Posted on August 22, 2020
I’m not sure how I’ve written roughly two hundred blog posts and never told this story but I recently found the letters containing all the details and so I thought I’d finally tell it because it was a really important moment in my life.
I’d struggled with what obviously turned out to be Autism and the mental health issues that developed due to that going undiagnosed for years but I’d always been dismissed, told that “every teenager struggles.” But if that was true, I couldn’t figure out why everyone seemed to be coping so much better than me. It was awful and I just felt like I was failing and wrong and always slightly out of sync with everyone else. But if this was normal, then I was going to have to figure out how to live with it. Because apparently everyone else had.
As a teenager, I went to the Hay Festival in Hay-on-Wye, Wales a handful of times. It’s a really cool arts festival and I’ve heard (and met) some of my favourite authors there over the years. But my most significant memory is from when I heard Stephen Fry speaking about mental health. What he said changed my life. He talked about his experience with depressive episodes and suicidal ideation and equated the ups and downs of mental health to the weather:
“I’ve found that it’s of some help to think of one’s moods and feelings about the world as being similar to weather. Here are some obvious things about the weather: It’s real. You can’t change it by wishing it away. If it’s dark and rainy, it really is dark and rainy, and you can’t alter it. It might be dark and rainy for two weeks in a row. BUT it will be sunny one day. It isn’t under one’s control when the sun comes out, but come out it will. One day. It really is the same with one’s moods, I think. The wrong approach is to believe that they are illusions. Depression, anxiety, listlessness – these are all are real as the weather – AND EQUALLY NOT UNDER ONE’S CONTROL. Not one’s fault. BUT they will pass: really they will. In the same way that one really has to accept the weather, one has to accept how one feels about life sometimes, ‘Today is a really crap day,’ is a perfectly realistic approach. It’s all about finding a kind of mental umbrella. ‘Hey-ho, it’s raining inside; it isn’t my fault and there’s nothing I can do about it, but sit it out. But the sun may well come out tomorrow, and when it does I shall take full advantage.'”
(This isn’t the exact quote from the event but this is a metaphor he’s used multiple times and is very similar to what he said that day.)
Everything he was talking about made absolute sense to me; for the first time, someone was saying ‘this isn’t normal,’ ‘this isn’t something you should have to learn to live with,’ ‘this is something that can be helped.’ For the first time in my life, I felt like someone understood what I was going through. Some of the feelings and experiences he described were so similar to mine that it took my breath away. I walked out of the tent in a daze and as soon as we had a bit of privacy, I told my Mum everything.
After that, we went to see my GP and started steadily exploring the options that the NHS provided. Things really deteriorated and the search became much more urgent after I failed an exam (I talk about that in this post and this post) and we were forced to go private to get me the help I needed as fast as possible, before it got worse. If you’ve read the posts about me getting my various diagnoses, you’ll know that, after several years of talking to lots of different people, I ended up being diagnosed with Autism Spectrum Disorder, Depression, Anxiety, Social Anxiety, Obsessive Compulsive Disorder, and Borderline Personality Disorder.
And on and off during that time, I thought about that Stephen Fry talk and what he’d said and how everything might’ve turned out differently if not for that moment. So, not long after I got my diagnoses, I wrote to him. I wanted to thank him for his part in my journey. I didn’t know if he’d get it but I wanted to try anyway.
To my utter surprise, he not only got it but a few months later, I got a response. I don’t feel comfortable sharing it because he wrote it only for me and to circulate it feels like a breach of trust. I don’t know if that’s how he’d feel but that’s how it feels to me. But he was warm and kind and generous with his words and I’m so, so grateful. I’ve often returned to it in times of difficulty and it’s helped me pick myself up again and again. This letter is a deeply cherished possession, a gift I never in a million years thought I’d receive.
Category: about me, diagnosis, emotions, event, mental health, quotes, suicide Tagged: actuallyautistic, actuallyborderline, anxiety, asd, autism, autism spectrum disorder, autistic, borderline personality disorder, bpd, depression, hay festival, letter, memory, mental illness, obsessive compulsive disorder, ocd, reply, social anxiety, stephen fry, story, storytime, suicidal ideation, thank you, turning point
Posted on May 14, 2019
I’m so excited to announce that the ‘Invisible’ music video is finally out. This time last year, I put this very special single out and although I’d planned to put the video out straight away, life and mental health got in the way. But now it’s Mental Health Awareness Week again and I thought it was time this video saw the light of day. I would love it if you’d watch and I really hope you like it. It’s so, so special to me.
Almost two years ago now, I got together with Rosie Powell (my incredible director and videographer) and we planned this video. I really wanted to focus on the lyrics and the story behind the song so we came up with the idea of painting the lyrics on a wall (shout out to one of my parents for letting me paint all over my old bedroom wall). I was super excited. But having never been ‘in’ a music video before, I was also really nervous about being on camera. I felt really self conscious and worried about how my issues with eye contact would affect the video. Autism problems, am I right?
Day one was painting day. We set up in my childhood bedroom (and by that I mean, we lugged all the furniture out – which I then fell over multiple times) and got to work painting the lyrics on the wall.
It was really fun but weirdly, really hard work: it was very physical and I was exhausted by the end of it. It was also really cathartic to physically put those words out into the world. I’m not very artistic – I’ve never been very good at drawing or painting – so this was all new to me: seeing what I’d imagined in my head out in the real world. It was very satisfying to see this…

… turn into this:

It was a really good day and I’m really proud of the work we did.
Day two had Richard (my writing partner and general partner in crime) coming down to Brighton and we shot the ‘performance’ section of the video. I felt very self conscious with the camera on my face so much but both Rosie and Richard are so lovely that I felt very safe. Again, it was exhausting – that might be my issues with fatigue coming into play – but really satisfying and fun.

I had a lot of plans for this single and the video but alas, they weren’t to be. Life happened and my mental health took a lot of hits (if you’ve been following this blog, you’ll be aware of some of them). My depression has been brutal and made doing anything musical almost impossible. It’s been a long, hard road but I’m so, so glad this video is out in the world. I’m so proud of it and I’m so grateful to have worked on it with such lovely people. I wouldn’t have wanted my first music video to have come to life any differently.

Category: mental health, music, video Tagged: anxiety, borderline personality disorder, bpd, debut single, depression, invisible, invisible illness, invisible music video, mental health awareness, mental health awareness week, mental health awareness week 2019, mental illness, music video, new music, obsessive compulsive disorder, ocd
Posted on April 20, 2019
EDIT: Since writing this post, I’ve learned a lot about the language around mental health and I no longer think that the word ‘obsession’ is necessarily a helpful one. I think something like ‘subject of intense interest’ or ‘specialised interest,’ not dissimilar to language used when describing ‘special interests’ in Autism. Having said that, I’m reluctant to change the language in this post because it’s the language that Claudia uses and because I think it’s potentially important to leave the post in its original form. Also, the negative connotations of the word ‘obsession’ are potentially relevant in the context of BPD as it’s a condition that can have unhealthy (a word often linked to obsession) and damaging behaviours for both the person living with it and the people who surround them (and I say this as someone who struggles with BPD).
I’ve written about Claudia Boleyn’s videos before but this is another great one that I think really clearly explains something that happens with Borderline Personality Disorder (also becoming known as Emotional Intensity Disorder) and various other mental health problems. I really recommend watching it.
In this video, Claudia talks about how, when you’re struggling with your mental health, you can develop obsessions with certain things, particularly fandom related things: fictional characters, books, TV shows, etc. These special interests can overlap with autistic special interests but they can also come about as a coping mechanism; they can become an escape from the difficulties of the real world.
She talks about how she can categorise her life by her obsessions, including Emmerdale and Anne Boleyn and certain areas of art history. She talks in particular about her obsession with Anne Boleyn, how it strengthens her and gets her through the really tough times. She even uses Boleyn as a surname: “I use it to exist in the world.” She talks about how she uses this obsession and others to understand herself. All of this makes those obsessions really special and important. I can definitely relate to this. My life can be divided up by my obsessions: animals but particularly horses – I obsessively read the Animal Ark and Saddle Club book series – Harry Potter, crime dramas, Taylor Swift, certain youtubers, anything superhero related…
“My identity and my life is sort of filled up with the stories of other people rather than stories of my own.”
With BPD, there’s the extra layer of struggling with your identity and your sense of self. Claudia talks about how she would go to school dressed as her favourite characters and how a teacher once asked her, ‘When will you come to school dressed as yourself?’ But that’s really hard when you don’t know who you are. I’ve always found it very easy to lose myself in fandoms or characters because I don’t know who I am to begin with and I’ve had a couple of experiences where I’ve done things I didn’t actually want to do because I thought that’s what a character would do, i.e. what I should do to embody those good characteristics.
“I’ve never felt like I have a proper identity in myself so I’ve sort of constructed one in a way based on what I admire and what I want to be and what will make me as good a person as I can be and what will make me contribute to the world but it’s really tough.”
It can be a good, helpful strategy – until it starts to dictate your emotional state.
“I think this isn’t spoken about enough with BPD, especially because we can struggle with identity and who we are and what sort of people we are. I think we often construct ourselves based around fiction and around those characters we admire and I think it matters a lot to us. It feels like it becomes a part of our identity in a way, so when it goes wrong, it feels like we’re falling apart. Yeah, it’s difficult.”
Another problem in BPD is that of regulating your emotions. Small things – day to day things – can have massive impacts on your mood. It can be exhausting and stressful to go through such ups and downs and it’s constant; there’s a lot of fear and uncertainty involved. So escaping into an obsession or fandom can be helpful and soothing but then, when something goes wrong in or around that fandom, for example, it can cause really negative emotions because your escape, your safe place, has been threatened. It might seem extreme from the outside but it’s very real and personal if you’re going through it.
I really relate to this video and I’m really grateful to Claudia for putting it out into the world. We need to talk about all parts of living with mental health, not just the relatively straightforward ones.
Category: emotions, favourites, identity, mental health, quotes, video Tagged: actuallybpd, borderline, borderline personality disorder, bpd, claudia boleyn, coping mechanism, eid, emotional intensity disorder, emotional regulation disorder, emotionally unstable personality disorder, obsessions, special interests, youtube, youtube video, youtuber

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope