Posted on April 22, 2023
Last week, I had a little moment – relating to being autistic – that just utterly made my week, my month… you get the idea. And I wanted to share that on here.
Sometimes it feels like medical professionals just don’t get it and it’s easy to feel pressured into making decisions that we wouldn’t necessarily have made had our needs been understood and had we been given more time to think about it. But then something like this happens and it just… makes me feel hopeful, I guess. That things will get better, that people will become more aware and more understanding.
If you’ve been following me for a while, you may remember that I’ve been going to a specialist dental clinic for several years now, having had some pretty traumatic experiences at the dentist before that, before my Autism diagnosis. Since then, going to the dentist has been a lot less scary; I think it will probably always be stressful but it is a lot easier than it used to be (and for that I am very grateful).
I was at my appointment last week and after a gentle and patient check, my dentist ran through the potential next steps. Then she paused and acknowledged that I probably needed some time to think about it, that, while I seemed calm, she didn’t want to make any assumptions about what I was actually feeling and what I would be comfortable with. It surprised me in the moment but fortunately it was an easy choice so we moved on quickly. But then, as I was walking out, I processed what had just happened and I was kind of floored by it. I don’t think I’ve ever had a medical professional say something like that to me before, not in the eight years since I was diagnosed as autistic: I probably needed some time to think about it, that, while I seemed calm, she didn’t wanted to make any assumptions about what I was actually feeling and what I would be comfortable with. (I’ve talked about masking and needing time and feeling pressured with therapists but I don’t really put them in the same box as every other kind of medical professional: GPs, consultants (some who work with autistic people and therefore really should know better and some who don’t but should still know better), mental health professionals, dentists, etc.) If I had a pound for every time someone just assumed I was fine because I look fine – even knowing that I’m autistic, even knowing about masking – I would be unbelievably rich. So, having that acknowledged and considered and validated… I don’t even know how to describe how great that feels.
While having this all the time would be amazing, I’m really grateful to have it in a medical space, the kind of space that can be so stressful and pressured. Generally I’m not afraid to tell people that I’m struggling but masking or that I need time to think about things but after so many traumatic experiences in medical settings, I find it very hard; the pressure feels more suffocating and I feel so close to panicking. It would be great to have more people like my dentist with her approach in healthcare but, in this moment at least, I’m just deeply grateful that I have one safe space when it comes to managing my health.
I’ve been thinking about this experience a lot since it happened and while I remain incredibly grateful to have this dentist taking care of me, I just can’t help wondering what it would be like if there were more people like her, not only in medical spaces but in society in general. I can’t even imagine what that would be like. I’m pretty loud and proud about being autistic (even if I don’t always feel proud – I just can’t bear the thought of being even a small part of the reasons why someone might feel bad or scared or ashamed of being autistic) but I don’t always feel safe doing that. And that applies to everything from physical safety to work opportunities to potential friendships. I’m painfully aware that I could be jeopardising those things when I make it clear that I’m autistic (not that it will stop me – after all, it’s going to come up sooner or later). I just can’t help imagining what it would be like to be and talk about my whole self and feel safe doing that.
Category: anxiety, autism, emotions Tagged: actuallyautistic, asd, autism, autism acceptance, autism awareness, autism spectrum disorder, autistic, autistic adult, dentist, masking, specialist dentist, validation
Posted on April 21, 2023
My brand new single, ‘House on Fire,’ is now available on all major music platforms! Finally!

laurenalexhooper: Please welcome to the world, ‘House on Fire,’ a song I wrote at the height of the pandemic. I was so scared that I could barely function but putting words to those fears is what ultimately helped me move forward.
Three years later though, the meaning of the song has evolved and when I listen to it now, I think of different fears: fears of our society spinning out of control, of feeling powerless against the rich and influential, of feeling helpless.
For me, my songs have always been a space where my voice can be heard too and I hope you feel yours is as well when you listen to them.
You can find the song through the link in my bio!
Thank you always to @richardmarcmusic / @rsandersonphoto for everything you do (including the production and the cover art), @josh_fielden_sproggletstudios and Luke for the gorgeous mixing and mastering, and @icmplondon for their help in making this all happen via The Accelerator Fund.
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Click here to listen to the song!
New music has been a long time coming. I’ve wanted to release new songs pretty much since I finished releasing the Honest EP but between the pandemic, completing my Masters, and the time it takes to develop, write, record, and produce a project, it was always going to take a while. And then there was the disaster that was my medication and mental health situation over the last eighteen months, which obviously impacted my ability to create.
Now that my brain feels a little more like my own (and hopefully will continue to do so more and more), I have multiple projects in mind. The problem is going to be choosing which one to focus on first, which will be both fun and challenging. For now, at least, that’s something for all of us to look forward to.
I hope you enjoy the song and please let me know what you think and what it makes you feel, either on here or on social media.
Category: anxiety, covid-19 pandemic, emotions, music, special interests, video, writing Tagged: actuallyautistic, alt pop, alternative pop, asd, autism spectrum disorder, autistic, autistic artist, autistic creative, autistic creator, conversatives, coronavirus, covid-19, house on fire, independent artist, independent release, indie artist, indie pop, indie release, lauren alex hooper, music, my music, new music, new music uk, new single, pandemic, pandemic 2020, politics, pop music, protest song, richard marc, richard marc music, richard sanderson, richard sanderson photography, singer, singersongwriter, single, society, songwriter, the conservative party, tories, unsigned, unsigned artist
Posted on September 12, 2021
And that’s that. I’ve finished the final module of my Masters and therefore the Masters itself. I don’t know what my grade is for the module or for the whole course yet but frankly, I’ve got a lot to process before I can even really think about the grades and graduation.
Looking back at a similar post before the module started, I was excited about the project but nervous about my health, mental and physical, and whether it would prevent me from doing everything I needed to do, from being able to enjoy the process. And those were valid concerns so I thought, having written a post about how I was feeling before the module started, I’d write another now that it’s ended – like bookends.
A lot has happened since the beginning of May.
Over the last four months, I’ve spent almost every day working on my final project, researching, writing songs, and working on the production of an album. It’s been incredibly intense and now that it’s all done, I’m utterly exhausted, both mind and body. And while, for the most part, I loved it, it’s also a relief to be free of some of the anxiety around it (I’m still struggling with my anxiety around the grade). Having said that, I feel strangely lost and untethered now that I don’t have this big thing to focus on. I know that I need a break but I am looking forward to the next project, whatever that may be. I’m always happier when I’m doing things.
My mental health was pretty good for most of the module, surprisingly so. By my standards at least. I think that the constant creating and the creating of stuff I’m proud of really helped. I had one particularly bad episode of depression, plus a handful of smaller ones, and my anxiety was pretty constant but that’s normal for me. It got very bad in the last month, which was hard to manage – trying not to let it destabilise me was a bit of a battle in itself. It hasn’t quite faded yet. For various reasons, I didn’t have any access to my therapist, which was an unforeseen difficulty and that made things a lot harder than I’d expected them to be.
I also really struggled with my concentration. I’m still not getting any support for my ADHD (something that I hope will change soon but I’m still so frustrated that I couldn’t get any help with it during my Masters) so staying focussed on my project, on my research, took all of my energy. It was exhausting. I felt like my concentration was so, so fragile that a single moment of distraction would break it and then it would be impossible or would take days or even weeks to get back. So I couldn’t stop. Not for anything. That was very stressful and resulted in many, many long days. Sometimes I’d work all day without moving (not healthy, I know) and end up going to bed very late. And then, of course, I couldn’t sleep because my thoughts were racing. So it did a number on my sleep schedule too; I’m surprised I’m not nocturnal at this point.
That, plus the general fatigue I deal with day to day, meant I was tired all of the time. I’ve drunk an obscene amount of Red Bull (my antidepressants make me really drowsy, just to make things even more difficult, although I may be changing medications soon, which hopefully won’t have the same side effects) – I am beyond sick of the taste of it. But it got me through and I’m grateful for that. I will however be grateful to never drink it again (hopefully). And I’m really looking forward to getting both some proper sleep and some proper rest now that my work is done.
I also mentioned back in June that I’d been having migraines that seemed to be being caused by an abscess in one of my teeth. Since then, I’ve been on antibiotics twice, continued to have migraines, and am still waiting to have the tooth removed, a decision that was made at the appointment in June. Given how much disruption it was causing though, I did get extenuating circumstances which allowed me some extra time (although it wasn’t really extra since it was making up for time lost to a medical problem) to cope with those problems. It’s not bothering me presently which is a relief but I’m more than ready for them to take the tooth out, just so that they’re not even problems I have to think about.
While I managed to keep swimming twice a week – a routine I’ve been trying to maintain to create a solid foundation for my crappy joints – I was in almost constant pain throughout the module. At times, my right knee was so painful that I couldn’t walk on it and my back has been consistently painful; my Mum, who used to be a massage therapist, said it felt like trying to massage rocks and now that it’s all over and I’m trying to relax, the muscles feel like their made of concrete. Which is about as pleasant as it sounds. I’ve also had great trouble with my hands and wrists what with all the typing I’ve been doing. So, all in all, I’ve been a bit of a mess. I haven’t had any support for this – the hEDS – either; I’ve been waiting for physiotherapy and hydrotherapy since December 2020 officially and May 2020 unofficially. I’ve just had to try and get by on various painkillers, none of which have been all that effective.
Despite working practically non-stop, I got everything for my project done just in time for my final presentation. My assessors were positive, which I’m trying to hold on to in the wake of my anxiety around the final grade. I’ve been really trying not to attach my self worth to my grades (something I’ve always really struggled with), or at least, lessen the power my grades have over me but I can’t help the fact that I really want to do well. I’ve worked so hard – with so many obstacles – and the idea that that still wasn’t enough to get a Distinction would be upsetting. I’d get over it but it would still be upsetting. I never want someone thinking, “Oh, she mustn’t have worked hard enough.” Or worse: I never want to think, “Oh, I would’ve gotten a distinction if I wasn’t autistic or had ADHD or whatever” thoughts left over from my late diagnoses and the resulting difficulty I have in setting standards and goals for myself (more on that in another post). This anxiety isn’t helped by the fact that I keep thinking of things that I should’ve included in my presentation. My brain clearly hasn’t quite processed that the module is over.
And then, just when I thought I could relax, the world tipped under my feet. The next morning, my Mum told me that my Granny had died a few days earlier. She was ninety-three. Having barely started to process the end of my two year Masters and intense final project, this news was just too much for my brain. A few days on, I feel like I’m bouncing pretty erratically between two states, the first being this weird bubble where nothing can touch me and the second being, ‘if I stop thinking or talking or moving for even a second, I’m going to completely fall apart.’ It’s surreal and exhausting and sad. I’d like to write a piece about her at some point because she was such an incredible woman but I can’t really write more than this right now but it felt really important to at least acknowledge what’s happened because it’s so big and so important.
I don’t think there’s anything else to say right now. I’ve barely been able to wrap my head around this last week: my final presentation, the ending of the Masters, Granny, and everything that’s ahead given all of these things. It’s a lot to take in; I’m exhausted. I’m just taking it day by day.
Category: adhd, anxiety, autism, covid-19 pandemic, death, depression, emotions, family, heds, medication, mental health, music, research, sleep, therapy, university, writing Tagged: actuallyadhd, actuallyautistic, adhd, adhd inattentive type, adhd support, album, antibiotics, antidepressants, anxiety, anxiety disorder, asd, attention deficit hyperactivity disorder, autism, autism spectrum disorder, autistic, autistic adult, autistic student, break, concentration, death, depressed, depression, drowsiness, drowsy, eds, ehlers danlos syndrome, exhaustion, extenuating circumstances, fatigue, final project, focus, generalised anxiety disorder, grades, grandmother, grandparent, granny, grief, heds, hypermobile ehlers danlos syndrome, hypermobility, identity, inattentive type, late diagnosis, loss, masters, masters degree, masters degree in songwriting, masters degree year two, masters part time, medication, mental health, mental health break, mental health update, mental illness, migraine, migraines, new album, new music, part time masters student, processing, recovery time, red bull, rest, self worth, side effects, singer, singersongwriter, singersongwriter life, sleep, sleepiness, sleepy, songwriter, songwriting, therapist, therapy, tired, tooth extraction, tooth pain, writing

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope