Posted on January 28, 2018
A while back, a friend shared this article on Facebook and I couldn’t not share it here. I’m currently in the process of going through everything I own in preparation to move house and so I’m coming across a lot of things that I have previously loved. I’m being constantly faced with the decision to hold onto something or to let it go. So I resonated with this piece very strongly.
I thoroughly recommend reading it but here’s a summary. The author describes feeling sympathy for inanimate objects, from “the guitar that doesn’t get played anymore” to “the once loved camera that has now been displaced by a newer one.” And the thought of an object being discarded causes great anxiety and sadness.
I’ve struggled with this all my life. As a child, all my toys had personalities and thoughts and emotions but that hasn’t faded as I’ve grown up even though I no longer play with them. They’re all still in my cupboard, neatly stored in boxes and bags. I feel guilty about that, that it must be uncomfortable and claustrophobic, but it’s better than throwing them away. That would be the ultimate betrayal. Imagining them in a bin or landfill fills me with such overwhelming anxiety and guilt that I can’t think properly. But it’s not just toys; it’s everything. I have a draw full of my old phones (how can I go from carrying them around twenty four seven to throwing them away?), a box of broken Christmas ornaments (it would be so callous to throw them out just because they’re not perfect anymore), my old school jumper, and so on and so on and so on.
Throwing things away is hard for me. I have this anxiety about letting things go, like I’ll lose parts of myself. Anything that has some meaning to me, I have to keep. It’s similar to how I write everything down and take a million photos. It goes with my difficulties around identity, a big part of BPD, and feeling like I have no idea who I really am. So I’m probably assigning aspects of my identity to physical objects in response to that. It certainly doesn’t help with all of this. And I wouldn’t be surprised if there’s a link to the difficulty I have in managing the strength of my emotions. I’ve talked about this before: how strongly I feel emotions and how I sometimes feel other people’s emotions. I’d always assumed that it was another facet of that.
The article discusses some other potential causes:
“There is some evidence to suggest that OCD and Synaesthesia are possible causes. Put simply, Synaesthesia is a neurological condition where the senses are confused. So someone with it, may smell a taste, or see a particular colour when thinking of a specific number. Some people have a form of Synaesthesia known as Personification. This is when a personality or emotion is attributed to an object. It would appear that there is a higher tendency for those on the autistic spectrum to have Synaesthesia in one form or another.”
The link to Synaesthesia is an interesting one. I do have some Synaesthesia-like experiences: with some sounds, I experience specific tastes or sounds. The sound of 7 chords leaves a metallic taste in my mouth so strong that I avoid those chords as much as possible and working on the production of my songs can be a bit of a minefield: high frequencies, like cymbals, are yellow while lower frequencies are dark colours (different depending on the instrument) and the colours in the song need to be balanced for me to be happy with them. It’s hard work and often leaves me with a debilitating headache.
I don’t know what the answer is or whether there is one. But I think the more we talk about this stuff and the more normal it becomes, the less we struggle against it. That takes up so much energy and emotion when living with these things is hard enough. That’s kind of why I started writing all of this stuff down, to feel less alone and hopefully make other people feel less alone too.
(Left: me and my toys when I was about eleven. Right: confetti that I kept from an amazing concert.)
Posted on January 14, 2018
I’ve seen a lot of people make sense of their mental health issues or their Autism or their whatever by saying that it’s given them a superpower: sensitivity to emotions, intense focus, and so on. Despite my love for all things superhero, this has always irritated me and I never really understood why until I talked to my Mum about it. The words just came out and it clicked into place.
For me, it’s too simplistic a concept. At this point in time, I only feel disadvantaged – deprived – by my Autism especially. I’m told I won’t feel like this forever – I know that lots of people feel like it does add something to their lives – but right now, it takes away from my life more than it adds. So it really doesn’t feel like a superpower. If anything, it feels like I’ve suddenly got a superpower that I can’t control. If you want an excellent example of this, watch Agents of Shield: one character develops the ability to control the vibrations around her but because she can’t control it, she essentially causes earthquakes whenever she gets upset or angry or scared. Sometimes I feel kind of like that, like the intensity of my emotions causes irreparable damage to me and everything around me. I’m not causing natural disasters or shattering windows but maybe the effect is just slower.
An example that fits better with Autism might be having enhanced hearing – connected to the sensory sensitivities – but because I can’t control it, I can’t use it. I can’t isolate a single sound and tune out everything else; it’s just a tidal wave of noise, the world with the volume up to maximum. It feels like the best I can do is to manage it, to keep it at a level that doesn’t kill me. I wonder if I’ll ever be able to control it, even a little bit. What if it’s something that you just can’t control, like time or the weather? I worry that it’s one of those things, that it’ll be like this forever. Is it still a superpower if you can’t do anything with it, if you can’t do anything good with it?
I’ve done my fair share of those personality tests that supposedly tell you something about yourself, what animal you’d be or which Hogwarts house you’re most suited to. I think this is something that many people who struggle with identity do: you feel like you don’t know who you are so you’ll take any answers you can get. I’ve definitely fallen into that rabbit hole before. I’ve never found a good one for superpowers though. Mine would probably be something to do with emotions, like being able to manipulate someone’s emotions or transmit my emotions to somebody else. Maybe that’s the problem: maybe the strength of my emotions just falls short of a superpower, maybe one percent more and I’d be able to control them. That fits right into my fear that I’d be something special if I just tried harder, that I’m never trying hard enough. Okay, I’m rambling now.
Anyway. My point is… I’m not even sure what my point is. I guess I’m just thinking out loud. Reading it back it’s a bit of a mess but I needed to put all of this somewhere. Mostly I think I’m scared I’m not enough, not enough of anything. I’d love to know if you’ve thought about any of this, whether you like the superpower metaphor, even what you think your superpower would be… So if you’d like to, please leave a comment below.

(Photo by Richard Sanderson. He called this my ‘superhero pose.’)
Category: about me, bpd, identity, mental health Tagged: actuallyautistic, anxiety, anxious, asd, autism, autism awareness, autism spectrum disorder, autistic, autistic adult, emotions, feelings, metaphor, ramblings, super powers, superhero, superheroes, superpower, superpowers, thoughts
Posted on December 20, 2017
Last week I got to take part in another Autism research study. I’ve done a couple of these before but that was before I was writing this blog and I just haven’t got around to writing them up. So far I’ve done two at Kent University; the second one involved seeing my brain waves, which was really cool (although the saline gel that made it easier to pick up my brain waves was not cool – it was gross). This one was at Sussex University and focussed on how people see, process, and remember colour. I was really excited about it since I seem to be very sensitive and responsive to colour. And even though I’ve been really struggling with my energy, I had a really good time.
I was there for about three hours. To begin with, I did a couple of tasks to assess my colour vision and a couple of Autism questionnaires. And later on I did an IQ test. These tasks aren’t used for a clinical evaluation but to provide quantitative scores so that you can compare all the data in the study. This makes the research more reliable because you’re not, for example, comparing two people with vastly different abilities. I’m not massively into IQ tests as an idea – my Psychology teacher used to say that the only thing a high IQ proves is that you’re good at IQ tests – but I did get a great deal of satisfaction out of completing one of the tasks that I’ve previously never been able to do.
The main part of the session was devoted to several different tasks involving colour. One had me putting names to different coloured squares of card, another involved manipulating the colours in various images to turn them grey, and a third required me to repeatedly choose which of two squares was bluer. When we were done, all of these tests were explained to me, what each one showed and how they would draw their conclusions. Had I not fallen in love with songwriting, I probably would’ve done Psychology at university and it’s something that I’ve really missed so I geeked out over it. It was really fun.
I get so much out of doing these research studies. It feels so good to use my Autism for something positive when most of the time, it’s something that I struggle against. I’m still wrestling with how that discovery has changed my life so to be able to channel it into something that will help people helps me. The other reason I like doing these is because all that’s required of me is to be myself as an Autistic person. I don’t have to moderate my behaviour, consciously or unconsciously, and that is so freeing. It’s also kind of empowering: it reminds me that I’m a productive person who can contribute, that I’m not less because I’m Autistic, that I can do good. It’s easy to forget that when you’re struggling with something overwhelming.
So it was a good day. I definitely recommend getting involved with these sorts of projects if you can. I often hear about them through my local Autism charities so search out the ones near your location if you’re interested!

Category: event Tagged: actuallyautistic, autism, autistic, autistic adult, colour, perception, research, research study

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope