Posted on November 3, 2018
One of the most common pieces of advice with anything mental health or mental illness related is to exercise. And while that’s not bad advice, it’s not necessarily good advice in the practical sense. It’s about as helpful as saying, ‘eat healthy’ or ‘get enough sleep.’ It’s something that has to be tailored to you. Specific types of exercise will help where others may make you feel worse. So you need to find the one for you.
For example, I hate running. I would love to love it but I hate it. I find it at best uncomfortable and at worst painful: it’s like my bones are rattling inside my body. I’ve heard this from others with Autism but I don’t know if it’s specific to that or whether it’s a coincidence. But anyway, running is not the thing for me. Swimming however…
I have always loved to swim. I love the feeling of moving through water and when I was a kid, I loved the silence that comes from being underwater. I would’ve given anything to be able to breathe underwater so that I could stay in that silence. That’s pretty ironic given that I would grow up to develop anxiety that is triggered by a lack of noise and distraction.
I got back into swimming a couple of months ago. At the beginning, my anxiety was so bad that I couldn’t even swim: the lack of stimulation for my brain meant that I just spiralled and my anxiety became completely overwhelming. So me and my Mum would walk and talk, planning the day or talking through whatever thing was on my mind that morning. Eventually my anxiety mutated into a different state and I was able to swim. It’s had such an impact on my life so I really wanted to write about it.
Swimming pools have the potential to be very difficult for me, from a sensory perspective. When it’s busy, the sound bounces around and around, making it one big fog of noise, which makes me very anxious. And the fact that I’m so short sighted I can barely see without my glasses makes that anxiety even worse: I can’t see anything and the sound feels like it’s coming from everywhere and that causes me paralyzing anxiety. It’s how I imagine it would feel to be on a carousel but if the carousel was going at ten times the normal speed. It’s scary. The best times to get in a quiet swim seem to be first thing in the morning and last thing at night. I’ve been sticking to the morning; it makes for a more productive day for me.
Knowing that this is the time that allows for the best swimming experience, I’ve been getting up early and getting to the gym for about seven forty five (sometimes I even get the pool to myself, which is glorious). And knowing that I have to get up that early, I’m going to bed at a sensible time, rather than accidentally staying up until three in the morning. So a routine sort of formed by accident and that has been so good for me. My relationship with sleep has never been so good.
Exercise has always been difficult for me given my historic struggle with energy but also because ‘weight bearing’ exercise often feels very jarring. As I’ve already said, it makes me feel like my bones are rattling inside my body and each impact makes it worse. Sometimes it’s not that bad and I can be distracted by whatever I’m doing but sometimes it can actually be painful. So swimming is perfect. It takes that whole aspect out of the equation and makes exercise actually enjoyable. It reminds me of my arthritic dog: he goes for hydrotherapy and as soon as he’s in the water, chasing tennis balls, he’s like a puppy again. He loves it and I can totally relate.
The best thing about swimming is that it’s something that makes sense and that’s something I really need at the moment. The world feels hard and unfair and this is something that I can control. The more I swim, the stronger I get. I can see the results. I’ve been swimming most days for the last three months and I see my own progress: I’m swimming further; I’m swimming faster; I can see my body changing. It makes sense. That grounds me.
The one thing I do have to be careful of is my tendency to obsess: about the number of laps, getting to the next ten, getting to a hundred… Once it’s in my head that I ‘have’ to get to a particular number, there’s not much I can do to change my own mind and it causes me serious anxiety if I don’t reach the number I’ve ‘decided on.’ So I have to be aware of that. Sometimes I can avoid it by distracting myself or by deciding on exactly how long I’m going to spend in the pool but sometimes I just have to manage it. Sometimes that’s all you can do.
But overall, rediscovering swimming has been one of the major highlights of this year. It’s helped my physical health and my mental health, as well as my day to day life. So I feel very grateful to have found it again.
And since I can’t take my phone into the pool with me, here’s a photo of my dog, enjoying his fortnightly swim.

Posted on October 27, 2018
I love words. I LOVE words. And that’s so viciously ironic for someone living with Autism and mental health problems because they are so difficult to describe, to talk about, to truly put into words. I’ve talked about how much I write and how much I document (this post here) and every now and then I think, “Oh my god, I’ve got it. That’s how it feels.” And then I go to therapy or I talk to a friend or teacher and I go to describe how I’m feeling and I’m just left scrambling. Because these things are so hard to put into words.
Let’s talk about depression specifically. This one seems to have a lot of metaphors attached to it:
There are more, of course: everyone has their own descriptions (and they can change depending on the particular state of the depression). On which note, I thought I’d throw in a few of my own:
I posted this on Instagram a while ago:

“Ever since I saw @littlepineneedle’s post and the hashtag #seemyinvisible, I’ve been thinking about it and how I could visually represent the things I struggle with. But in the end, I decided just to look at how I’ve been feeling lately. My mental health is a constant balancing act but lately, my depression has been overwhelming. It feels like there’s a black hole in my chest that’s trying to suck everything in and it’s all I can do to stand up straight. Nobody can see it and that only feeds it. It’s been really inspiring to see so many people sharing their stories over the last few days. This is one of the reasons why #mentalhealthawareness is so important: it helps us to feel less alone.” (x)
I’m not entirely sure what I’m trying to do with this blog post. I guess, I’m just trying to put this thing into words.
Posted on October 13, 2018
Going to therapy hasn’t always been easy. I feel so, so lucky to have such an amazing therapist now but I had a lot of difficult experiences before I started seeing her. So I thought I’d share some of those experiences. Maybe they’ll be helpful.
After many, many appointments with my GP, I was finally referred to the local NHS Wellbeing service but the session didn’t go well. At this point in time, my anxiety was so bad that I couldn’t talk to people I didn’t know. I just couldn’t. Answers to questions would form in my mind but I couldn’t force them up my throat. So I sat there, in tears, while the doctor tried to get my Mum out of the room and told me he ‘wouldn’t’ help me if I didn’t talk. I don’t want to rant but I WAS STRUGGLING WITH A MENTAL HEALTH PROBLEM. I wanted desperately to be able to talk about it but I couldn’t. I don’t remember much about that appointment but I do remember standing in the street afterwards, shaking and crying and screaming and swearing. I couldn’t understand why no one was helping me when there was so clearly something wrong.
My second attempt at therapy was a bit better. I started Cognitive Behavioural Therapy (CBT) with a really lovely therapist. She was very patient and very open to working around the anxiety that kept me from talking. She was also happy to have my Mum in the room: it helped my anxiety and meant she could provide information. Slowly I started to trust her and started answering questions myself. But it was exhausting, bone achingly exhausting. As hard as we worked, I didn’t feel like we were making any progress and it was too hard to go through that to make no progress. I really liked her and I could tell that she was a really good therapist but the approach wasn’t right for me. I found the format too rigid. In simple terms, CBT is about breaking down your problems and then trying to create change in those areas. I felt, and still do feel, that my problems are too murky for a short stint of CBT. I know now that many of my problems originate from my Autism and the fact that it went undiagnosed for so long but even with that knowledge, the difficult things still feel overwhelmingly huge. I can see CBT being useful for a specific anxiety. For example, we tried to work on my anxiety around making phone calls. But I think the reason it didn’t work is that it wasn’t an isolated problem; it was a piece in a much bigger puzzle. I don’t think you can solve that sort of problem if you don’t know what’s causing it. Plus, being rational about what you’re struggling with in the controlled setting of therapy and being rational when it’s overwhelming you are very different things. CBT sort of assumes that you can still apply the skills you’ve learnt in therapy regardless of how you’re feeling, which can feel impossible, especially if you live with really powerful emotions. But maybe that’s just my perception.
The next thing we tried was Eye Movement Desensitization Reprocessing (EMDR), recommended by a family member. In the few months between finishing CBT and starting EMDR, my anxiety had sky rocketed so starting a new therapy was really hard. It was so bad that I actually never spoke to the guy I worked with. But despite that, and my difficulty with eye contact, communicating with him was easier than it had been with previous therapists. He was fantastic. He accepted my difficulty speaking and suggested writing on a whiteboard. I considered that and it felt possible so that’s what we did. He asked me questions and I replied, scribbling as fast as I could. It worked. And to take the pressure off, we would spend part of the session on the floor, playing dominoes while he asked me questions. I felt absolutely safe there. It was incredibly strengthening to have someone accept my anxieties as they were, to have someone recognise that I wasn’t just being difficult, that I was genuinely struggling with something really hard. And although it didn’t turn out to be the right thing for me, the sessions are still really important to me. For several months, we worked hard. We tried. I felt supported. And even though I didn’t ever speak, I did once sing for him and he almost cried. That was a pretty big moment.
After that, I didn’t go to therapy for a while. There was a lot of life stuff going on and there just wasn’t the time to find someone new. But I did start seeing a new psychiatrist. He prescribed me Phenelzine (which I’ve previously written about) and we spent a lot of time trying to figure out what was causing my problems. I guess it was a type of therapy. We went through my history and analysed my emotions, trying to find a diagnosis. The medication helped and we managed the side effects but it still took a long time. When my university said that they couldn’t help unless I had a diagnosis, I pushed for this and in January 2015, I could finally put names to the issues I was struggling with (apart from the Autism diagnosis which came several months later). My psychiatrist recommended Dialectical Behaviour Therapy (DBT) so we started looking for another therapist.
My current therapist is the first one we met. I just knew she was right; me and Mum walked out, looked at each other, and said, ‘she’s the one.’ We did meet another one but my mind was made up. And we were right. She’s amazing. I’ve been seeing her for three years now and I’m so grateful to have that safe place. DBT suits me much better. It’s based on CBT but, as the Mind website says, it’s “been adapted to help people who experience emotions very intensely.” They both help with changing unhelpful thoughts and behaviours, but DBT also helps you to accept yourself. It’s about a balance between acceptance and change. That really makes sense to me and always has.
In the beginning, I needed my Mum in the room with me and she would answer all the questions. We’d always talked about everything so she knew pretty much all the answers. But over time, I felt more comfortable there. I needed Mum there less and less and eventually I started doing the whole session by myself. Three years later and it’s really, really important to me. It’s a huge part of who I am. It’s not easy; it’s really hard work and I often come home exhausted, sometimes falling asleep on the sofa afterwards. But it’s really satisfying to talk things through, to make connections, to see change happen. I’ve talked about things that I never, ever thought I would talk about and I’ve worked through things I never thought I’d let go of. That’s so huge that I can’t really comprehend it.
So that’s my therapy journey. For me, it’s DBT that works but I’ve seen the others help people too. You need to be ready, you need to find the right approach, and you need to find the right person. It’s not easy but it is worth it.

Category: animals, anxiety, bpd, depression, diagnosis, emotions, medication, mental health, ocd, therapy, treatment, uncategorized Tagged: actuallyautistic, asd, autism, autism awareness, autism spectrum disorder, autistic, autistic adult, cbt, cognitive behavioural therapy, dbt, dialectical behaviour therapy, emdr, experience, eye movement desensitisation reprocessing, mental health awareness, mental health treatment, mental illness, mental wellness, nhs, phenelzine, therapist, therapy experience, therapy journey

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope