Happy Brighton Pride! (2023)

So today my hometown of Brighton is celebrating Pride and, as the gay capital of the UK, we go very hard for Pride. There’s the parade, the festival in the park (which sounds really fun but I live really close to the park so I’m basically at the festival all weekend whether I want to be or not – the constant music is A LOT after a while), as well as the hundreds of events going on all over the city. The big celebrations are too much for me as an autistic person but I’ve been to some great smaller celebrations and, in general, the city (and all of our visitors – the trains and roads are absolutely packed) has a great time every year.

I wasn’t sure what to write for this post, if I’m honest. I’m still figuring out who I am – I guess that’s what happens when you spend your teenage years and twenties trying to manage and understand both your physical and mental health – so I don’t feel ready to write about that and although I’m so massively proud of my incredibly LGBTQ family, I haven’t figured out how to write about it yet.

So I thought I’d go looking for quotes that describe or relate to growing up in an LGBTQ family…


“DNA doesn’t make a family.” – Unknown

“I don’t care about whose DNA has recombined with whose. When everything goes to hell, the people who stand by you without flinching, they are your family.” – Jim Butcher

“Family is not defined by our genes, it is built and maintained through love.” – Unknown

“Blood doesn’t always make a parent; being a parent comes from the heart.” – Unknown

“Blood makes you related; love makes you family.” – Unknown

“Family isn’t defined by last names or by blood; it’s defined by commitment and by love.” – Dave Willis

“Some families are created in different ways but are still in every way a family.” – Unknown

“The last names may not match, but the hearts certainly do.” – Unknown

“Families don’t have to match. You don’t have to look like someone else to love them.” – Leigh Anne Tuohy

“Blended families are woven together by choice, strengthened by love, tested by everything and each are uniquely ours.” – Unknown

“Children can never have too many positive adult role models in their lives.” – Unknown

“I am who I am because of the people who influenced me growing up, and many of them were gay. No one has any right to tell anyone what makes a family.” – Drew Barrymore

“Call it a clan, call it a network, call it a tribe, call it a family: whatever you call it, whoever you are, you need one.” – Jane Howard

“The family is one of nature’s masterpieces.” – George Santayana


There really aren’t that many quotes, specifically about LGBTQ families; there are slightly more about multiple families that blend because of divorce and remarriage. Honestly, I didn’t expect a flood of them, but I did expect more than this. I didn’t find any quotes that came even close to describing my family – beyond generalised quotes about family being about love rather than being related – but then it is very unconventional. I’ve never met or even heard of a family as complex as mine. I like to refer to it as a constellation because it’s beautiful and unique and special and a really weird shape. Sometimes I do wonder what it would be like to have grown up in a conventional straight family but it’s only ever a passing curiosity. I love it, for all it’s quirks, and I wouldn’t trade it for anything.

The Symbology of Autism

Just as many medical conditions, charitable causes, and organisations use certain colours and symbols to identify and differentiate themselves, Autism has multiple symbols and colours associated with it. They all have their own histories, their own origins, their own connotations. Here are several of the most well known…


The Puzzle Piece

The puzzle piece is the most well known symbol related to Autism, dating back to the early 1960s. It was created by a board member of the National Autistic Society, Gerald Gasson, in 1963 based on Autism being a ‘puzzling’ condition. The original logo included not only a puzzle piece but the illustration of a crying child, to represent how children were ‘suffering’ from Autism. Obviously this is deeply problematic and has  perpetuated the negative stereotypes about Autism for decades.

Over the years, there have been many, many different puzzle piece designs attached to Autism related organisations and charities. It’s also been associated with the idea that being autistic means you are missing something, that you are missing something that everyone else has; that may be a feeling that many autistic people experience at some point in their lives but it’s not something that should define us or that should be stated as fact. Another meaning associated with the puzzle piece is that Autism is a puzzle to be solved and, by extension, autistic individuals are puzzles to be solved, another stereotype that many autistic people dislike and dispute.

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Personally, I don’t hate it as a symbol. To me, the puzzle piece doesn’t represent something that’s missing; it represents the idea that we’re all puzzles and we wouldn’t be complete without every single thing that makes us who we are. We’re mosaics and we are who we are because of each piece that builds up the picture. I know many people feel that Autism isn’t just one piece and I agree but my point is that I don’t see the puzzle piece as something missing but as something fundamental. So I don’t hate it but I think its history – its original meaning – is too entrenched in society’s consciousness to ever really be changed. I doubt it could ever be a purely positive symbol at this point.

