Posted on April 20, 2019
EDIT: Since writing this post, I’ve learned a lot about the language around mental health and I no longer think that the word ‘obsession’ is necessarily a helpful one. I think something like ‘subject of intense interest’ or ‘specialised interest,’ not dissimilar to language used when describing ‘special interests’ in Autism. Having said that, I’m reluctant to change the language in this post because it’s the language that Claudia uses and because I think it’s potentially important to leave the post in its original form. Also, the negative connotations of the word ‘obsession’ are potentially relevant in the context of BPD as it’s a condition that can have unhealthy (a word often linked to obsession) and damaging behaviours for both the person living with it and the people who surround them (and I say this as someone who struggles with BPD).
I’ve written about Claudia Boleyn’s videos before but this is another great one that I think really clearly explains something that happens with Borderline Personality Disorder (also becoming known as Emotional Intensity Disorder) and various other mental health problems. I really recommend watching it.
In this video, Claudia talks about how, when you’re struggling with your mental health, you can develop obsessions with certain things, particularly fandom related things: fictional characters, books, TV shows, etc. These special interests can overlap with autistic special interests but they can also come about as a coping mechanism; they can become an escape from the difficulties of the real world.
She talks about how she can categorise her life by her obsessions, including Emmerdale and Anne Boleyn and certain areas of art history. She talks in particular about her obsession with Anne Boleyn, how it strengthens her and gets her through the really tough times. She even uses Boleyn as a surname: “I use it to exist in the world.” She talks about how she uses this obsession and others to understand herself. All of this makes those obsessions really special and important. I can definitely relate to this. My life can be divided up by my obsessions: animals but particularly horses – I obsessively read the Animal Ark and Saddle Club book series – Harry Potter, crime dramas, Taylor Swift, certain youtubers, anything superhero related…
“My identity and my life is sort of filled up with the stories of other people rather than stories of my own.”
With BPD, there’s the extra layer of struggling with your identity and your sense of self. Claudia talks about how she would go to school dressed as her favourite characters and how a teacher once asked her, ‘When will you come to school dressed as yourself?’ But that’s really hard when you don’t know who you are. I’ve always found it very easy to lose myself in fandoms or characters because I don’t know who I am to begin with and I’ve had a couple of experiences where I’ve done things I didn’t actually want to do because I thought that’s what a character would do, i.e. what I should do to embody those good characteristics.
“I’ve never felt like I have a proper identity in myself so I’ve sort of constructed one in a way based on what I admire and what I want to be and what will make me as good a person as I can be and what will make me contribute to the world but it’s really tough.”
It can be a good, helpful strategy – until it starts to dictate your emotional state.
“I think this isn’t spoken about enough with BPD, especially because we can struggle with identity and who we are and what sort of people we are. I think we often construct ourselves based around fiction and around those characters we admire and I think it matters a lot to us. It feels like it becomes a part of our identity in a way, so when it goes wrong, it feels like we’re falling apart. Yeah, it’s difficult.”
Another problem in BPD is that of regulating your emotions. Small things – day to day things – can have massive impacts on your mood. It can be exhausting and stressful to go through such ups and downs and it’s constant; there’s a lot of fear and uncertainty involved. So escaping into an obsession or fandom can be helpful and soothing but then, when something goes wrong in or around that fandom, for example, it can cause really negative emotions because your escape, your safe place, has been threatened. It might seem extreme from the outside but it’s very real and personal if you’re going through it.
I really relate to this video and I’m really grateful to Claudia for putting it out into the world. We need to talk about all parts of living with mental health, not just the relatively straightforward ones.
Category: emotions, favourites, identity, mental health, quotes, video Tagged: actuallybpd, borderline, borderline personality disorder, bpd, claudia boleyn, coping mechanism, eid, emotional intensity disorder, emotional regulation disorder, emotionally unstable personality disorder, obsessions, special interests, youtube, youtube video, youtuber
Posted on March 16, 2019
I haven’t written much about my diagnosis of Borderline Personality Disorder, even though it’s a diagnosis that means a lot to me. It was hard fought: when my psychiatrist didn’t believe me, I presented him with all the research I could find to prove to him that it was at least worth considering. He both apologised and admitted that he was wrong, and it wasn’t long before he bestowed the diagnosis upon me. It was confirmed later that year when I got my Autism diagnosis.
The name Borderline Personality Disorder is not a clear one. People assume that there’s something wrong with your personality or that you only just have a personality disorder. Both of these assumptions are incorrect. The word ‘personality’ in personality disorder refers to the patterns of thoughts, feelings, and behaviours that are individual to each of us and the word ‘borderline’ relates back to early uses of the label, when it was thought to be a condition ‘on the borderline’ between neurosis and psychosis. Even though that has since been disproven, the name hasn’t changed although that is a popular idea. Suggestions include ‘Emotional Intensity Disorder’ and ‘Emotional Regulation Disorder.’
The symptoms include:
I related to a lot of this: the intense emotions, the fear of abandonment, the shifting sense of self. But on the other hand I’m too anxious to be impulsive or get angry with someone. There were enough connections to keep investigating though and that’s when I discovered the quiet presentation of BPD. Where the classic presentation lashes outward, quiet borderlines internalise, blaming or harming themselves. Their fear of abandonment can make them people pleasers and they struggle with feelings of isolation and loneliness, at a higher risk of depression than the classic borderlines. This discovery changed everything; I related to almost every experience I read and that gave me the confidence to pursue it as a diagnosis.
Despite the considerable stigma around BPD, I’ve had a really good relationship with my diagnosis. After so much anxiety and uncertainty, it was empowering to have a name for my struggles and it allowed me to get the support I needed. I’m aware of how lucky I am to have found the right people but that wouldn’t have been possible without the diagnosis.
Having said all of this, my diagnosis has been causing me a lot of anxiety of late. At the end of a session, my psychiatrist made what was probably, to him, an offhand comment about my collective diagnoses, that I might not need the BPD label anymore. I was too overwhelmed by a torrent of emotion to respond before the session was over – even a short session can take me days to process – but then the anxiety began to sink in. The idea of losing it – this necessary, hard fought piece of my identity – was terrifying. Is terrifying. This label explains a big part of my daily struggles and revoking it would be so invalidating, like saying that it isn’t happening, like my difficulties aren’t significant enough to even earn themselves a name. That thought of that happening is devastating.
The symptoms still feel very present to me. I feel things so intensely; they’re like physical forces acting on me. If I’m happy, sunlight is bursting out of me; if I’m sad, my ribcage is collapsing and I can barely breathe for the pain; if I’m angry, I feel like it’s strong enough to bring down buildings. They crash over me like waves and I’m overwhelmed by this panic to get back to the surface. It’s very stressful. I read somewhere that people with BPD are constantly in crisis and I definitely relate to that. Every emotion flares with life or death situation strength and it happens over and over again. They can swing so violently that it makes me physically sick and it can feel like there’s no solid ground to stand on. It’s exhausting. I also feel the emotions of other people, particularly sadness or pain, and it can take hours or days to recover from them.
“Borderline individuals are the psychological equivalent of third-degree-burn patients. They simply have, so to speak, no emotional skin. Even the slightest touch or movement can create immense suffering.” – Marsha Linehan
“One of the biggest things about self harm is the release you get from doing it. My emotions get so strong sometimes that I feel like there isn’t space for anything else in my body, in my brain. There isn’t the space for my lungs to expand; I can’t breathe. It almost feels like the emotion is crushing me and the only way to survive is to open up my skin so that it can escape. It’s like a pressure valve. Once I’ve done it, I feel like everything stabilises and I can think more clearly. If there’s a problem, I can deal with it and if there isn’t and it’s just an overload of emotion, I can take care of myself a little better than I could if I hadn’t.” (x)
Another example of overwhelming emotions…
The fear of abandonment is ever-present, willing or unwilling. The thought of it causes me to spiral into panic so intense that I’m unable to function. Indefinitely. I’m always running, running away from this black hole that’s trying to pull me in. Past abandonments have left me unable to talk or eat or do anything for weeks and it’s taken years to recover from them fully.
I struggle with a deep feeling of emptiness and I sometimes feel like my soul is empty, which feeds into the feeling of having no idea who I am. I feel like I have no real sense of self that’s mine: who I am seems to change according to who I’m with. I take on the traits of others, becoming loud and joke-y with one person and quiet and introspective with another. I don’t know what is actually me. I know small things, like ‘I like flowers with symmetrical petals’ and ‘comedies make me strangely sad’ but I don’t know the big things, like whether I’m a good person or a reliable person or an extraordinary person. If anything, I feel like a child, like I’m stuck as a child while all my friends turn into adults. I can’t cope on my own or look after myself reliably. I feel so intensely sensitive, like I’m too vulnerable for the world I live in and I get too overwhelmed to function properly.
To take this diagnosis away would be to say that this is normal, that I have to just live with it, regardless of the pain it causes me. To take this diagnosis away is to say that I don’t need support and that I should just ‘get on with it.’ That is so invalidating and so upsetting that just writing it brings tears to my eyes. That is why this diagnosis is so important to me and why taking it away would be so traumatic.
All of this is very scary to put out into the world but I feel like the only way to make progress and move forward is to put it all out there and be honest. It’s almost painful, like removing armour that I’ve been wearing so long that it’s fused to my skin and I’m peeling it off with my fingernails. But it feels like the right move. Maybe, in doing this, I’ll start to see change.
“People with BPD are doing the best they can, and they still have to change.” – Marsha Linehan
Category: about me, anxiety, depression, emotions, identity, mental health, quotes, self harm Tagged: actuallyborderline, actuallybpd, borderline, borderline personality disorder, bpd, emotional intensity disorder, emotional regulation disorder, emotionally unstable personality disorder, eupd
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.