The New Plan

The last few months have been tough, medication wise. I had a wonderful, un-depressed Christmas (which I’m massively grateful for) but since then, I’ve been struggling. My mood just kept dropping and my anxiety just kept getting worse and we tried to alter the medication to compensate, to find that perfect balance, but it’s gotten to the point where we just need to try something new. So I’m taking stock of everything and trying to figure out how I feel about all of it.

The Clomipramine (a Tricyclic anti-depressant) worked for a while. As I said, I had a really good Christmas where I felt joyful and energetic and actually happy for the first time in a really, really long time. But then it seemed to lose its effectiveness and my mood dropped, whether that was because I was taking a magnesium supplement (I talk about that here) or because it just had a short shelf life. I don’t know. But it stopped working and my depression returned. Since then, my depression has been stifling and I’ve really struggled with suicidal thoughts, at an intensity I’ve never experienced before.

My anxiety also skyrocketed so, in addition to the Pregabalin (also known as Lyrica) I was already taking, I started taking Flupentixol to help manage it. At first I felt no different but after adjusting the dose, my anxiety decreased dramatically and I started to feel a bit more functional. But in the months since then, it seems there have been a number of difficult side effects: my energy levels dropped dramatically, to the point where even a shower is a real struggle. Standing for any length of time is impossible and I ended up being wheeled around multiple airports in a wheelchair during my Nashville trip. The worst part though was that my hands felt thick and clumsy, like my fine motor skills had just evaporated into thin air. Playing guitar was practically impossible.

At first I didn’t realise that these things were connected to the Flupentixol but thanks to my Mum and her incredible attention to detail, we realised that the dates all seem to match up and since we reduced said medication, these problems have disappeared. I’m ridiculously grateful to have my hands back, even if my anxiety has flooded back in.

We’ve reached a point where I can remain where I am or start over. So I’m starting over. I don’t want to live like this. So, after a lot of thinking and talking to my psychiatrist, I’m coming off both the Clomipramine and the Flupentixol. I’m not a massive fan of the Pregablin either to be honest but even changing two things at once is ambitious. So that one can wait. I’ve already started reducing the meds and I’m bracing myself for a barrage of mood swings, depressive episodes, and more. It’s not going to be fun. But it will be worth it. Hopefully.

The current plan is to come off the two drugs, go the ‘wash out’ period (two weeks of no drugs – apart from the Pregablin – so that there aren’t any negative interactions between the medications), and then start Phenelzine again. Yes, Phenelzine – the drug I stopped taking two years ago because it had stopped working, because the joyfulness it gave me felt fake and suffocating. BUT it’s the only drug that’s allowed me to be functional – creatively and otherwise – so we’re giving it another try. It did work for a long time and if it doesn’t, we’ll try another MAOI (monoamine oxidase inhibitor) anti-depressant.

I’m not sure how I feel about it, to be honest. Part of me is frustrated and disappointed. I’ve spent two years trying to find something better only to end up where I started. But on the other hand, that’s two years of knowledge, experience, and confidence that I didn’t have before. I’m a different person and chances are, my reactions will be different: our bodies change and our chemical makeup is constantly shifting. These medications all but cause a hurricane inside us. So I’m trying to be optimistic. I’m trying to be hopeful.

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365 Days of Kittens

In the afternoon of the 26th February 2018, my gorgeous cat Lucy had her second litter of kittens. As with her first litter, she made a nest on one of the levels in my wardrobe and that’s where she headed when she went into labour, after checking that I was right behind her. For both labours, she came in search of me and yowled until I followed her up to my room. She was very insistent. So I went and sat with her; every time I tried to leave, she yowled. So I sat there all day and saw far more than I needed to… But it resulted in these two handfuls of fur: we nicknamed the older, grey one ‘Mouse’ and the younger, tabby one ‘Tiger.’

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(Day 1 – 27th February 2018)

They were gorgeous. Utterly gorgeous. They were soft and warm and just so cute. I loved every minute with them and as you can imagine, I spent most of their kittenhood with them in my bedroom. Watching them grow and explore and experience the world around them was enchanting: they are so completely and fully engaged with everything they do, from eating to playing to getting into trouble. Your whole world shrinks down to the room you’re sitting in. It’s very mindful to watch. And I found their innocence very healing. Then (and now) they look at me with such trust that it takes my breath away.

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When they were two months old, we moved house. Of all of us, the cats were the least traumatised: they continued to eat, sleep, and play. They even ventured outside and fell in love with the garden. I don’t think there’s anything as cute as kittens pouncing on long grass.

I was very distressed by the move (and still am to some extent) and it really exacerbated both my depression and my anxiety. So I found it very difficult to know how I felt about anything, let alone something as significant as whether or not we should keep the kittens. I was also repeatedly weaning myself on and off different medications, which did a number on my emotions. It was a mess. I was a mess. A very sad mess.

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Eventually we decided to keep them. I still felt very unsettled but I figured that since there had been so much change, a little more wouldn’t make much difference (in the context of my anxiety). We’d thought about it a lot: before they were born, we’d entertained the idea of keeping one but after getting to know them and watching how bonded they were right from the start, I knew that I couldn’t keep one and give away the other. We couldn’t keep two out of the little family of three.

Not long after we made that decision, Lucy started getting really irritated with them, hissing and swiping at them as they approached and even going out of her way to have a go at them. And when that showed no signs of stopping, I started to get really upset. That coincided with a medication change that made me so anxious all I could do was cry. I was terrified I’d made a huge mistake, that I shouldn’t have kept them but now I loved them too much to let them go, keeping us trapped in this very stressful situation. It was excruciating.

Fortunately, things have been better recently. They’ve all started to bond again and I often find them all snuggled in a bed together, legs and tails everywhere. It’s completely adorable. We even bought them a cat tree that has both a nest and a mouse on an elastic string; they absolutely love it and I get such joy from watching them play.

Now, I’m not just writing this because I love talking about my cats. Today is the kittens’ birthday and that seemed like a good opportunity to reflect on the choices, the anxiety, and all the emotion that has gone into this experience so far. I haven’t got it all figured out yet. I still don’t know if I made the right decision and maybe I never will. Maybe it’s just a case of learning to live this life that I’ve chosen, just as we learn to live with every choice we make, sometimes quickly and sometimes slowly. But regardless of all of that, I love my animals and I’m grateful to have them in my life. Hopefully that’s enough.

Tips For Talking About Mental Health and Mental Illness

Today is Time To Talk Day 2019, a day dedicated to talking about mental health and breaking down some of the stigma associated with mental illness. It’s always ‘time to talk day’ on this blog so to do something special, I thought a post about talking about mental health might be appropriate. It’s true that the more you talk about this stuff, the easier it gets but starting is hard and we all need help sometimes. So with that in mind, here are some tips for talking about mental health stuff:

You are telling someone about your mental health:

  • Start with writing – Talking is hard. If it’s going to make the process easier, it’s absolutely okay to start with writing, whether that’s writing it all down in a letter or email or simply ask to have a conversation about a particular topic by text. I used a Facebook message to let all of my friends know that I’d been diagnosed with Autism Spectrum Disorder; it was the most efficient way of getting all the necessary information to all of my important people.
  • Bring helpful information – You don’t have to remember all of the information and sometimes it can help both of you to have something concrete to refer to.
  • Know that you can stop if you need to – You don’t have to reveal everything. The basic facts can be enough. This is your story and you can share as much or as little as you want. Talking about mental health and sharing your experiences can be helpful but that doesn’t mean you have do it if you don’t feel comfortable doing so.
  • Remember that some people won’t understand – Unfortunately, not everyone will understand or react helpfully. Chances are you’ll come across someone who will say something hurtful and it will be devastating. It will. There’s no way around that. Allow yourself to feel it and then let it go. There are more good people than bad.

Someone is telling you about their mental health:

  • Hear them out – Try not to interrupt, even if it’s to reassure them. It may have taken a lot to get to this point.
  • Appreciate the courage/effort it took – They’ve probably been thinking about this conversation for a long time and worrying about how it will go but they did it because they care about you and want you to know what’s going on with them. They worked through all that anxiety for you and that’s a really big deal.
  • Don’t dismiss or minimise – It’s natural to want to brush off scary things and make them smaller and therefore less scary but that invalidation can be devastating, especially if this is something that they are currently really struggling with. If you’re at a loss of what to say, try “Thank you for telling me all of this” or “That must be really difficult” or “Is there anything I can do to support you?”
  • Let them know that you will be there for them going forward – Make sure they know; don’t let it just be implied. Tell them and then check up with them. It doesn’t all have to be about mental health: it can be staying in semi regular text contact, a silly card because it reminded you of them, or just trying to catch up a bit more often.

I hope this has been helpful or at least not boring. I wishing you all a lovely Time To Talk Day and I’ll see you in the next blog post.