The Colour Blue

The use of the colour blue was first used to represent Autism by Autism Speaks (used in their ‘Light It Up Blue’ campaigns), instantly making it something to avoid given everything the organisation has done (x) (x). And the colour was chosen because Autism was believed to be far more common in boys, something we now know isn’t true; it’s just that the signs are often more easily observed in boys and men than in girls and women. Given the history with Autism Speaks and the misinformation implied by the colour, this is something to move away from.

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Rainbows

Most likely due to the use of the word ‘spectrum,’ rainbows have been associated with Autism and with neurodiversity. Many feel that the range of colours represents the different abilities, challenges, and identities of the autistic individuals the rainbow symbol represents.

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While I understand the association, the rainbow will always be firmly associated with being LGBTQIA as for as I’m concerned and attaching it to both identities will not only cause confusion but feelings of appropriation. While I know that isn’t the intention, using it for two different communities and ways we identify is only going to cause problems.

The Colour Gold

The choice of gold developed in deference to the use of the colour blue: “The idea is to have a common thread that runs through all groups, advocates and supporters that was easily recognised, different and came from the autistic community, not from those who think they speak for us.” (x) It’s based on the chemical symbol for gold, ‘Au,’ the first two letters of Autism and autistic and it has multiple positive connotations. Gold is something that is strived for, something rare and valued and treasured, giving autistic individuals a sense of being special, rather than less than – a feeling the puzzle piece often results in. It’s also not gender specific, just like Autism.

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Infinity Symbols

Like the gold symbol above, infinity symbols are fairly popular when representing Autism (often rainbow or gold coloured) because it represents everyone, every variation of Autism. The rainbow infinity symbol specifically was chosen to be the symbol for neurodiversity by Judy Singer (an autistic woman with an autistic child and sociologist) in the 1990s. This symbol therefore represents not just Autism but other neurodevelopmental conditions such as ADHD, Dyslexia, Dyspraxia, and more. The infinity symbol not only represents the variation within the community but the inclusion of everyone in it no matter what their strengths, challenges, and so on are.

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I have nothing against the use of infinity symbols but for me, it’s too vague; it can represent too many things. I was using it in Maths long before I found out I was autistic so, in my head, it’s all about numbers and equations and that’s not how I see Autism at all. So, because of that, it just doesn’t really work for me; I don’t feel like it represents me as an autistic person or as a person in the autistic community.

Rainbow Circle

The rainbow circle is one of the most recent symbols representing Autism, created by Lori Shayew and Kelly Green: “In light of the recent news that the rainbow is not an arc, but a circle. (Thanks for the proof NASA) It’s time to recreate the new model. Colours of the rainbow weaving in motion. We are recognised for all of our colours… It’s time to break down the spectrum (low-mod-high) and allow our innate gifts to bloom and flourish. Don’t we all excel at some things, but not in others? No big deal. We can jump from yellow to red to indigo to green and back again. Maybe then there are no colours, only light.” (x) The logo for ASAN – the Autistic Self Advocacy Network, an organisation created by and for autistic people – is not dissimilar to this symbol.

Left (x) and right (x)

This is probably my favourite of the Autism symbols. While the traditional rainbow feels very entrenched and important in the LGBT community, this uses the fitting aspects but clearly distinguishes these two communities. I also really like that it can be personalised for each different person by changing the number and colour of the bands, chosen to represent your experience of being autistic as you see fit. So, with the general design being pretty recognisable, it can represent the community and the individual.

Sources: (1) (2) (3) (4) (5)


There have been more over the years but, as far as I know, these are the most significant ones, the ones that keep coming up. I’m not sure if we’ll ever find a colour or a symbol that we all agree on – I’m not sure if we need to – but I think transparency around the symbols and their histories… that is important. If there’s anything I’ve missed or more information I can add, please let me know. And I’d love to hear your thoughts on the different symbols so please leave a comment below if you feel so inclined!

A Week in My Life (February 2020)

So I thought it might be fun to document a week in my life, both as a person with mental health problems and Autism and as a person doing a Masters in songwriting. So recently, for a week (one of my more interesting weeks), I took notes on each day so this is those days collated, a week in my life right now.


MONDAY

My Monday started at home in Brighton (doing origami for the #30dayfeb) but I was hugely nervous (and excited) because I was playing my university’s songwriters’ circle that evening. And what made it extra special was that it was the LGBTGIA+ History Month Special. I proudly come from a proudly LGBT family and identify as queer myself, although that label is as far as I’ve gotten. When your mental health and Autism take up your whole life, there’s not a lot of time for figuring out your sexuality. I haven’t talked about sexuality on here much because I felt like I needed to know specifically what I identified as (gay, bisexual, pansexual, asexual, etc) before I said anything but now I’m thinking that not knowing yet is also important to talk about. I don’t want to do too much of that here though because I think it deserves its own post.

Anyway, I was nervous but also really excited.

I caught the train to London and the tube to uni where the songwriters’ circle was being held. I met Richard (Richard Marc, my best friend and writing partner) there and we practiced for a bit: we were playing a song we’d never performed before. So we worked that out, ran through it until we were confident with the performance, and then went to get food before going back for our soundcheck. That went well and we met everyone else who was playing; they were all absolutely lovely.

The special guest was an alumni, RIS, described as: “an up-and-coming Sofia-born electropop artist based in East London. The queer singer-songwriter’s brooding vocals bring euphoric melodies to life over dramatic alt-pop tracks, rich with sizzling synths and sonic ear candy.” They were really lovely and I absolutely love their songs: I can’t wait for them to release more.

The other students, Lea Frances, Francesco Pio Ricci, Becky Kerly, and our host tutor, Anjali Perin, were all amazing and interesting and different and it was a really  incredible experience to be a part of. You can actually listen to the whole circle here and hear everyone’s beautiful music and stories. There’s something strangely spiritual about a songwriters’ circle and I hope you can feel that without actually being there. Speaking for myself, it felt magical and exactly how songwriting and songwriters’ circles should feel: a coming together and sharing of stories, of songs, and of souls. And holding it in a music university, getting a sing-a-long isn’t difficult and that’s one of, I think, the most special things you can experience as a songwriter, as a performer. The whole event was so wonderful and I felt so lucky to be a part of it.

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TUESDAY

My lecture didn’t start until eleven so I got a bit of a lie in after the late-ish night and all of the emotion but then I had a bit of a headless chicken morning, running around, back and forth, getting ready and packed up for uni. But I made it on time, a little early even so I got to chat to my friends. It felt like a very weird morning: I just felt super emotional and like crying at every little thing. It was hard work to stay composed.

The lecture covered the grading criteria for the assessment essay, which was really helpful. I find the language really confusing so going through it with a tutor explaining it in detail and in real, human language made is much more accessible and easier to understand.

But the main part of the lecture focussed on Max Martin – we cover one songwriter a week and look at techniques they use and so on. It’s really interesting, especially because they’re all really different. So, for Max Martin, we focussed most on melody, syllable count, and melodic math: a device used to make melodies really tight and memorable. It was fascinating, especially to someone who puts lyrics before melody. I don’t know if I could ever do it consistently because lyrics are so important to me but it’s definitely something I’d be up for trying out, just to see what the result sounded like.

Then I have a four hour break before the next class but I spent some of it hanging out with my friends, an hour at a meeting about the upcoming Nashville trip, and then two hours writing with one of my best friends on the course, Luce, while our other friend, Sharné sat in the room with us and worked on some of her own work. We worked on a song for a couple of hours, getting quite methodical and looking at the deeper message of the song and so on but I don’t think either of us were in quite the right frame of mind to write so the three of us just ended up talking. They’re such lovely people that talking with them, whether it’s about random stuff or intense, emotional stuff, the conversations mean a lot to me.

The second and final class of the day was the workshop, where we play songs we’ve written based on the previous week’s artist’s techniques. A lot of people don’t turn up, presumably because it’s not assessed and they need the time for other things, so it was just me, Luce, and Sharné, which was actually really nice. There was a lot of time for feedback and I really enjoyed working on their songs and my song more intensely than we would usually have time for. They had both written great songs, both of which I really loved.

My only complaint about the classes is how cold the classrooms are. They’re absolutely freezing, so cold that we’re wearing our coats, scarves, and gloves in class. The air conditioning is on even in December and January. We’ve asked them to turn it off but there’s been no change. Especially on a day when I was very emotional, being so cold just made me want to cry.

Fortunately, my Mum was working in London and the end of our days coincided so she picked me up and we drove home together, catching up about our days. We got home and I was so exhausted that I went straight to bed. It had been a long and emotional couple of days.


WEDNESDAY

After my busy Tuesdays (and this busy Monday), I take Wednesday as a rest day. And I tend to work on at least one weekend day. I might technically be doing my course part time but I have to be very flexible about the way I work because of Autism and mental health problems cropping up and making work difficult. I can’t write a song or research an essay if I’m recovering from a meltdown for example. It sucks, because it means I have to plan my life very carefully to allow for these problems but also be very flexible in case they do. It’s so frustrating. I hate it.

I did my origami and then spent the day bouncing between writing my diary and the continuation of moving my songs all into one notebook. They were very calming tasks. I tried to work on a song but just couldn’t make my brain work (I think I was too tired) and then, when I gave up, I lay down on the sofa and accidentally had a three hour nap.

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All of the cats!

I finished the day having dinner and watching Law and Order: Special Victims Unit with my Mum (it’s the show that just the two of us in the family watch). It was very relaxed and really nice to spend some time with her.

I had had serious anxiety about the work I have to do all day but had been managing it with Diazepam. It’s something I deliberately try not to think about on rest days because they’re my weekend where I have fun or recharge. I’ll spend the other days of the week working on those things but rest days are for resting. It’s still hard to shut off that anxiety though, even with the Diazepam.


THURSDAY

As had become my pattern, I started my day with my piece of origami for #30dayfeb. On this day, it was another bird. I did a lot of birds. They were pretty and not too challenging (I wanted challenging but some of the origami tutorials I watched were virtually impossible for a beginner like me).

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Most of my morning involved going to therapy. It ended up being a very intense, upsetting session – therapy can be a bit of a funny paradox because if you leave feeling exhausted and drained, chances are you’ve worked really hard and done some important work; you’ve just got to look after yourself afterwards. We were talking mainly about a difficult relationship in my life and how to handle it as well as my OCD and how it’s affecting my Masters work. Trying to control it enough to get the work done is gruelling and exhausting and sometimes it feels just too hard. It spiralled into harder and harder stuff and I ended up in tears. Getting myself together to leave was a struggle. And then, to make things worse, the cab I needed to get home didn’t turn up and I was left waiting in the rain for half an hour, until my therapist came to check on me. She lent me her phone and I called another one.

I eventually got home and called my Mum at work, sobbing down the phone because it had been just too much after a difficult session. Plus changes in plans really throw me. Talking to her managed to calm me down a bit and I felt a bit better when we hung up. I was tired enough to sleep but my brain was whirring too fast so I was still awake but groggy when Mum got home.

We had some dinner (and some red bull) and caught the train to London. We were going to see Waitress again, mainly so that I could try and meet Sara Bareilles after the show. She’s had such an impact on my life that I just really, really want to meet her and thank her. And getting to see the show again isn’t exactly a hardship. I love the music, the cast is fantastic, and the story always inspires me; it makes me feel like I might end up happy, even if it’s not in the way I expect or currently want it to. That’s big for me. And Sara is just amazing. She just is Jenna. She’s plays the part like it was written for her and she sings like Jenna is a part of her. ‘She Used To Be Mine’ is one of my favourite songs ever and there’s something magical about hearing her sing it live. This show is so important to me and it always will be.

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Sara’s bow!

We rushed outside to see if I could meet her and we met some of the other cast who kindly chatted with us and signed my ticket but Sara herself didn’t appear. After a while, the security guard said she’d left but I was reluctant to just go, having been told the same thing in the past and gone home only to see people posting selfies with her on Instagram. But this security guard had been really nice to us earlier in the night – so I felt I could trust him and his explanation – and he told us that she had an early engagement the next day and so she’d had to leave straight away (as it turns out she was on This Morning the next morning so it was entirely true). So we went home. We have one more opportunity to meet her before her run ends so hopefully I’ll get to meet her then. I know a lot of people don’t get my dedication to seeing shows more than once (I often get overwhelmed mid show and so seeing them multiple times allows me to get the full experience – and why would you not want to see a show you love more than once, especially if it’s only on for a limited time?) and meeting the artists but they’ve really shaped my life and therefore become part of my life so it feels important to connect, even if in the tiniest way.

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Marisha Wallace (who plays Becky – she has an incredible voice and is utterly hilarious) signing my ticket.

We caught the train home and fortunately got back not too late, considering we’d waited afterwards (I appreciate that they hadn’t just left us waiting in the cold). I went straight to bed and was asleep in seconds.


