Finding HopeMass Observation Day 2021
Posted on May 15, 2021
On the 12th of May every year, the Mass Observation Archive asks people to keep a diary for a day in order to capture the everyday lives of people all over the UK. There’s usually a suggested loose theme; for example, last year, it was suggested that diary entries not focus on exactly but highlight the pandemic and the effect it was having on our lives. This year, the website suggests that “diaries can record 12th May and reflect back over the past year and look forward to the future and life beyond this year.”
I’m a long time diary writer and have been for years so this project was an exciting discovery. I love the idea of so many people’s experiences stored in one place, the idea of collecting as many versions of one day as possible and trying to build the fullest picture of it. So, for the last couple of years, I’ve looked forward to this day, to writing about it, and to sending it off to the Mass Observation Archive. But I also like posting the day here too.
Some important things to know before reading this: I’m autistic and struggle with Treatment Resistant Depression, Generalised Anxiety Disorder, Obsessive Compulsive Disorder, and Borderline Personality Disorder. I was also recently diagnosed with Hypermobile Ehlers-Danlos Syndrome and Attention Deficit Hyperactivity Disorder (Inattentive Type). All of the symptoms get worse under stress; I’m beginning the homestretch of a Masters Degree in Songwriting and while things with the pandemic seem to be improving (the vaccines, the lockdown slowly lifting, etc), it’s hard to let go of so much ingrained fear and hard to know what the ‘right’ level of fear is. So I guess I’m still struggling with the pandemic, although not in the same way as I was struggling with it last year.
What I thought was going to be a relatively chilled out day spent at my laptop, working on stuff for the final Masters module, the Major Repertoire Project, and catching up on all the work I’d planned to do when I got hit with last week’s killer migraine (it lasted six days and involved paramedics being called to the house). But then, last night, I got an email from uni with the upcoming events and realised that the upcoming Song Sharing Session was today, this afternoon. I haven’t been back to uni since the first lockdown, working from home as an online student, so going back – and going into London – felt like a real big deal. But instead of spending hours ruminating on whether or not I should go, letting my anxiety make the decision, I decided that I wanted to go and so me and my Mum started making plans to make it possible. As things go, it felt as safe as anything can be right now: Mum had said she’d drive me there and back, I’ve had my first vaccine, and no one can enter the building unless they’ve tested negative. Mum ran out to get to COVID home tests and after that, all there was left to do was play through my songs to be as ready as possible.
Maybe because my subconscious was processing the idea of going to London, I didn’t sleep well and struggled up, later than I’d planned. And it was kind of chaos from that point on. I had a problem with my computer that sent me into a panic. I managed to sort it out but the anxiety of the situation wasn’t a great way to start the day. And then, before I could even make it to the shower, one of the cats got stuck in the attic and since we were going to be out for most of the day, we had to get her down before we left in case she couldn’t figure out how to do it herself or one of the others decided to climb up too. Even with treats, it took ages to get her down and then settle all five of them.
I did my Lateral Flow Home Test and had a shower, got dressed, and did my hair and make up while it did it’s testing thing. It came back negative, which was great obviously, but trying to register the result and get the confirmation email that would allow me to get into the uni building was overly complicated and much more time-consuming than described – particularly frustrating as I was trying to get out of the door. I’d wanted it to be as up to date as possible and suddenly it was making me really late. So that was just more stress on top of an already stressful morning.
The rush out of the house and the stress of going back to uni for the first time in so long made me nauseous and dizzy and I spent most of the drive breathing deeply and trying to keep my mind from spinning. My Mum had very kindly said she’d drive me to London since I’m still feeling very wary of public transport, especially the underground, so we talked and listened to music and by the time we pulled up outside the uni building, I was more excited than nervous. It felt so strange to be back, like it had only been a couple of days and a century at the same time since I’d last been there.
I’d expected to feel nervous there – I mean, I’ve been nervous everywhere but my house since the pandemic began – but given the strict safety procedures, I felt really safe and relaxed. It took me by complete surprise but it was so nice and being back there kind of felt like coming home; I have been studying there, on and off, for the last six years after all.
