating systems. Being autistic is being a Mac in a world of PCs. Ultimately they do the same thing but there are real differences that put them apart. Not all of the software is compatible, which causes problems when interfacing; you have to learn both to communicate smoothly. Functions require different commands on the keyboard or are found in different menus. To a PC, a Mac is weird and other but it’s just a different operating system. It’s also worth pointing out that the metaphor extends in that both PC and Mac can get viruses as both neurotypical and autistics can have mental illnesses. Mental illness and Autism are not synonymous and it’s important that that is always made clear.

Another analogy I’ve recently come across is being a cat in a room full of dogs. In an attempt to fit in, you try and join in, playing and running after sticks. But none of these things feel natural and in reality, you’d rather do your own thing (or sleep). And you only want attention on your terms. You are obviously not a dog, but that doesn’t mean you can’t get on with dogs; it just takes a bit of patience.

A good analogy for day-to-day life as an autistic person is the coke can analogy. Throughout the day, each task, each thing that requires concentration and energy, shakes the coke can a little. Over the day, that builds and builds until you’re just trying to keep it from exploding, at least until you get home. Sometimes you can release the fizz slowly but sometimes it’s all too much and the can explodes, resulting in a meltdown.

So far these are all I’ve found that make sense to me although I’m sure there are more out there. How do you explain or describe Autism? Do you use variations of these ones or do you have entirely different ones?

New Old Medications Thoughts

If I’m honest, I’m still not sure what I’m doing – how I feel about my writing – but there’s been a lot in my head this week so I thought I’d just try and get it all down. Maybe it’ll help.

I’m not sure if I’ve mentioned it already but after two and a half years of trying medications, I’m back on Phenelzine for my depression. I’m back on the drug I was trying to get away from. Back in 2017, it was starting to fail but I was also starting to fight it. The lifts to my mood felt artificial and suffocating. I felt depressed but there was this thick layer of calm suppressing it and it was causing me great, great distress. I felt like I was scratching at the walls of my mind with my fingernails, desperate to get out and just feel how I was feeling. Of course, feeling deeply depressed is a miserable, paralysing experience but at least it felt real. It was the truth and the truth is one of the most important things to me.

But despite all of that, I’m taking it again and I can’t help feeling like we’re starting to run out of options. We must be if we’re going back to a drug that I struggled with, that stopped working – although it’s true that it did work for a significant period of time. But we started looking elsewhere for a reason. Multiple reasons. I voiced that in the session with my psychiatrist and he said that there are still options but I can’t help worrying. Because if I’m running out of options at the age of twenty four, that’s a lot of life left without much to work with. Will we reach a point where I just have to live with it? Live with crushing depression and paralysing anxiety?

And let’s talk about anxiety. Last time I was taking the Phenelzine, I also took Quetiapine, primarily for the insomnia that the Phenelzine caused but it also helped with my anxiety. Because it’s a sleep aid, it has a sedating effect, which helped me to manage that constant anxiety. But I can’t go back to it. The sedative effect almost seemed to increase over time and it got harder and harder to wake up in the mornings. It was like I was so deep underwater that I couldn’t find the surface; I could hear people talking to me but I couldn’t open my eyes or move or speak. By the time we were abandoning the Phenelzine, it was so bad that I was losing half the day just trying to wake up. I can’t go through that again. It was awful.

So that limits the options, if I can’t take that or any of the similar drugs. The drug we’ve decided on is Diazepam. I’ve been taking it on and off over the last year and it works; it stabilises my emotions when they get out of my control. But it has addictive potential and I’m not supposed to take it every day. So, every day, I have to look at my anxiety and feel my anxiety and assess whether it’s bad enough to take the medication. And that’s exhausting. I never get an escape from it. To me, that’s not living. That’s managing.

But this is it for the moment. This is life. We’ll reassess in a month.

A Little Life Update

Hi guys.

I’m sorry for my extended absence. I never meant to abandon the blog; it’s just been a really, really tough month. I’ve been taking the new medication (or old medication – Phenelzine), which seems to have had no effect other than to upset my stomach. But I’m trying not to give up hope just yet. One of my cats had kittens, which has been incredibly stressful. My depression has reached new lows and I actually started to find it difficult to think at all: sentences would not finish in my brain. It was frustrating and very distressing. I’ve also had quite possibly more meltdowns in the last month than I have had in the previous six. So it’s been hard and writing has just felt impossible. I couldn’t put what I was feeling into words and I didn’t feel like I had anything useful to say, anything anyone wanted to hear.

I don’t quite know what happens now. I love this blog dearly so I have no intention of abandoning it but you may have to be gentle with me as I try to get back to writing. I’m doing my best, I promise.