FRIDAY

I did my origami (an apple) and then spent the morning doing some reading for my Masters, working on my songwriting book when I needed a break. It was very gentle and chilled after the emotional day and late night from the day before – the perfect antidote.

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Lucy keeping me company.

I had a late shower but ended up sitting on the bathmat, sobbing because there’s just so much sadness in me. There’s so much sadness, past and present, happening in the world and to the people I love. It overwhelmed me and I just got so upset. It happens sometimes, quite a lot in fact. I’m an emotional person but I’ve been particularly emotional recently.

In the afternoon, I had an appointment with the doctor. Mum always comes with me to these appointments, especially with doctors I’m not familiar with (the Autism specialist doctor has been away), in case I get overwhelmed and because she knows my mental health and Autism history really well, sometimes better than me. We talked to the doctor about the pain I’ve been having from my fingers to my shoulders (I was, at that moment, having some really bad pain in my hands and left shoulder), which is obviously cause for concern. We talked about support for people with Autism, which there still seems to be a distinct lack of, plus several other things. I found it very unhelpful and distressing but Mum seems to think that the information we got, good and bad, means movement – in her plans and research, I suppose. So I guess that’s something.

To cheer me up, we went home via the nearby pet shop. We need to replace the cat tree/scratcher so we went to look at the ones they had and there were some possibilities but we need to do some measuring before we commit and buy one. But we did buy a couple of little cat toys, mainly to make me happy: a little unicorn and a little Grumpy Cat (we try to avoid buying toys that look like real animals so that they don’t give us a huge shock, thinking the cats have brought in a mouse or something). They’re really cute.

The unicorn toy and the Grumpy Cat toy.

Then we came home and had a gentle evening. I did some reading for my essay and then me and Mum had dinner in front of SVU. When I finished eating, I did some diary writing. It was an attempt at calm but I was still very anxious, even taking Diazepam. I’d intended to go to a friend’s gig in London but I just had too much pain in my hands, arm, and shoulder that I just couldn’t do it. I felt so bad because it’s been so long since I’ve been to one of her shows and I felt like a bad friend for ‘not supporting her.’ I could’ve managed the show but the travel just made it too much. I felt really guilty for not going, something I struggle with a lot – guilt, that is. So it was a difficult evening.


SATURDAY

I spent most of Saturday songwriting (after doing my origami). I tried to write both with a pen and on a computer – diary, blog writing, or research – but my hands felt thick and stupid (which we think was a side effect of a medication I’ve now stopped taking since it wasn’t helping and there were too many side effects – none of them serious but all of them unpleasant and unhelpful) so it was a real struggle. Playing piano was really the only thing that wasn’t difficult in that sense and so I spent a lot of the day playing, writing, and editing songs, several of which I really like.

I also put up my blog post about Lucky, which I’m really proud of.

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Me and Lucky on Christmas Day with his new toy.

Me and Mum spent some time in the afternoon and early evening talking about a presentation I have coming up, talking rather than writing since my hands were still struggling. Then we had dinner and watched some TV together. I ended up falling asleep on the sofa at seven because I was so exhausted by everything going on and Mum had to all but drag me off the sofa and steer me to bed.


SUNDAY

I woke up stupidly early (at half past four) and couldn’t go back to sleep as hard as I tried. Eventually I got up and moved to the living room, putting the TV on low and getting to work: sending emails, social media messages, and so on. I’m better in the mornings, more awake and less anxious, so those things feel easier.  I organised my diary and did some blog writing. It was a productive start to the day, despite the painfully early start.

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Mouse keeping me company while I worked.

Once Mum was up and we’d had breakfast, we did some house jobs (such as fitting the new cat flap) and I talked to a friend who was very upset before getting down to work on my presentation. I’d been talking to various people since it was set as an assignment so I felt prepared when I sat down to make the presentation slides. I spent the day working on the slides and beginning a script for what I was going to say.

In the evening, I ran it past Mum (who does a lot of presenting as part of her job) and she critiqued it for me. Then one of my other parents came over and we had dinner in front of Tim Minchin’s Orchestra Tour DVD. He’s truly an incredible musician and performer.

It was a productive day and I went to bed as late as I could manage – about ten o’clock – and took a sleeping pill to make sure I got a good night’s sleep.


I hope that was interesting, that it gave you a glimpse into my life. Let me know if you want more of these because it was definitely interesting to write.