Slowly, the ten of us that had turned up to the session congregated and we were all just so excited, like a bunch of seven year olds at a birthday party. Some of us had never actually met each other in real life – as a fully online student, there was only one person I’d met before we went into lockdown – so it was very exciting to finally meet these people who I’d only ever seen on a screen. Having said that, it was somewhat weird to be saying, “It’s so nice to meet you!” to people I’ve had hours of classes, discussions, and laughs with.
We were all hanging out and chatting, catching up since most of us haven’t seen each other – even on a screen – for several weeks, when Sophie, our tutor and course leader, showed up to run the session. She was as excited to see us as we were to see her. It was so lovely to see her: I’ve known her for almost seven years and she’s been so supportive, both of my songwriting and of me as a person. So, yeah, I was super pleased to see her in real life again.
We got ourselves in a circle and had a bit more of an official catch up before taking turns playing songs and talking about our projects. I hadn’t heard music from most of the people there so that was really cool and inspiring and everyone’s working on such fascinating projects. I kept finding myself volunteering as a potential cowriter over and over, despite the voice in my head saying, “You already have so much to do!” The projects were just so fascinating.
I got to play two songs: the first was the song that really got my project rolling, a song I wrote a little over a year ago to a family friend who also has Autism; the second is a new song about my experience of OCD. The newer one was scary to perform but it seemed to go down well, which was reassuring. The whole session was just so fun and so good for me, for my mental health. I wanted to stay and hang out with everyone, even after the session was over, but since my Mum was driving me home, it wasn’t fair to ask her to wait any longer. So I said my goodbyes, made plans to meet up again, picked up my uni’s own facemasks (I mean, that’s the weirdest school merch I’m ever gonna get), and headed out to find my Mum.
On the drive home, I slowly came down from my adrenaline high until I was utterly exhausted. I did manage to catch up with my Mum and then two of my parents on the phone – they wanted to know how my first time back had gone – before I completely ran out of energy. It felt like a very long journey but we finally drove back into Brighton.
We stopped quickly to see one of my parents and her finally finished garden office. It was really nice to see her – we’ve all been incredibly busy (or dealing with an epic migraine) – and her new office looked gorgeous. It could be pretty cool to have a studio like that one day…
Mum and I finally got home, fed the hoard of hungry cats (who seemed to think they’d been abandoned), and crashed in the living room, continuing our rewatch of Grey’s Anatomy. I tried to work on a post for the blog but I was so tired and so drained that I barely managed a handful of sentences in the few hours I sat there. Eventually I just gave up and went to bed but it was still a struggle to sleep, just as it normally is; my thoughts started racing and I just couldn’t grab ahold of any of them long enough to settle. I don’t know how long it took to get to sleep but it was definitely after 1am, possibly even later.
So much has changed in the last three hundred and sixty five days. I look back at my last Mass Observation Day diary entry and my life is so different, in so many different ways. Last year, I was so scared, so terrified that I felt like I couldn’t breathe. I couldn’t do anything because I was so scared. All I could do was sleep and bury myself in the familiar worlds of Fanfiction. I’m still scared but I’m also happy, at least some of the time. I have bad days but I also have good days, even really good days, and just that is a huge deal. I’m writing a lot, researching for my project, and facing my fears around the pandemic. Sometimes I can’t believe that the last fifteen months have happened but I only have to look at myself to see that they did: I’ve been through a lot and changed so much. And that’s just looking inwards. Looking outwards – at people I know, the communities I’m a part of, the world at large – is far too overwhelming to sum up right now in one day’s diary entry.
If you’ve been keeping a diary or still want to jot down some thoughts about the 12th, I would really encourage you to do so and send it to the archive. The page is here, in case you’d like to submit or learn more about this and their other projects.
Mental Health Awareness Week 2021
Posted on May 10, 2021
So May is here and Mental Health Awareness Week has rolled around again. This year the theme is nature, which I was initially unsure about but after reading The Mental Health Foundation’s website, it made a lot more sense to me, even if I wouldn’t have necessarily made the same choice…
- “During long months of the pandemic, millions of us turned to nature. Our research on the mental health impacts of the pandemic showed going for walks outside was one of our top coping strategies and 45% of us reported being in green spaces had been vital for our mental health. Websites which showed footage from webcams of wildlife saw hits increase by over 2000%. Wider studies also found that during lockdowns, people not only spent more time in nature but were noticing it more. It was as if we were re-discovering at our most fragile point our fundamental human need to connect with nature.”
- “Nature is so central to our psychological and emotional health, that it’s almost impossible to realise good mental health for all without a greater connection to the natural world… During Mental Health Awareness Week 2021, we will pull together the evidence that demonstrates the powerful benefits of nature for our mental health. We will look at nature’s unique ability to not only bring consolation in times of stress, but also increase our creativity, empathy and a sense of wonder. It turns out that it is not just being in nature but how we open ourselves up and interact with nature that counts. We will show that even small contacts with nature can reduce feelings of social isolation and be effective in protecting our mental health, and preventing distress.”
- “We have two clear aims. Firstly, to inspire more people to connect with nature in new ways, noticing the impact that this connection can have for their mental health. Secondly, to convince decision makers at all levels that access to and quality of nature is a mental health and social justice issue as well as an environmental one.”
- “2021 is going be a huge year for nature: a new Environment Bill will go through the UK Parliament which will shape the natural world for generations to come; the UK will host the G7 nations where creating a greener future will be a key priority and a historic international UN Climate Change Conference of the Parties (COP26) will be hosted in Glasgow in November. There could not be a more important time to understand the links between nature and mental health.”
So, with all of that in mind, I thought I’d make a list of all the nature-related things that make me happy. The list started out pretty short but the more I thought about it, the more things came to mind. I could’ve kept going but I decided to stop before the post got out of control. We all know me and lists…
1. THUNDERSTORMS / RAIN
I love thunderstorms. I mean, I freaking love them. I love the thunder; I love the lightning; I love the pouring rain; I love how the air feels. I read that thunderstorms release negative ions into the atmosphere and that’s what makes the air feel electric and invigorating after a storm (x); I love that feeling. There’s something so incredible and powerful and emotional about thunderstorms; I don’t really know how to explain that response but that’s how they feel. They make me feel really alive in a way that nothing else does.
“There was a crash of thunder, the sky shattering right above our heads.” – Abby Geni
2. THE CATS PLAYING IN THE GARDEN
As soon as it starts getting warmer and drier, my cats are out in the garden all day every day. We basically only see them for meals. Most of the time they lounge around in the grass, soaking up the sun, or in shady corners, when it gets too hot, but they also play, which is just the most adorable thing in the world. They dig, they chase butterflies and bees, they pounce on unseen things, they bat at the wavy grasses, they chase each other, rolling around and leaping in the air… It’s so cute. It’s like nothing else exists, something that’s been a source of calm for me over the last eighteen months.
“Concrete is heavy; iron is hard — but the grass will prevail.” – Edward Abbey
3. THE BEACHES IN NORFOLK
I mean, I’ll take any beach going because I love beaches but the beaches in Norfolk have always been extra special for me. I can’t really explain it. Those beaches are one of the few things that make me feel like I’m in sync with the world when usually I feel like I’m not, like I’m on a different frequency to everyone else. But the sand, the sea, the sky, the air… it makes me feel more real. If that makes any sense at all.
“Nature’s law is stronger than any little law you have made for yourself.” – Frank A. De Puy
4. MY YELLOW ROSES / MAGNOLIA TREES
When we moved into the ‘new’ house, there was a yellow rose bush and every year, it blooms magnificently. It’s utterly stunning with these huge, liquid gold roses and I fell in love with it from the first flower. I look forward to them every year and I love watching more and more buds open and practically shine in the sun. The petals are big and soft and gorgeous too. The plant itself is taller than me now and even as the family member least inclined to gardening, I’d do anything to keep it alive and healthy.
I’ve loved Magnolia trees since I was a child: my Granny had one in her big, beautiful garden and me and my brother used to climb into it (it wasn’t very big so we’d sort of climb inside it rather than climb up it), hidden by the flowers, and play in our massive imaginary worlds. I’ve always had a fondness for them ever since. Then there was a huge one outside my therapist’s office and it always used to make me feel better when therapy felt overwhelming and just too hard. We have one in our garden now although it’s still a baby and has a way to go before it’s a ‘real’ tree.
“Flowers rewrite soil, water, and sunshine into petal’d poetry.” – Terri Guillemets
5. SITTING IN THE SUN ON THE DECK
I don’t often sit out on the deck – I’m not very good at just relaxing and not doing anything – but when I do, I love the feeling of the breeze in my hair and the sun on my skin. The word kind of makes me cringe but it feels so nourishing. I have to be a bit careful though: for some reason, my skin seems only able to take a certain amount of direct sunlight before reacting, getting red and overheated (so far no one has figured out what causes it). But in small doses, I love it and I can almost feel an inner meter going up, like a health meter in a video game.
“In nature, nothing is perfect and everything is perfect.” – Alice Walker
6. SWIMMING
While I’m not swimming in a ‘natural environment’ (especially with the pandemic, the water has enough chemicals in it to make your eyes burn), water itself is a natural environment so I’m going to include it anyway. Due to my chronic pain, swimming is currently the only exercise I can do – at the very least until my joints, strength, and stamina are better – and fortunately, I love swimming. As you can probably tell from the photos below. It’s always such a relief to get in the water and be essentially weightless, and I love being able to exercise and work hard without pain (even though I have been known to overdo it and suffer the consequences the next day). The whole experience makes me so joyously happy.
“I believe that there is a subtle magnetism in Nature, which, if we unconsciously yield to it, will direct us aright.” – Henry David Thoreau
7. SUNRISES / SUNSETS
I’ve always loved sunrises and sunsets. I don’t think there’s an incarnation of the sky I don’t find beautiful but, being a person that feels so emotionally connected to colours (especially the ones we see in the sky), sunrise and sunset are always particularly special to me. And the more striking they are, the more I love them. Like this one below: it was an ordinary day made extraordinary by the sunset. The really stunning ones always feel like a rare gift. Photos never really do them justice but I often find myself coming back to this photo because I remember just how beautiful it was and how it completely took my breath away.
“Clouds blaze brilliant colours in a sky on fire.” – Terri Guillemets
8. STARS / THE NIGHT SKY
I’ve been going out to watch meteor showers (especially the Perseid meteor shower in August) for the last several years and I love it. I love staring up, barely breathing as you wait for a meteor. Then suddenly one will streak across the sky; sometimes they’re so light that they’re like a white pencil barely touching black paper and sometimes they’re so bright, like a knife cutting through the roof of the tent and giving you a split second glimpse of blinding sun. I’ve only seen a few of those but they’re breath taking every single time. The whole experience is just magical. And just looking at the sky, I love how the longer you look at the stars, the more you see, like you’re seeing further and further into space. It’s amazing (although a little scary if you think about it too hard).
“The stars are the street lights of eternity.” – Unknown
9. NATURE DOCUMENTARIES
I know it’s not exactly ‘engaging in nature’ but I think it’s still staying connected to nature, just in an indirect way. It’s not like any of us can just jump on a flight and see these animals in real life on a whim so a documentary is the next best thing. Me and my brother used to watch all of the David Attenborough documentaries with my grandparents when we were little so they’re a huge part of my childhood; they’re probably a big part of why I’ve always loved animals so much. I especially loved the ones with big cats, although I never liked the parts where they killed other animals (I know it’s essential for their survival but I still don’t like watching it happen).
“Nature is new every morning, but its cycles are ancient, independent of all our anxieties, oblivious to our plans.” – Barbara Cawthorne Crafton
10. ICELAND
I’m not sure that this is something that really fits on this list because it’s not like a place you can just visit whenever you feel like it but if we’re talking about nature and the power of nature, then I have to mention my trip to Iceland. Seeing the waterfalls, the mountains, the glaciers, the Northern Lights… I’ve never felt as connected to nature as I did there. Even the air felt different as I breathed in and out. It was one of the most amazing places I’ve ever visited and I really hope that one day I’ll get to go back, one day when I’m stronger and fitter and can manage the more difficult walks and therefore see even more.
“Study nature, love nature, stay close to nature. It will never fail you.” – Frank Lloyd Wright
So here are ten of my most important nature-related things. If you made a list, what would go on yours?
The Mental Health Foundation has a lot of resources on their website for this week but they’re also issuing a challenge…
“During Mental Health Awareness Week, we are asking you to do three things:
- Experience nature: Take time to recognise and grow your connection with nature during the week. Take a moment to notice and celebrate nature in your daily life. You might be surprised by what you notice!
- Share nature: Take a photo, video or sound recording and share the connections you’ve made during the week, to inspire others. Join the discussion on how you’re connecting with nature by using the hashtags #ConnectWithNature #MentalHealthAwarenessWeek
- Talk about nature: Use our tips, school packs, research and policy guides to discuss in your family, school, workplace and community how you can help encourage people to find new ways to connect with nature in your local environment.”
EDIT: This post is in response to The Mental Health Foundation’s Mental Health Awareness Week theme of ‘nature,’ which is important when it comes to managing your general mental health, but I do think it’s important that we all acknowledge and are aware that managing your mental health is not the same as living and coping with a mental illness. I think, too often, they’re lumped together as the same thing when they’re very different. Maybe we need a different week or separate days for different conditions because whilst connected, managing your mental health and managing a mental illness are not the same and can require vastly different approaches.
Mental Health Update (May 2021)
Posted on May 9, 2021
Trigger Warning: This post contains mentions of self harm, but it’s simply a statement that it happened and there are no descriptions, graphic or otherwise. If this could upset or trigger you, please don’t read any further. Please always put your mental health and emotional state first.
So we’ve reached the last semester of the Master’s, with the big, final project that we’ve ultimately been working towards throughout this whole course. It’s a big deal, exciting and scary because – obviously – I want to do well and create a project that I’m proud of. But I am worried about my health, mental and physical, getting in the way and making it a difficult to both work hard and enjoy the process. So I thought, with all of this in mind, I’d write down where my head’s at and how I’m doing – I guess, so that I have a record of how I’m feeling right now, at the very beginning of the project.
At the moment, my biggest difficulties seem to be chronic fatigue and pain that are a result of my recently diagnosed Hypermobile Ehlers-Danlos Syndrome. I’m tired and sleepy all the time; some days, I can barely keep my eyes open during the day. While the physical tiredness is likely due to the hEDS, at least in part, we suspect the sleepiness is due to my antidepressant, Phenelzine. I want to switch to something else as soon as I can but mid-Master’s is not exactly a great time, given how long it generally takes for antidepressants to take effect and my track record of reacting badly to all but Phenelzine (so far, at least). So I’m having to just put up with that, with the dwindling help of Red Bull.
The pain has been really bad, particularly in my legs, arms, and back. For months, I’ve been taking painkillers daily but I feel like, over the last few weeks or so, it’s started to get slightly better. I’ve been doing the Occupational Therapy exercises for my wrists and hands and I’ve been able to start swimming again (yay!), both of which do cause pain of their own but it’s a very different pain and actually wears off pretty quickly while the hEDS pain tends to just get worse and worse unless I take painkillers. I’m getting better at figuring out where my limits are and stopping before I overdo it – most of the time. It’s hard but I do feel like I’m seeing progress.
My depression has been okay recently, much less of a problem than it has been in the past (she says while still on the ‘end’ of one, but I’ll get to that in a minute). I had one awful episode at the beginning of April, which did result in self harming. And then I had another episode last week, which I’m still feeling even if I’m not drowning in it anymore (it was kind of forced to the back burner by the worst migraine I’ve ever had). Both episodes were triggered by really upsetting news; they didn’t come out of nowhere like they sometimes do.
My anxiety has been a lot to deal with, but then there have been a lot of things to be anxious about: keeping up during the semester, the assessment and doing well in the module, all things COVID related (I’ve developed this weird house-separation-anxiety-like-thing whenever I’m out of the house too long, which is horrible), all of my health stuff, preparing for the new module and final project, trying to balance everything in my life, and so on. It’s exhausting and has a knock on effect; the rest of my mental health issues are all affected by my anxiety.
The two areas that are most tightly linked with my anxiety, I think, are my Trichotillomania and my OCD. My Trich hasn’t been too bad of late – not great but not unmanageable. But my OCD has been much more of a struggle lately than it sometimes is. I wrote about it in general here (so if you need a refresher on what my OCD is like, this is probably a useful read) but with everything going on recently, it seems to have kicked up a gear. I just can’t seem to do everything and then write all of it down; there aren’t enough hours in the day, which just leads me to getting more and more behind with everything, which just makes it worse and worse. Again, it’s just exhausting. I feel suffocated by it but I don’t know what to do about it; it feels like the walls are closing in around me and there’s nothing I can do to stop them.
As for autistic meltdowns, I haven’t had many of late. I think that’s because, despite my anxiety, I’ve had a really good few months. As I said in my previous post, this last university module and all the writing that came part and parcel with it was really good for me and I felt really good in myself so, in general, things didn’t build up to the point of meltdown. There were a number of occasions where something took me by surprise (for example, an unexpectedly triggering advert – I hadn’t even known that it was something that would trigger me so that was unfortunate for everyone) and I had a meltdown but as things go, it’s been better than it has been.
I’m not entirely sure how my ADHD manifests yet, having only received the diagnosis recently. If only it were as simple as getting the diagnosis and everything making sense… So I still have work to do in that regard. But I’m fairly certain – as certain as I can be at this point – that my issues concentrating and the feeling of my brain working against me are part of this picture. For the moment though, I’m in the dark about all of this. I’m in an impossible position medication-wise (I’m going to write about this in more detail at some point – it’s just that I’m still processing it all) so I’m stuck and unsure how to manage these problems. It’s frustrating and tiring and I wish there was an easy answer. Or even an easier one than I’m currently faced with. But there doesn’t seem to be. So I’m not sure where to go from here.
And the newest problem – because I really needed more problems… – are these migraines that I’ve been having over the last month. In the past, I’d have a migraine every few months or so but recently they’ve been different. They’ve been completely debilitating, painful to the point that I’ve ended up in A&E and had to have an ambulance called to the house because they’ve been so bad. They’ve also gone on for days when previously I could sleep them off and they’d be gone in twenty four hours. I’ve yet to find pain relief that does a decent job and I find that very scary. Calling 111 and them sending an ambulance because I was in so much pain but so light sensitive that even a darkened room felt too bright is a big deal and I’m scared of what’s next, of how it could get worse. I don’t know what’s causing them and no one else seems to either.
And finally… I’ve been the most consistent with therapy I’ve been since the pandemic began, even if I still find it hard and less productive when doing it over Zoom. But it’s looking like we’ll be back to face-to-face soon, which is exciting if scary – as I said, I’m finding it quite stressful to be out of my house. But hopefully, therapy will go back to being as helpful as it was pre-COVID, when it was face-to-face all the time. I don’t know exactly why it doesn’t feel the same over Zoom – maybe I find it harder to connect and talk about the hard stuff when I’m not in the same room as my therapist – but it just doesn’t, so I’m looking forward to getting back to the room.
So that’s it, I guess. This is my mental health (and I suppose, physical health update) before I start the final module of my Master’s, The Major Repertoire Project. Everything feels very messy and complicated right now, which isn’t exactly reassuring. I want to do well in the module, of course, but I also want to really enjoy it and really get the best out of it. The module doesn’t officially start until tomorrow but I’ve already started working on my project. I’m so excited. I just hope I can manage it with all of this other stuff going on.
Finding Hope 