Posted on October 1, 2017
I first started pulling out my hair in August 2014 and looking back at everything that happened that summer, it’s probably not surprising that I developed a compulsive behaviour. I was already struggling with my mental health and then, in the space of a few weeks, an important relationship fell apart and I had to have my cat (who I’d had all my life) put to sleep very suddenly. And I was just about to start university. I was overwhelmed by my anxiety and depression and in the lowest place I’d ever been. I was probably desperate to regain some control and when something started affecting the texture of my hair (my money is on the new medication, Phenelzine, which I’d just started taking), my inner perfectionist went into overdrive, tearing out the hair that felt different. At first I was fixing the problem – getting rid of the hair that felt different to the rest – but, of course, it grew back, creating a whole new problem. Then I was tearing out the regrowth, as well as the rougher stands, and the whole thing snowballed. Very quickly it reached a point where I felt like I physically couldn’t stop pulling, as much as I wanted to.
At that point in time, I didn’t know what Trichotillomania was and I’m still not entirely sure how I came across it but for those of you unfamiliar with it, I’ll give you a little summary. Trichotillomania is a condition where the person feels compelled to pull their hair out (whether it’s from their head or any other part of their body) and is unable to stop themselves from doing so. Although there are different theories (including mental illness, self harm, and addiction), there is still no known cause and there has been very little research into treating it. While checking my facts to write this, I came across a description on the NHS website which, for me, is very accurate to what it feels like: “They will experience an intense urge to pull their hair out and growing tension until they do. After pulling out hair, they’ll feel a sense of relief.” It feels like there’s electricity under my skin and it builds and builds and builds until I can’t bear it anymore; the only way to stop it is to pull out my hair. Then I can breathe again.
I tried to stop but I always ended up pulling again. It honestly felt like it would’ve been easier to break my own fingers than to stop pulling out my hair. It was only the discovery of a bald spot that shocked me into stopping. I don’t know whether it was vanity or anxiety about how out of control it had become but somehow that gave me renewed focus and motivation. I tried everything I could think of: sheer willpower, sitting on my hands, wearing a hat 24/7 (which, bizarrely, has become part of my image as a singersongwriter), fidget toys, jewelry that I could fiddle with. Ultimately I think it was a combination of these that helped me stop pulling.
I managed a whole year. The first few days were awful. The feeling of electricity under my skin magnified, so strong that I couldn’t concentrate, and I’m not sure when that started to fade. But it did. And slowly my hair grew back. But the urge never went away and just passed the year mark, I started pulling again. The relief was huge. And now, over a year later, I’m still struggling with it.
What I think many people don’t understand about this condition is that it’s not voluntary. I’ve had so many people tell me to ‘just stop pulling’ and that’s really upsetting to hear because I don’t want to pull out my hair. I don’t want to sit, surrounded by strands of my own hair. I don’t want this. I can feel myself doing it and I can’t stop. Sometimes I can stop that action but as the tension gets worse, I end up pulling again – it feels like an endless cycle of trying to stop but knowing that I’ll inevitably start again. It’s so hard. And if the bald patches, uneven length, and permanent damage to my hair weren’t enough, that’s only part of it. There’s an emotional impact; it’s not just ‘pulling out hair’. There’s shame, embarrassment, guilt, and frustration. I hate that I can’t stop, that I can’t seem to control my own body. (It’s also worth pointing out that I also struggle with physical pain in my arm and shoulder from the repetitive motion.)
But I’m not giving up. I’m not sure what I’m going to do next but I’ll find something new to try, a different angle to tackle it from. I won’t give up. I can’t, because I don’t want to live like this.
Category: mental health, trichotillomania Tagged: bfrb, bfrb awareness week, hair, hair pulling, mental illness, trich
Posted on September 27, 2017
Just over a month ago, I decided to change medications. It was a long time coming but I eventually managed to speak to my psychiatrist and we came up with a plan. The first step was weaning myself off the Phenelzine and the second was going drug free for at least a couple of weeks to make sure it was out of my system before trying the new medication. I kept notes to track any patterns in mood and since I couldn’t find many accounts of coming off Phenelzine when I searched online, I thought I’d write about my experience. As always, this is only my experience, which will be specific to the dosage I took and the duration for which I took it.
Week 1
I was already on half of the prescribed dose so, to start the weaning off process, I went down to a quarter of the prescribed dose. Very quickly I felt very irritable, snapping at people over things that normally wouldn’t bother me. I was also overly emotional and ended up in tears a lot, sometimes multiple times a day.
Week 2
In the second week, I stopped taking the Phenelzine altogether. My anxiety skyrocketed and remained really high, higher than it’s been in a long time. My mood was also very fragile, so even small things made me very upset and depressed.
Week 3
In week three (the second week without any medication), I felt completely exhausted; some days, I was so tired that I could barely get out of bed. I was very depressed and felt blank, empty, completely disconnected. It was like everything just bounced off me. I’ve gone through periods of feeling like this before so, even though it isn’t pleasant, it wasn’t unfamiliar.
Week 4
Although I’d already been off the Phenelzine for two weeks, I decided to wait a little bit longer before trying the new drug. It was two weeks minimum and I’ve always been very sensitive to medication so I wanted to make sure it was completely out of my system before starting the next one. I didn’t want any chance of an overlap distorting that experience; I didn’t want to risk writing off something that could help over something as small as a few more days. For that last week, I was just really tired. My mood seemed to stabilise a bit and everything just felt less turbulent. It was that settling of my mood that made it easier to think more clearly and I felt ready to try the new medication.
It’s worth pointing out that my mood has been consistently low throughout all of this. I’ve had a couple of days where I felt a little bit lighter but on the whole, I’ve been feeling very depressed, hence the change in medications.
And now I’m onto the next stage: trying the new medication. I’m nervous but I’m really ready not to feel like this anymore.
Category: medication, treatment Tagged: antidepressants, anxiety, depression, maoi, maois, mental health, mental illness, nardil, phenelzine
Posted on September 23, 2017
From a very young age, I’ve had a fear of forgetting things. Not little things, like what I need to take with me when I leave the house, or the door code at university, but the details of my life: how I survived the traumatic breakup of a friendship, how I felt at the concert of my favourite singer, what I was thinking when I started going to therapy. The little details of the big events, the things that have made me who I am.
To that end, I kept diaries. I’ve done so my whole life but the catalyst for my compulsive writing occurred just before I turned nineteen, when I was forced to take a gap year because my anxiety, depression, and social anxiety had become so bad that I just couldn’t cope with the course I’d intended to do. Suddenly I had a lot of empty time and a lot of chaotic thoughts to fill it. So I started filling notebooks, with stories, moments, quotes, and memories that I was terrified of forgetting. I would write non-stop for days, until either I fell asleep over the pages, or my hand cramped up so badly that I just couldn’t keep going.
While it was clearly an odd behaviour, no one, not even myself, thought much about it. I’d always been a writer, having written my first ‘book’ before the age of six. I’d gone on to write a twenty thousand word story at twelve, and since then, I’ve experimented with poetry, essay writing, blogging, and pretty much any other kind of writing you can think of. Now, at the age of twenty-three, songwriting is my true love, but my passion has always been for words: to express, to describe, to explain. So writing a lot wasn’t weird.
But as my anxiety in particular got worse, I tried to write even more. I’d write down the most minute details: what I ate at every meal, the plot intricacies of the TV show I was watching, the lyrics of each new song I listened to. I was absolutely terrified of forgetting each detail that had contributed to the person I was that I felt compelled to write everything down, so that I didn’t lose one single puzzle piece. It was taking up all of my time, literally, and that was without anything particularly significant happening.
When significant things did happen – the disintegration of an important relationship, the death of my much-loved cat, the introduction of a new medication – the writing became a serious problem. Over that period of approximately a week, I wrote about ninety pages, and over twenty thousand words. It’s true that I was working all the emotion out, figuring out how I felt – for me, writing is the best way of processing stuff since I can’t write as fast as I think, giving me the time to really think everything through as I write it down – but it was taking over my life. Still, I didn’t think anything of it. It was what I had to do to get through some really hard stuff. And even if I’d wanted to, I don’t think I could’ve stopped.
In September 2014, I started university. Suddenly things were happening. A lot of things. I was commuting to London, meeting literally hundreds of new people, and taking a load of new classes on subjects I’d never studied before. I also had a huge amount of homework; I felt like I was working all the time. So trying to write about everything that was happening became an impossible task. But not doing it caused me suffocating anxiety. It was a catch-22, and it took me months to catch up with myself. In January 2015, this was diagnosed as Obsessive Compulsive Disorder.
In the last four years, I’ve written over a million words. Over time, with some good medication, a fantastic therapist, and a lot of hard work, I’ve become better at managing the anxiety and I’ve become better at managing the compulsion. I no longer need to write down what I eat for every meal, what I do every minute of every day, although I still struggle against including every song lyric I love (I’m a songwriter – it’s research, right?!). But having said that, I still need to write a lot about how I’m feeling and how certain events make me feel. It really helps my frantic brain slow down and understand everything that’s happening to me. Of course, there are still certain things that cause my writing to go into overdrive. For example, I wrote more than twenty pages after a recent ninety-minute therapy session.
I have a complicated relationship with my writing. Writing is something I enjoy, and keeping a diary is a positive experience for me. But it’s the compulsion to do it, the unbearable anxiety when I don’t, the constant panic that I’ll forget things… These things make my life miserable. The longer I go without writing, the harder it feels to breathe. Having a complete history of your life, being able to go back to an important moment and remember how you felt… it sounds nice, right? Well, it would be if I had any choice in the matter.
Category: mental health Tagged: anxiety, compulsive writing, mental illness, obsessive compulsive disorder, ocd, writing

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope