Finding HopeDopamine Land: A Multisensory Experience
Posted on November 11, 2023
Over the summer, I was able to go (twice!) to this cool, immersive exhibition called Dopamine Land: “Dopamine Land is a multisensory experience that combines media, technology and play in one place. It’s an interactive museum made up of colourful installations that channel the limitless imagination of your inner child into reality. Take a break from your everyday life, have some fun, take some photos and boost your happy emotions!” (x) It’s made up of, I think, eleven rooms, each with a different artistic and sensory-stimulating environment inside. Some of them I absolutely loved, some of them I simply enjoyed, and some that I actively struggled with. But I loved the experience, first with my Mum and then with a friend of mine who also has ADHD (something which I do think made it a slightly different experience, although I’m not sure I could clearly explain why).
Before you enter the exhibition, there are two signs on the wall, explaining what dopamine is and how their rooms boost it, which I found super interesting: “Here at Dopamine Land we aim to trigger a gentle release of Dopamine in each of the spaces in different ways as you travel through the gallery. But what is dopamine? Dopamine is a chemical released in the brain that makes you feel. It is responsible for allowing you to feel pleasure, satisfaction, and motivation. A dopamine ‘reward’ can be caused by many pleasant experiences, including eating nice food, feeling loved, winning a game, and earning money, and having the right amount of dopamine is important both for your body and your brain. When you feel good that you have achieved something, it’s because you have a surge of dopamine in the brain.” and “How do the spaces trigger dopamine? There are many different types of triggers for dopamine, across all your senses, and each individual will experience dopamine in different ways. Therefore we have designed the experience to go through a variety of types of spaces, from energetic, to nostalgic, to meditative rooms. You may feel joy in a childhood memory, or from a wonderful aroma. You may experience a warmth from visually satisfying images, or a creative moment may trigger your feel-good hormone. Or perhaps a mesmerising, calming environment is best for you to find your happy place.”
There will be major spoilers in this post so, if you want to go and want to be surprised by the experience, don’t read any further because I will be talking about the different rooms and the fun little details and basically the whole experience. However, if you’re interested, please read on…
The first room (I forgot to take a photo of its name and description) was deeply reminiscent of Yayoi Kusama’s Infinity Rooms, which I always completely adored so I loved that room and just wished I could’ve stayed longer (it was one of the few that had a time limit)…
As I said in my Week In My Life post a few weeks back, I can’t really explain why I love this environment so much. There’s just something about it that makes my brain feel so right and joyful, like a symphony finally in harmony (that metaphor just flowed out as I was writing and it really took me by surprise – it’s a very apt metaphor given that my brain often feels very noisy). It is deeply pleasing on a sensory level in a way that I rarely experience.
I also forgot to take a photo of the sign outside this room with the name and description of it but I’ll do my best to explain it. There were square panels in the floor throughout the room and when you stepped on one, it changed colour. It’s a bit disconcerting though because they look like there is just endless space below, like you could fall through it and just keep going. My friend and I had a good time though, trying to step on different ones and getting the colours to sync up. Yes, we’re actual children…
Another of my favourites was called Lucid Dreams with a looping video of all these different visual effects with different colours, different sounds, and what looked like different textures. The explanation outside read: “Let your mind immerse you into an infinite dreamscape and allow your imagination to fly free. This space explores the concept of ASMR content (Auto Sensory Meridian Response): something that evokes light and pleasurable tingles, sparkles, fuzziness or waves of relaxation in the neck, spine, and body.” I’ve never been a huge fan of ASMR but I loved this room. It was definitely one of my favourites; I could’ve watched it all day. It was definitely the room I spent the most time in. It was just gorgeous and oddly compelling and as I said when I talked about it before, I didn’t just want to touch it – I wanted to live inside of it. I tried to find out who designed and created it but when I contacted Dopamine Land to ask, they said that they didn’t give out that information. It seems unfair to me, that the artists aren’t getting clear credit for the work that they’ve done.
I honestly couldn’t choose a favourite moment of it; I loved the whole thing.
The Writing Room wasn’t a favourite but I thought it was kind of cool, although I would’ve put it at the end for people to write about their Dopamine Land experiences if they wanted to: “Pause for reflection and give a moment for gratitude. Tell us what makes you full of lust, love, and laughter, tell us what you’re grateful for or what you dream of. Write a note to yourself, recalling a feel-good moment of joy, the warmth of love, or perhaps something a little more primal. Post it to yourself in one of the post boxes, or leave it for others to enjoy.”
These were my messages that I left tucked into various corners.
The next room, Creating Calm, was pretty nostalgic, with fridge magnet words to rearrange and lights for shadow puppets: “Let’s get busy and create something! Brash, bold, thoughtful, creative, artistic, or beautifully silly; all creations welcome here! A creative act can focus the mind due to its calming effects on the brain and body, releasing dopamine, a natural antidepressant. It is also thought that higher dopamine levels drive our motivation to explore and boost creativity. So let’s get making!”
I find shadow puppets all but impossible to do but it was fun to watch other people try and I had fun with the fridge magnet words. I like how, when the word you want isn’t available, you have to take the sentence in a different direction, usually ending up with something you never expected. Sometimes it ends up being nonsense but sometimes it ends up being really cool.
The next room was the ball pit but I forgot to take a picture for the explanation. Having said that, I think it’s safe to say that a ball pit turns everyone into a kid; there’s something very nostalgic about them and I couldn’t help but laugh hysterically as I ended up flailing around like an idiot when I couldn’t get back up again. It wasn’t at the top of my favourites list but there’s something wonderfully childlike about flopping into a big container of plastic balls and burying yourself in them until not even your face is visible; it’s just so joyful.
That one was probably the hardest on my back though, when the pain was bad. The whole thing wasn’t great for my back pain but I was wearing a brace and the support was a life-saver. I wasn’t pain-free but between the brace and my industrial strength painkillers, I was just about coping (a favourite coming up was the perfect antidote to all the standing and throwing myself into the ball pit). As I said, the ball pit was the most painful and I did regret my enthusiasm a little afterwards; the strain it put on my back was just a bit too much.
Another of my absolute favourites was called Fire Lantern: “Give a moment to appreciate those around us, and those who are not, as you bask under our canopy of glimmering light. Dopamine plays a part in encoding and consolidating memories and fire lanterns hold an important role in many cultures social events and festivities, lighting the way for souls of the ancestors. Contemplate the beauty of these mesmeric lanterns and remember fondly those with whom you have parted ways.” I thought that was really beautiful and I was absolutely mesmerised by the space, by staring up at the lanterns as I lay on the big bean bags on the floor. The quiet – just the low voices of the other people talking as they lay on their own bean bags – was really soothing and I honestly could’ve stayed there all day. It would’ve been easily done too because time seemed to move differently in there. I’d love a space like that in my house, just to decompress in. I don’t think that’s gonna happen though.
I was so excited to see it a second time and it was nice to start with but then two different families arrived with their kids, none of whom could’ve been older than ten, and they were running around the room and shouting and dragging the bean bags from place to place and it just completely ruined the gentle atmosphere. It was really disappointing.
The penultimate room, Keep Calm, looked like an abstract forest: “When dopamine is released it can produce a reaction where you feel calm yet also energised. Experience an immersive digital nature; a forest of the surreal! A natural space of great calm and beauty conjured through lights, mirrors, and the scent of natural wood, yet contrasted by hard lines, creating a shifting, shimmering, layered forest.” It was weird but beautiful and reminded me of wandering through the woods as a kid.
It wasn’t at the top of my list but I did really like it; it was very soothing. But then, again during my second visit, the families with kids ruined that. The kids were running around and shrieking and kicking up the wood chips covering the ground, sending them spraying in our direction. It was deeply frustrating, and more so that their parents didn’t seem to care that they were disrupting the experience for everyone else.
The final room, apart from the social space on the way out, was called Pillow Fight! and the explanation outside read: “The penultimate stop on our voyage. Release your inhibitions and dance in the eye of the storm! Euphoria will wash over you as the energy levels are raised. Take the pillows, giggle and release some tension as you return to your childhood, and settle some old scores in a friendly pillow fight.”
(x)
It looked super cool and I liked the idea but the music was so loud – too loud. It was overwhelming. Even the people I went with, neither of whom are autistic, found it unbearably loud. It was just too much so we didn’t linger long in that room either time. That was a shame because it looked amazing and I loved the idea of a pillow fight. But I just couldn’t handle the noise.
The last space was The Bubble Bar where you could get drinks and snacks, named to fit the theme of the exhibition. Around the room, there were little corners with what were essentially cute photo opportunities.
Some of them were fun but we didn’t spend very long there. I can’t speak for anyone else but I was still holding the special moments close and didn’t really want to hang around, letting them dilute in a halfway space before leaving. I understand the appeal of finishing the exhibition with an opportunity to sit and eat and drink but it wasn’t for me.
Apart from the annoying kids during the second visit, both experiences were really cool and I really enjoyed it as an exhibition. So many of the rooms just made my dopamine-deprived brain really happy and that was really special. I think my only qualm was that we don’t get to know who created each room; I’d love to know what they go on to do.
Another Autistic Summer
Posted on August 1, 2022
Summer as an autistic person can be really difficult. There are a lot of changes and some of them can feel quite extreme, quite overwhelming: the heat, the humidity, the general increase of people out and about… It can feel like a lot to deal with. I don’t pretend to know everything – not by any means – but I thought I’d share some of my thoughts and strategies for dealing with some of the big summer stresses…
SENSORY ISSUES
- Too bright – While bright skies are a sensory issue year-round, the summer months are hard in their own way: the light feels like it has a different intensity, it reflects back at me differently, it’s a different colour, it’s present for more hours of the day… It’s hard work on my eyes. I like working in my living room because it has white curtains, allowing for some light but without the glare (although anti-glare glasses are a good option to explore if you’re struggling inside). Outside, sunglasses are the obvious protective measure, but polarised sunglasses are better if you can get them.
- Too noisy – I find noisy environments very stressful and my anxiety only increases the longer I am in that noisy environment. The sensory overload is just too much and I become less and less able to function. And with more people around in the summer, the noisier it tends to be and therefore, the more stressed out I can get. I’ve found that the most effective coping mechanism is noise-cancelling headphones but playing music or audiobooks/podcasts through headphones and earplugs (if you find them helpful, you can have ones specially made – relatively inexpensively – to fit your ears, making them more effective) also work.
- Too hot – I’ve always found the heat of the summer very difficult and have been using open windows, fans, damp flannels and so on for years. But over the years, I’ve found the noise that regular fans make more and more anxiety-provoking so I finally invested in a Dyson silent fan. It was expensive (note: they are less expensive outside the summer months) but it was one of the best investments I ever made in managing my day to day health; it’s the most effective fan I’ve ever had and I use it year round. It’s more than made up for the expense. It’s also important to remember to drink as much water as you can – this is especially important for those with hEDS as well as dehydration makes the symptoms worse. Carrying a water bottle with you, having an app that reminds you to drink regularly, and so on can help you to remember and help you to build it into your routine.
- Different clothes – Following on from problems with heat, that often demands an entirely different wardrobe, which can be a less than comfortable change, literally and figuratively. It can involve different, uncomfortable fabrics or less fabric altogether, which can result in chafing or just feeling really exposed when people look at you. Finding specific fabrics – like cotton or linen – that aren’t irritating can be helpful. Layering, so that you can stay covered up as much as you need to to be comfortable, with thin fabrics can allow you to balance the need to keep cool and the need to be covered. And if you find a piece of clothing that really works for you, I recommend getting several to avoid the repeated stress of trying to find comfortable clothes.
- Crowds – As we know, in the summer, there are more people out and about and the world just feels more crowded. Public places are busier and that can be really stressful. Especially with the anxiety around COVID-19, crowds and crowded places can feel overwhelming which can cause anxiety attacks or meltdowns. The obvious advice is to avoid busy places at peak times but we all know that that’s not always possible. We all have our own strategies for managing anxiety but the ones I find most helpful in this situation are having someone I trust with me, giving myself plenty of time so that I don’t have that additional pressure, and I’ve also found the sunflower lanyard useful in certain places.
CHANGES IN ROUTINE
- Day to day changes – For some of us, our routines change regularly with the seasons but that doesn’t make it any less stressful. As someone who finds change very stressful, I try to make these changes slowly so that I have time to adjust and don’t end up feeling overwhelmed. It requires planning but it can really reduce anxiety.
- Loss of structure – While this isn’t, of course, applicable to everyone, the summer is often when people have time off from their usual occupation or go away on holiday. And with these things, we often find ourselves without structure. A lack of externally imposed structure can lead to a lot of aimlessness and/or anxiety so learning to build our own structures is a good skill; you don’t have to fill your schedule from opening your eyes in the morning to closing them at night but giving yourself things to do and think about (beyond their inherent value) keeps you moving and feeling and living. I do struggle with this but I’ve found it really helpful to have my family prompt me when I get stuck in a rut.
- Seeing less of some people and more of others – As I talked about in my BPD Awareness Month post, I get very anxious about my relationships and fearful that I’ll mess them up or that my issues will be too much for people. So a big change in my routine of seeing friends makes me very anxious. Living with such limited energy, socialising is something I find stressful because it requires so much energy, even though I enjoy that actual spending time with people. I’m lucky that my good friends are really lovely and really understanding but I still worry. I haven’t really figured out a good way of dealing with this anxiety but I do try to be as honest as I can with my friends and family so at least we all always know what the situation is.
ANXIETY
- Trying to do too much – When I have free time, I often end up struggling with a lot of anxiety, usually about whether or not I’m using the time in the best way (partly due to the fear that if I say no to too many things, people will think I don’t care and eventually want nothing to do with me). This can result in trying to do too much, more than my health – my sensory issues, my energy levels, and so on – really allow me to, which can lead to meltdowns or feelings of burn out. Over the years, I have gotten better at judging what I can and can’t manage and what’s really important to me but I still find it difficult and stressful and sometimes upsetting. I think it comes down to practice and self-compassion but that’s easier said than done. (I know that I also have issues about being as productive as possible but I also have a lot of anxiety about time running out in general, in multiple aspects of my life, which means I often end up pushing myself too hard. But I can’t say I know what to do about those issues at this moment in time.)
- The stress of holidays – While there are fun things about holidays and travelling, there are a lot of really stressful aspects, from the actual travel like flying to all the new-ness to being cut off from all of the normal coping mechanisms. There’s also a weird expectation to have fun on holiday that can create added pressure. Personally, I’ve found that the absolute best thing I can do in these situations is just talk to whoever I’m with and try to be realistic about what I can manage, although it’s still a learning curve. It doesn’t always feel like enough but I’m still learning to adjust my expectations to fit with my physical ability; I struggle with feeling guilty about ‘wasting opportunities’ too but, as I said, learning to let that go is a process and requires practice and self-compassion.
- Anxiety around what comes next – This is the first year where I haven’t been in education (or had education on the very near horizon) so I can only really speak to the experience of being in education and how it can, at times, feel like an endless hamster wheel. Every year, there’s the freedom of the summer holidays but there’s anxiety too. I always had this anxiety in the back of my mind about what the next year would bring, having finally gotten comfortable in the patterns of the year just gone. After all this time and all these years, the new academic year still stressed me out to an almost unbearable level so I don’t really know how we, as (disabled/neurodivergent/struggling) students, are supposed to manage that stress. I think a big part of it is on the schools and how they handle the roll out of the new year and talking to the school about it can help but, personally, I haven’t had much experience with that making things better. But I have to hope that they will eventually improve.
I know it’s been a while since my last post. A lot has happened and I’ve been having a really, really hard time. Some of that is stuff that I would like to write about at some point but I still feel like I’m stuck in the middle of it. Plus, I’ve been really struggling to write – with even being able to string a sentence together – which hasn’t been helping anything. Things still aren’t great – which may be the biggest understatement of my life – but I miss writing and I miss writing for this blog so I’m trying to push through. I wrote most of this a while ago and, given how hot it’s been recently, I wanted to get it up while it might still be helpful. I hope it is.
The Pros and Cons of Winter
Posted on October 23, 2021
I love every season but by the end of it, I’m always ready for the next one. But, as a neurodivergent person with multiple physical and mental health conditions, different seasons present both different excitements and different challenges. With winter around the corner, I thought I’d share some of the good things and some of the difficult things, along with how I’m learning to cope with the difficult things. This list is, of course, specific to me and my location so it’s not going to match everyone’s experience but hopefully they’ll be something useful to you in here, even if your experience of the season isn’t the same as mine.
PROS:
- The sensory experience – I think winter is my favourite season as a sensory experience. I love the crispness of the air; I love looking at all of the beautiful lights and pretty Christmas decorations; I love the smells associated with winter and Christmas (in my house, at least), like satsumas, the meals we generally only have in winter, the super sweet smells of sugary puddings and sweets, Christmas trees, and so on; the sight, sound, smell, and warmth of a fire. There are, of course, downsides, like busy shops and blaring Christmas carols but, over the years, I’ve gotten pretty good at avoiding those things.
- Fires in the evening – My Mum and I both love having a fire to end the day, like a little treat for ourselves. As I said above, I love the sensory experience and we both find it a really good destresser. One of our favourite things about this house is the gorgeous fireplace and every year, we both get really excited about having fires again.
- Potential for snow – I love snow. It makes me so happy: watching it fall, standing in it as it falls, how beautiful it looks first thing before anyone has disturbed it, the way it crunches when you walk through it, watching the cats try to make sense of it, and so on. And because we get it so rarely, it’s always special. No, it’s not guaranteed but I still enjoy being excited about the possibility.
- Christmas – I struggled with Christmas in my late teens and early twenties, which I think was largely to do with how much I was struggling with my mental health and ASD. But as I’ve gained a greater understanding of the long-term issues I deal with and talked about them with my family, Christmas has become much more relaxed and enjoyable. They’ve been fantastic at working with me so that I can do the parts that I really enjoy and not do the parts that I struggle with. It’s become such a better holiday since then. I see friends and family (COVID depending, obviously), spend warm and relaxed evenings with my favourite people, get a Christmas tree and decorate it with the decorations my family have been collecting for years, not feel guilty (or at least feel less guilty) about doing things I don’t usually feel like I have time for (like reading books or watching movies all day), exchange presents, and so on. We’ve found a way to make it a really special, enjoyable time.
- The cats spend more time inside – With the colder weather, my cats (whose presence I find very soothing) spend most of the day inside when, in the summer, they spend almost all of their time outside. So having them around more is lovely. They’re usually in the living room with me, curled up on the cat tree or sprawled across the furniture, or, even better, snuggled up with me on the sofa. They’re gorgeous and it’s one of my favourite things about winter.
CONS:
- The cold – I hate being cold. You can usually find me in a big jumper or wrapped in a blanket. I’m often cold in the summer so it’s even harder to stay warm in the winter. I’m super grateful for the heating, the fire, my electric blanket, and so on.
- Managing temperature – I really struggle with temperature regulation. I get hot or cold really quickly but then it can take hours to return to normal (and then it can suddenly jump to the other extreme). And going from really cold outside to really warm inside can just make that even more tricky. Layering helps but only to a certain extent. I have been doing some research and there are brands that make clothes to help with this so I really want to investigate these as I can afford it. (x)
- Different fabrics – Clothes for cold weather can cause sensory difficulties. They can be bulky, heavy, itchy, and so on, as well as making me feel claustrophobic and trapped in my own clothes, which can cause a lot of anxiety. As I said above, I tend to do a lot of layering with the clothes I’m comfortable in but that isn’t a fix all. I’m still looking for a coat that doesn’t stress me out and I really hate wearing gloves. But I’m still trying to find the best option.
- Ice – I might love snow but the amount of ice around in winter can be pretty perilous. And between my less than perfect balance and my chronic pain making me somewhat unstable, I do worry that every step could disappear underneath me and land me on cold, hard pavements with painful consequences. Given how bad my pain has been recently, a fall could be very painful and that pain could linger for quite a while.
- More difficult to meet friends – Especially with COVID in the mix, I find it much harder to meet up and hang out with my friends in the colder months. It’s so much easier (and cheaper) when we can hang out in a park or on the beach or something like that, plus it feels safer considering the times we’re currently living in. But finding somewhere to hang out inside poses certain challenges, like COVID anxiety, meeting everyone’s dietary needs, the costs of hanging out in a cafe for example for an extended period, and so on. It’s just that bit more complicated and harder to organise and I find that plans often get pushed back again and again. So I often end up seeing my friends less in winter which makes me sad.
- Feeling sealed inside – In an attempt to keep the heat in and save money on the heating, we keep the windows and doors closed as much as we can. And while that does the job we’re trying to do, the side effect is that I often feel a bit claustrophobic, like I’m sealed into my house with only the same air circulating (obviously this isn’t scientifically true or I would’ve suffocated long ago). And that feeling really stresses me out. Mum has taken to leaving the windows cracked open at night to get some fresh air in, which does help, but the feeling does still start to creep in by the end of the day. So I’m still working on that.
- Less light, more darkness – While I like how cozy the house feels when it gets dark early, I do sometimes find it stressful; it feels like the day is actually shorter and I have less time to get done everything I need to do. Plus, autistic individuals are often low in Vitamin D so with fewer daylight hours than usual, that can become a bigger problem. I’m already low in Vitamin D so I take a supplement prescribed by my doctor to avoid a serious deficiency that could cause health problems.
I don’t know if this is helpful but when I sat down to do some research for this post – to see what other autistic/neurodivergent individuals find good and difficult about winter – I couldn’t find anything for autistic adults. Everything I found was directed at parents helping their children to adjust to the change in season but that doesn’t just go away as we grow up, although the challenges might change. So, since I couldn’t find a single post or article relating to adults, I felt it was all the more important to write something on the subject. So I hope this has been helpful in some way. Let me know what you would include on your list or how you manage the seasonal change!
Finding Hope 