Autism Dogs – Family Training & Public Access (First Attempt)

Not long after my sleepover with Daisy, I was back up at the Autism Dogs farm for what was supposed to be, I think, four days to do the public access and family training. This would be the last part of Daisy’s training before she moved in with me permanently. But, unfortunately, my anxiety and chronic pain and fatigue completely derailed the plan…


My Mum and I drove up to Stoke-on-Trent the night before our first day of public access and family training: four days that would focus on caring for Daisy, implementing the advanced tasks, and taking her out to public places to give both of us the opportunity to work together in new environments. But before we even got there, I was so stressed and so overwhelmed; I was incredibly nervous about how much energy it was going to take and about how much pain I was already in – before we’d even gotten started – plus a whole lot of stuff that was going on at the same time. I was just completely overwhelmed and by the time we made it to the hotel, I was basically in one really long meltdown between the anxiety, the pain, and the exhaustion. The stress of not knowing exactly what I was going to be doing over the next few days, all of the unknowns… I was was practically non-functional.

I physically could not leave the hotel and go to the farm the next day so my Mum went over there without me and had a really long discussion with Caroline, the CEO of Autism Dogs. Caroline has been amazing and so, so lovely throughout this process and I’m so grateful for how much contact we’ve had with her; it has been so helpful to have that relationship, especially when the trainers are often different session-to-session because of who’s been available. I think she’s fantastic and I am so grateful for everything she has done for me in this process. She and my Mum came up with a couple of different options for moving forward and then Mum came back to the hotel and we spent the rest of the day slowly talking them through.

The next morning, Caroline came to the hotel and we discussed the various options. One of the options was to start over with a different dog and I couldn’t even contemplate that; it would’ve broken my heart. The path we ended up deciding on was to have Daisy delivered relatively quickly after we went home: she would move in with us and get settled, more than a pet but not yet a fully qualified assistance dog. We would continue to bond and practice the skills we’d been working on and get more comfortable and confident together. Then, a month or so later, one of the trainers would come down and we would do the family training at home, where I’m most comfortable, and her public access training in places that I would actually be going to; we would also be able to go over the advanced tasks at home, where I feel safest. This was a really big modification for them to make to the training process and I am so grateful that, as an organisation, they were willing to do it so that Daisy and I could complete the training and I could (hopefully) go on to become more independent with Daisy’s help. If they’d been unwilling to accommodate me this way, I don’t know how or if I would’ve been able to finish working with Daisy.

Daisy came over for a visit and we had a lovely cuddle, just lying on the bed in the hotel room. She was really excited to see me but then, sensing my mood and my exhaustion, she draped herself over me and we had a lovely little bonding session before she went back to the farm and Mum and I drove home. The pain in my back was excruciating and I ended up lying – as much as a person can – on the back seat of the car. And because I was so exhausted, I was asleep very quickly; I didn’t wake up until we got home over three hours later.


Those few days were so stressful and so distressing but I’m so grateful to them as an organisation, and to Caroline, that they were able to think outside the box and do what’s best for their clients and the dogs. It’s never about turnover: it’s about making sure that everybody is accommodated, everyone’s needs are taken into account, and that the experience is the best it can be for everyone – as far as is possible and practical. I really can’t fully express how grateful I am. The final steps of the process – the family training and public access training and then actually working with Daisy full time – had been feeling completely overwhelming and I didn’t know how I was going to manage it all; I’d thought I’d feel a lot more confident by that point but my anxiety was still super high and my exhaustion and chronic pain were still really bad when they’d been predicted to be a lot better. But at Autism Dogs, they see me as a person and not a problem; they see the bond that I have with Daisy and they want to do whatever possible to make this possible. So, yes, I’m incredibly grateful. I’m still anxious about it but I feel a lot more comfortable with this plan than I’d felt going into those few days. So now we’re just waiting for Daisy to arrive.

Autism Dogs – My Advanced Task List

NOTE: Somehow, between the last WordPress update and my brain fog, this post got lost. It falls between the two posts, ‘The Application‘ and ‘It’s A Match,’ and I’ll include links in both of those so that – hopefully – everyone is able to follow the chronology of posts despite my mistake. Sorry!

Here is the next part of my Autism Dogs journey! Having been accepted onto the programme, I went up to visit the Autism Dogs farm in April 2024 to work on my Advanced Task List and meet some of the dogs…


I’d set an alarm (multiple alarms) since it was such an early start but I was actually woken up by Izzy as she snuggled close to my face, wrapping herself around my neck. It was very cute and I enjoyed the extra time cuddling with her before I had to get up. As much as I would’ve liked to have stayed there all morning, I had trains to get and dogs to visit so I eventually (reluctantly) got up and had a shower. Izzy seemed to know that me and Mum were going out because she stuck close to me as I got ready, as I did my make up and packed my bag. She’s just beyond adorable, which just makes it so hard to leave; it was so early and I was already keen to curl up for a nap and her super-snuggly behaviour really wasn’t motivating me to get up and go. But I had one last snuggle and then my Mum and I were out the door.

The journey to the Autism Dogs farm wasn’t the most relaxing of my life: the train to London was fine but then our connection to Stoke-on-Trent was cancelled and our only option was to get the next train, which meant we were going to miss our final train and be late for our session. I’m relatively used to the chaos and generally, it doesn’t faze me, but I do find it draining to repeatedly reshuffle my plans to find the best outcome. It certainly wasn’t what I needed on an already long day. We made it to Stoke-on-Trent and then had to get a cab to the farm instead of catching the final train. It’s only a short ride but they don’t come very often. The cab was painfully expensive but we managed to get there just about on time for our session. I was amazed.

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The biggest part of the session was to build my Advanced Task List. As far as I’m aware, when the dogs are trained, they all go through the same basic skills training, like recall and sit and heel etc. That’s the first part of their training. On my side of things, once I was accepted onto the programme, I filled out lots of forms and had multiple calls with different people and learned about the process before travelling to the Autism Dogs farm to meet with several staff members to discuss the Advanced Task List. This involved looking at my various difficulties and how my assistance dog will hopefully be able to help me, which tasks she will perform in response to which behaviours. Once this list is compiled, the team created a profile of my needs to compare against the dogs in training; obviously, the idea is that the two profiles match, that you and your dog are compatible. For example, my meltdowns are often very loud – I’ll shout and scream and cry – and so I’d need a dog that is confident around loud noise. Everyone is going to have different needs and therefore need a different dog; you want to end up with the dog that’s the best fit for you so that the relationship is as successful as possible because, hopefully, you’re going to be working with this dog every day for a very long time. 

The Advanced Task List is made up of three to eight taught behaviours: less than three and the dog becomes illegible as an assistance dog (it’s not uncommon for a dog to ‘lose’ one of their skills if it’s no longer needed or used) but more than eight and the dog can get confused and struggle with the amount of commands and tasks. So we spent most of the session discussing the things I struggle with. As I’ve already mentioned, I have meltdowns and we discussed those; we also talked about shutdowns and I described them as best I could; we talked about sleep and anxiety and self-injurious behaviours; we talked about the dog being trained to perform deep pressure therapy and so on. We talked about all of this for over an hour, in as much detail as possible; they were really lovely and took things really gently, acutely aware that people can find it really difficult to talk about this stuff. But to be honest, I’ve talked about a lot of my difficulties and even some of my most distressing experiences quite a lot: online, on my blog, to friends and family, in therapy… even at conferences. So, on the whole, talking about it doesn’t really faze me (although there are, as I think there are for everyone, some areas that are really hard to dig into) and I could answer pretty much every question they had for me, with help from my Mum when I needed a prompt or an outside perspective was useful. The more information they had, the easier it would be to build a profile of me and the more accurate it would be. It was almost funny, how carefully they were handling the discussions (with me personally, I mean – I think it’s great that they’re so aware of the potential needs of the autistic person they’re working with), because I just wanted to talk about the dogs. I’m fascinated by the process and the training and so I was just sitting there, like, ‘Okay, can we stop talking about me now? Can we talk about the dogs?’ It’s just so interesting and I could listen to them talk about it for hours. 

Then came the part that was I was really excited about. I got to meet four different dogs (none of which would ultimately be mine), in order to get a sense of what breed and characteristics might be right for me, what size and texture of fur would be most manageable and comfortable. Having had and spent time with multiple breeds of dog throughout might life, I already had a sense of some of these things.

The first dog I met was a Cockapoo called Buddy. He was very sweet and very excitable (they were all ver excitable actually, given that it was dinner time for them) but I knew that I would struggle on a sensory level with the curly fur. He was lovely but his breed wasn’t one I’d be able to handle longterm on a sensory standpoint. The other three were different Labradors. I grew up with a Labrador so I’m very comfortable around them and just adore them. All three were gorgeous, two black – like the one I grew up with – and one yellow with more wiry fur. The first of the two black Labradors was a girl called Shadow who was so excitable and enthusiastic, sliding all over the tiled floor and slamming into me. She licked my face and then ran in circles around me before bounding over to meet Mum and the whole experience was just really adorable. The second black Labrador was a male called Denzel. He was also deeply enthusiastic but not quite as chaotic as Shadow had been; he definitely had more control over his limbs. But he still came charging over to meet me and licked my face over and over before trying to curl up in my lap even though he was much too big. And finally, I met the fourth dog, a wiry, yellow Labrador called Hero. He was a lot more chilled out because he’d already had his dinner – unlike the other three – so, while he trotted in and came straight over to me to check me out, he wasn’t like one of those super balls ricocheting off the walls. Instead, he snuffled my face and then leaned against me, heavier and heavier until I slid over onto the floor; when I pushed myself up, he just stood beside me in prime position so that I could stroke him (and keep stroking him). He was more chill than the previous three but he had had his dinner and I think he was a bit older; their dogs are usually between one and two years old and I think he was on the older side.

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Buddy (top left), Shadow (top right), Denzel (bottom left), and Hero (bottom right).

I was definitely a fan of all three Labradors so, as a breed, they seemed like a clear choice. After Hero left, my Mum and I stayed for a bit longer and talked with the staff about various preferences, like size, and coat, etc. All of these things obviously need to be considered when, all being well, you’re going to be spending a lot of time with this dog, relying them; you need to feel comfortable with them and you definitely need to feel comfortable with them when you’re feeling under stress or overwhelmed or triggered.

So it felt like a very productive session. We wrapped things up and then my Mum and I headed for the station. I was absolutely exhausted by the day and fell asleep on two of the three trains, so deeply that my hands – which I’d apparently been using as a pillow – had gone numb. When we finally got home, Izzy was momentarily unimpressed by all of the different dog smells on our clothes but quickly dismissed them in her absolute delight that we’d returned to her. Even with my train naps, I was so tired that I went to bed early, snuggled up with Izzy.


It was exciting to move to the next step in this process. I was near the top of the list because I had been waiting for quite a long time by that point. But while it is a list of priority, they also weren’t going to just match me with the first dog available because we wouldn’t necessarily be a good match. That’s fine with me. As I said, I would rather wait a bit longer and find the best possible match. It also gives me a bit more time to mentally prepare: it’s a really big change and I really struggle with change. I have some really great support and I know that, once we all adjust and I have this new form of support in my life, things will hopefully get better – less erratic and unstable, emotionally – but anticipating this big change is stressful. So my feelings are very big and messy but I just have to keep reminding myself that lots of people have benefited from this process so far and that helps me to feel less anxious and more excited.

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Autism Dogs – The First Playdate

My first playdate with Daisy – in early July 2024 – came at the end of a very long, busy week and I was absolutely shattered but I wasn’t missing the opportunity to see Daisy again. The playdates are blocks of time where you get to spend time with your dog and start building the relationship that will help them to be the best assistance dog they can be for you. You also learn all of the commands that the dog has already been taught and start practicing them so that you can get comfortable using them and the dog can get used to responding to you. I was both excited and nervous, having officially matched with Daisy.


For this trip, it was Mum and I took Izzy so that Izzy could meet Daisy for the first time. On the previous trip, it had just been my Mum and I: we had been meeting Daisy for the time time, to get to know her a bit and to decide whether or not she would be a good fit for me and for us as a family (spoiler alert: she is!) plus Daisy had had a cough and we’d all agreed that we’d wait until the first official playdate for the two of them to meet.

We started the playdate in the paddock, just me and Mum and Izzy, and then one of the trainers brought Daisy out to meet us. She was so adorable and so excited, practically jumping up and down like she was on a trampoline. The moment the two dogs first saw each other was… A Lot. Izzy was barking. Daisy was barking. I was so glad I had my Loops in because they were very loud. I think Izzy didn’t like another dog encroaching on her person (me) and I think Daisy was just barking because she didn’t understand why Izzy was barking at her when she wasn’t doing anything wrong as far as she could tell. The trainer advised us to let them sort it out between themselves – let them set their boundaries and let them test those boundaries – and let them just get to know each other, something that was easier for them to do in an outside space since it gives them plenty of room to get closer and back off and so on. Based on that first meeting, it’s definitely going to take a while for the two of them to get used to each other.

After some solid time in the paddock, we went inside and I got to have a good cuddle with Daisy, which was lovely. Izzy clearly found that quite hard. While I was reconnecting with Daisy, she did at least have my Mum as a safe space but we also let the two dogs roam around the room and try to figure out how to exist together in a smaller space and figure out how to share me, essentially. That’s certainly going to take some time but we were reassured that it often takes an existing dog and a new assistance dog a while to build a relationship of their own; we just need to give them time and reward them for every positive interaction.

The next part was watching as one of the trainers ran through all of the commands that Daisy has learned so far. It was very cute: she was so eager to please (and to get a treat) that she was very enthusiastic in her responses, sometimes even anticipating them. Then it was my turn to try them all. I have to admit that I found it really hard: there were commands that I’d never used before, different ways to respond depending on how Daisy completed a task, and remembering which hands to use for different commands, etc. And, of course, Daisy knows them all so well that she’d often preempt me, which was very cute but didn’t exactly help me practice the commands. So it was hard, confusing and more than a bit stressful – it was a lot of information at once – but Daisy was so good and so eager to please and there was still plenty of time to go over it all so I wasn’t too worried.

After that, we went outside onto the lane and I was shown how to walk Daisy on a lead as a service dog, compared to how you would walk a pet dog (although she will get that too since there will be many situations, such as daily walking and exercising, where she will walk on a lead like a normal dog). It was a struggle! There are so many components going on at the same time, so many things that you need to remember: I have to check that she’s consistently looking at me and checking in; I have to remember what each of my hands are supposed to be doing; I have to remember when to reward her (while still walking, which I struggled with A LOT). I also have to make sure not to trip over something, or fall over my own feet, or walk into a hedge. Plus Daisy is a dog and she does get distracted so I do have to keep her on task, even if – for the most part – she was incredibly well behaved. Trying to hold onto all of those things at the same time was a real struggle and definitely the most stressful part so far; it is going to take A LOT of practice.

We also spent some more time in the paddock and practiced recall. Since her name had been changed from River to Daisy, the trainers had been spending a lot of time teaching her her new name. Apparently she’d picked up really quickly, which was good to know; the trainer we were working with that day said that they’d all had more trouble with it then Daisy herself had! We also gave Izzy and Daisy another chance to hang out in a big, open space and that didn’t go too badly. There was definitely less barking and they did manage to get closer to each other without Izzy in particular getting freaked out; they were also a little better about the other getting close to me. It was really interesting to watch them try and figure each other out and although it will definitely take a while for them to build a relationship, it felt like they made progress even in that one day. They even had a very brief nose-to-nose before Izzy decided that that was a bit too much too fast and it only resulted in a couple of barks. Izzy will be coming to future playdates so they’ll have more opportunities to get used to each other.

And that was the end of our play date! I think it went as well as it could have. I was quite overwhelmed by how much there is to know and how much there is to remember all at once, but there’s time to get used to that. There’s time to learn. So I’m not worried, just a bit overwhelmed. Me, Mum, and Izzy caught the train home, all three of us exhausted. We stopped in London to have dinner with one of my parents before getting in the car and driving home. I don’t think I’ve ever been so relieved to get home and lie down in my bed; I was absolutely beyond it, physically and mentally.


I basically spent the next few days sleeping; I was beyond exhausted, both from the playdate and the week leading up to it – I’d been part of a team putting on a symposium that I’d then presented at and then I’d worked on the team for a conference the next day, both at my old university. I’d held it together for the playdate but after that, I just crashed. I assumed that the exhaustion and general feeling of unwellness were due to completely overdoing it during that week but then, just to be safe before going out, I took a COVID test and tested positive. I was pretty confident where I would’ve caught it and apart from the playdate, I hadn’t been anywhere or seen anyone (other than my Mum who somehow managed not to catch it from me) so we got in contact with Autism Dogs and let them know; as far as I know, no one there had tested positive, which was a real relief. So hopefully it was only me that suffered and fortunately, my experience of it wasn’t that bad. I was honestly more annoyed that I’d broken my streak of NOT catching COVID, almost five years after news of COVID started spreading. So, for that, I’m very grateful.

Up next is the second playdate!