Posted on April 3, 2021
Since I wasn’t diagnosed with Autism Spectrum Disorder until I was 20, that meant two decades of struggling and struggling particularly when it came to social skills. But despite finding socialising awkward and stressful, no one ever thought much of it. At most, I was labelled extremely shy. The idea that I was autistic simply did not exist – I didn’t behave according to the stereotype so it was just never considered. But still I struggled. So I thought I’d share how I coped with that and what strategies I employed to make socialising easier. Hopefully they’ll be helpful to some of you. Having said this, these are very specific to my experience, the areas in which I function better, and the areas I find more difficult so they won’t necessarily apply to everyone. But I thought I’d share them just in case, just in case one person finds one example helpful.
As I said, I found social skills very difficult to make sense of as a child and teenager. I found it difficult to process and participate in conversations, for example, making friendships and school relationships potential minefields. So, to compensate, I paid great attention to how other people behaved and interacted, analysing and cataloguing it until I had somewhat of an internal database to draw from. Having said that, I don’t think it’s as simple as just copying other people, at least not for everybody; for me, I think the fact that I’ve always done a lot of writing has had a significant impact on my speaking abilities: it taught me a lot about language, about the flow of words, etc. In a sense, it was like practicing social interaction by myself.
There is definitely an element of ‘masking’ (artificially ‘performing’ social behaviour that is deemed to be more ‘neurotypical’ or hiding behaviour that might be viewed as socially unacceptable) when around people but that’s something I want to talk about in a separate, more in depth post. This is not a post that will teach you to mask (something that can be helpful in certain circumstances but become detrimental over extended periods of time); it’s a post containing some tips and tricks that, over the years, I’ve found to be helpful in make socialising less stressful.
Diagnosed as a teenager and older, it can be very difficult to find support and strategies as most of the information is dedicated to young autistic children and the parents of autistic children. So, for those of us diagnosed later, we’re forced to learn how to cope in social situations by ourselves. These are some of the things I personally did to improve my social skills…
- Eye contact – I’m still not very good at eye contact because it makes me feel so vulnerable and overwhelmed, like the other person can see what’s going on behind my eyes or like I’ll be able to see all that’s going on behind theirs. So mostly I rely on short bursts before looking at something ‘relevant’: my drink if we’re at a cafe or the ground if we’re walking, for example. But if I really do need to make eye contact with someone for longer than feels comfortable, I use the strategy of looking at a particular feature on their face so it still looks like I’m looking at them. I want to make that connection that eye contact creates (and I want that for the other person too) but sometimes it’s just too overwhelming and this seems to be the next best option.
- Making conversation with people – I find meeting new people really hard: they don’t know anything about me and I don’t know anything about them. How do you understand someone when you don’t know what makes them who they are? But then I also feel kind of suffocated by all of that information. As you can imagine, it’s a pretty overwhelming situation. So, as a teenager, I started developing a script for starting conversations, a way of breaking the ice that proved to work well. I tell the person I want to talk to something I like about what they’re wearing or doing (if they’re drawing, for example) and ask them a question about it. As human beings, we like to talk about things that matter to us or that we’re passionate about and most of the time, this method sparks the beginning of a conversation, which makes continued interaction easier as you now have a positive foundation.
- Official conversations with unknown people – I find conversations with, for example, people in authority positions pretty challenging so I’ll often spend time beforehand, running through possible different branches of the conversation, ordering my thoughts in areas that are likely to come up, and generally making sure I’m clear about the information I want to get across and/or the questions I want to ask. That preparation makes the conversations easier and less overwhelming and ultimately lead to a more positive outcome. I (or my Mum) have, in the past, contacted whoever it is that I need to speak with to find out what sort of information is likely to come up if I’m unsure so that I can prepare and most have willingly laid out how the appointment or meeting etc will likely take place.
- Allow yourself to take a backseat in conversations – It’s perfectly okay to not be an active participant in social interactions all of the time; it’s okay to be a part of conversations without being (one of) the main contributors. If the topic being discussed is confusing or emotionally charged or you’re feeling drained, there’s no rule that says you have to engage. It’s perfectly fine to sit out for a bit of the conversation and rejoin when you feel comfortable or like you have something to offer.
- Disclose your Autism if you feel comfortable doing so – I can only speak from my experience but I’ve found that people are a lot more likely to overlook my social stumbles or support me through social interactions if they understand the basis of them, as well as making sure they’re clear about what they’re saying and the emotions behind it. I’ve also found it can strengthen friendships to share about your Autism but this is obviously a judgement call and a very personal one at that.
- Let people in – Similar to the above point, sharing your way or the ways you’ve developed to communicate can be really important and create a really strong connection within a friendship. So, if you’ve developed your own way of describing things (the way I talk about production in music and how a song can have too much of a particular colour, for example), explain it to them if they ask what you’re talking about. Sharing things like this can add something special to a friendship, or any kind of relationship.
I spent the majority of my life stumbling awkwardly through social interactions but once I discovered that it was due to being autistic, I felt a lot less self conscious about it because I understood where it was coming from. And while I can’t and don’t intend to speak for anyone but myself, I’ve had very few negative reactions to disclosing my ASD in social situations. The majority of people are, at most, curious and want to understand; many people barely react. But the fact that many of the people I talk to know that I struggle socially and may mess up (and sometimes fall spectacularly on my face) is comforting. I don’t have to worry about what they’ll think of me. I’m still me, whether I’m articulate or flat on my face.
Category: about me, anxiety, autism, tips Tagged: advice, asd, autism, autism diagnosis, autism resources, autism spectrum disorder, autistic, autistic adult, autistic student, conversation, eye contact, late diagnosis, masking, personal experience, social anxiety, social awkwardness, social skills, speaking, tips, unknown people
Posted on April 2, 2021
Autism Awareness Day always has a theme. Officially, the UN sets the theme but different organisations also choose their own themes; for example, I know that autistica has chosen the theme of anxiety. The official theme (the one set by the UN) is ‘Inclusion in the Workplace: Challenges and Opportunities in a Post-Pandemic World.’ I don’t feel that there’s really anything useful I can add to that conversation, given that I’ve never been well enough to have what society would consider a proper job and that the career path I’m following doesn’t really involve traditional workplaces. So, instead, I thought I’d write about something different, something that has been a really big deal for me this year.
For so long, I just felt like I was broken. And I felt like I was broken in so many places. I couldn’t understand it. Getting the Autism Spectrum Disorder diagnosis helped but there were still all these cracks, all of these problems that no one could make sense of. I had mental health problems, I had chronic fatigue, I had chronic pain, and so on. Nobody could figure out the whole picture and at worst, I was just abandoned by medical professionals, told that my case was just too complicated. That was the most painful part, I think; these people, many of whom it was their job to help with situations like this, were willing to let me continue to struggle rather than put in the effort and help me. It made me feel like I wasn’t worth helping, the toxic best friend of feeling like I was broken.
But in the last few months, with the help of several new medical professionals and some more diagnostic work, the pieces have all slotted into place and, I think, we might finally have the whole picture. So this is the timeline, beginning in 2016 (I might add dates later but I don’t have them all to hand right now).
(I’ve covered some of this before but I think it’s necessary if we’re talking about said whole picture.)
- I was diagnosed with Depression and Anxiety by one psychiatrist
- I was diagnosed with Depression, Anxiety, Social Anxiety, Obsessive Compulsive Disorder (OCD), and Borderline Personality Disorder (BPD) by my long term psychiatrist.
- I was diagnosed with Autism Spectrum Disorder and had the BPD diagnosis confirmed at the local Neurobehavioral Unit.
- My therapist explained that my mental issues, particularly my BPD, may have stemmed from the continued invalidation of my ASD.
- A few years passed.
- After a discussion with my psychiatrist, my mental health related diagnoses were updated, changing to Treatment Resistant Depression (TRD), Generalised Anxiety Disorder (GAD), and BPD.
- I was (re-)diagnosed with OCD after further sessions with my psychiatrist.
- My GP diagnosed me with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) when we could find no obvious cause for Chronic Fatigue I’ve been dealing with since I was twelve.
- A couple of years passed.
- I started to develop Chronic Pain that got dramatically worse over a period of several months.
- I was referred to a specialist who diagnosed me with Hypermobility (apparently individuals with Hypermobility are seven times more likely to be autistic), which led to a diagnosis of Hypermobile Ehlers Danlos Syndrome (hEDS), explaining my Chronic Fatigue and Chronic Pain as well as a number of other ‘smaller’ symptoms that, due to the bigger problems, had been ignored. This, as far as I can tell, makes the ME/CFS diagnosis void.
- I was also diagnosed with Attention Deficit Hyperactivity Disorder (ADHD), many of the symptoms overlapping with my ASD, during the same period.
And suddenly all of the pieces started to click together:
THE MENTAL HEALTH ISSUES (TRD, GAD, OCD, AND BPD) AND ADHD ARE, AT LEAST IN PART, CONNECTED TO MY ASD.
MY ASD AND HYPERMOBILITY ARE LINKED.
THE HYPERMOBILITY LED TO A DIAGNOSIS OF hEDS, WHICH EXPLAINS MY CHRONIC FATIGUE, CHRONIC PAIN, AND OTHER PHYSICAL SYMPTOMS.
Discovering that it’s all connected has been a really helpful and comforting revelation. I’m starting to see each condition as a star in one big constellation and that’s a hell of a lot better than feeling inexplicably broken in multiple places. I still have to deal with everything that comes with each of these conditions, of course, but knowing that they’re all part of the same picture does make my health less draining to think about and manage. It all makes more sense. And I am a person that needs things to make sense. So this is all a really big deal.
Category: about me, adhd, anxiety, autism, bpd, chronic fatigue syndrome, depression, diagnosis, heds, mental health, ocd Tagged: actuallyautistic, adhd, anxiety, asd, attention deficit hyperactivity disorder, autism, autism awareness, autism awareness day, autism awareness week, autism spectrum disorder, autistic, autistic adult, borderline personality disorder, bpd, chronic fatigue, chronic fatigue syndrome, chronic pain, depression, diagnosis, diagnostic process, ehlers danlos syndrome, generalised anxiety disorder, heds, hypermobile ehlers danlos syndrome, hypermobility, multiple diagnoses, myalgic encephalomyelitis, obsessive compulsive disorder, ocd, social anxiety, treatment resistant depression
Posted on April 2, 2021
And here we have the third in the Sunburst Sessions videos, the acoustic version of ‘Sounds Like Hope’!
The arrangement of this song is already pretty minimal so stripping it back didn’t involve much; we just had to figure out how we wanted to do that. In the end, we decided to go with just a vocal and electric guitar, reflective of how we first wrote the song. The atmospheric sound of the guitar Richard was messing around with during the session just sounded like how I felt at the time and so it was very nostalgic to revisit that first version of the song when it felt so new and tentative and fragile.
Thank you to Richard Marc for accompanying me and for his part in the filming (Sunburst Sessions), Olivia (Olivia B-S Photography) for her work as the primary videographer of this video, and Nicky Trill for engineering.
Category: depression, emotions, mental health, music, video Tagged: acoustic ep, acoustic session, acoustic sessions, honest ep, honest ep (sunburst sessions), lauren alex hooper, laurenalexhooper, new music, new music friday, new music uk, new music video, olivia b-s photography, richard marc, richard marc music, richard sanderson photography, sounds like hope, sounds like hope (sunburst sessions), sunburst sessions
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder, as well as several mental health issues. I’m a singersongwriter (and currently studying for a Masters in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is now available on iTunes and Spotify, with all proceeds going to Young Minds.
I’m currently releasing my first EP, Honest, track by track and all five songs are now available on all major music platforms. However, there’s still more content to come…
- April 2021 (7)
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- December 2020 (8)
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