Posted on October 1, 2018
Lately I’ve been seeing a lot of articles and blog posts about unplugging from technology and practising being present and living in the ‘real world.’ I’m not anti doing this. If you think it’s healthier for you to spend less time on social media and have or are taking the steps to do that, then that’s great. Figuring out ways to take care of yourself is always a positive thing. But I find it so irritating when people act as though social media is the enemy of mental health and self care because it’s just not that simple. It has its flaws, of course, but I think its value to those struggling with difficulties like depression and anxiety and so on (there are obviously more but these are the ones I feel qualified to talk about) can get overlooked. It allows us to connect in the middle of something that is incredibly isolating and that is invaluable. It can be life saving.
These are some of the accounts that bring me joy or help me when I’m struggling…
Matt Haig – While I did struggle a bit with ‘Reasons To Stay Alive,’ I really respect Matt Haig and love his presence online. His posts range from moving to funny to encouraging. This is one that particularly spoke to me:
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This is Eldon Square shopping centre in Newcastle. In 1999, while I was still trying to claw back from a breakdown, I cried in this shopping centre. Panic and despair had swarmed me and the brace face I had tried to keep for Andrea that day had slipped. People could see me crying. A 24 year old strong young man, crying in a shopping centre. I was convinced I'd never get better. Never make it to 25. Well, I am now 42 and I just did an event at a packed out Waterstones across the road from here. I am the future I never believed in. A fiction that couldn't happen. And yet I did. It is amazing what can happen simply by living.
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Behindthescars_ – I’ve written a post about Behind The Scars, a photography project set up by Sophie Mayanne (you can find that post here). Seeing people be their authentic selves and find new strength is really amazing and inspiring.
JuniperFoxx – As a kid, I LOVED animals and I daydreamed about having a pet fox so I absolutely love this account. It makes my day to see a new photo or video of these gorgeous creatures.
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Laura Greenway – Laura is an incredible artist and I feel very lucky to call her a friend. She makes beautiful, thought provoking pieces to raise awareness and reduce stigma around mental illness. I love pretty much everything she makes but this one is a particular favourite and I was so sad not to experience it first hand:
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Really really hard to get a good photo of this, it’s more of a piece that you need to see in person, but today I installed my newest piece of work entitled ‘Baggage’ as part of my current residency at THAT Gallery Basingstoke! A little different from my usual, this piece employs the audience as the performer, encouraging you to walk amongst the 80 tags that hang from the ceiling and be surrounded by my own thoughts. The piece explores intrusive thoughts, and features a variety of day to day intrusions that I suffer with. A huge thank you to my amazing art team @mattglenart and @corvidaecrochet who helped for the best part of 4 and a half hours to install this piece. #art #artist #artwork #contemporaryperformance #fineart #modernart #contemporaryart #conceptualart #performanceart #mentalhealthart #mentalillness #mentalhealthawareness #anxiety #intrusivethoughts #automaticwriting #textart #writing #contemporaryartist #ocd #liveart #installationart #artistresidency #thatgallery #basingstoke
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Petroom – While this account isn’t at all deep or meaningful, it makes me smile and even laugh on a daily basis. Sometimes we need thoughtful advice or inspiring messages and sometimes we need cute animals with funny captions.
Anna Akana – I’ve talked about Anna’s videos before (here and here) but I had to include her in this post. Her videos are beautifully crafted and incredibly succinct in their messages, many of them about mental health with real, usable advice. I also love her sense of humour and the short skits where she plays all the characters.
DudeBabe – Lauren is one of my favourite people on YouTube at the moment. Her videos are raw and honest and she posts almost every day, about her life and her experiences with an eating disorder. Food is a daily struggle for me so I find her videos really helpful but mostly I’m just really inspired by her openness.
This video is my favourite: it gives me hope that, one day maybe, I can have this sort of positive, freeing experience with my mental health.
(EDIT: I wrote this blog post before Claire Wineland died and although that doesn’t change whether or not I’d include her in this list, it added a weight to this post that I never expected when I started writing it. And what I wrote about her, it was true then and it’s true now. I just wanted (and needed) to acknowledge all of this.)
Claire Wineland – I’ve talked about Claire before (here) and introduced her channel (here) but I couldn’t not include her on this list of helpful and inspiring social media accounts. She speaks so eloquently about some really tough stuff and she always inspires me to be a better person, to be a positive force in the world.
Lucy Moon – Lucy is a vlogger and makes all kinds of videos, from fashion and make up to food to chats about therapy (that is a particularly good video). She also does an ongoing series of videos called 168 Hours, where she documents a week in one video. I find all of her videos really calming to watch. There’s something very reassuring about the way she talks.
TrichJournal – I’ve talked about Rebecca before (here) but I still want to include her account here. Having someone talk so eloquently and thoughtfully about hair pulling, about a disorder that is so rarely talked about, was incredibly validating and strengthening and helped me to stop pulling the first time. Plus I find her voice so calming. I’m linking her Trichotillomania channel here but I also love her ‘main’ channel, where she talks about lots of different stuff, including mental health, hoarding, make up, her cats… Many, many things.
Claudia Boleyn – I’ve watched a lot of YouTube videos about BPD and Claudia’s are my favourite by miles. I’ve talked about her videos before (here) and there are others that deserve their own posts because she describes it all so, so well. She’s thoughtful and eloquent and her videos mean so much to me: for the first time, I didn’t feel alone in this.
Haley Pham – I found Haley through her dance videos. I absolutely adore her dancing; I find it so calming. If I could have her dance for one of my music videos, I absolutely would. One day maybe. She’s also completely hilarious.
This post was deceptively hard to write. When writing about other people and their work, I get really anxious that I’m not doing a good enough job, if that makes sense. I love all of these people and want to reflect all the good they do – I’m scared I’ll do them a disservice. So I hope I did an okay job and that you guys have enjoyed this. Are there any social media accounts you think I should check out?
Tomorrow, I’m heading back to my university for an event about social media and mental health, which I’m really excited to be a part of. Maybe I’ll write a blog post about it…
Category: favourites, mental health, response, video Tagged: anna akana, art, behind the scars, borderline personality disorder, bpd, claire wineland, claudia boleyn, dudebabe, eating disorder, hair pulling, haley pham, instagram, juniper the fox, laura greenway, lauren kaech, lucy moon, matt haig, mental health, mental health awareness, mental health blog, mental health blogger, mental health blogging, mental health in the media, mental illness, mental wellness, petroom, rebecca brown, self care, social media, sophie mayanne, trichjournal, trichotillomania, trichotillomania awareness, vlogger, youtube, youtuber
Posted on July 1, 2018
So, I was having a particularly difficult day and I found myself online, reading articles about depression and looking for insight. I even found myself googling ‘reasons to keep going,’ not in a suicidal way but because I was in the midst of all these overwhelmingly huge, complicated, and awful feelings and I felt like I needed some clarity, a straight answer to a very big question. You probably won’t be surprised to know that I didn’t find one but I realised that I was essentially searching the title of the book that was sitting on my bedside table: Reasons To Stay Alive by Matt Haig. I’ve had it on my to-read list for months but I haven’t had the concentration or motivation to actually read for about a year. Maybe I was finally desperate enough that I was able to push through that. Maybe it was influenced by my recent change in medication. Who knows. We don’t live in a vacuum. Everything affects everything.
I have to admit that I have very mixed feelings about this book. There was so much hype around it and everyone I know who’s read it has recommended it to me. I expected to love it but like most things in life, it wasn’t that simple. If you’re reading this and thinking, “Oh god, she’s going to criticise the crap out of this and I don’t wanna know,” please give me a chance and hang in there a little bit longer. These are just my thoughts, good and bad and different. Hopefully I’ll have something useful to add to the discussion around the book.
The first thing is that I love Matt Haig’s writing. I find it easy and natural to read but also powerful and evocative. And there were parts that made me laugh; I found the continuing comparisons to having various body parts on fire very amusing. He’s a very engaging writer. I like the way he talks about depression, frank but empathetic. Here are some of my favourite quotes from the book:
I think that descriptions like these would be particularly helpful to those who haven’t actually experienced depression but are trying to understand what it’s like for someone they know or someone they love.
And in a similar vein, I think he describes the seriousness of depression incredibly well: “Depression is a disease so bad that people are killing themselves because of it in a way they do not kill themselves with any other disease.” We all talk a lot about how serious depression is but it’s not often that someone can so succinctly get the message across.
This, I think, is my favourite quote from the book:
“Most of the time we do not feel the near-infinite nature of our physical selves. We simplify by thinking about ourselves in terms of our larger pieces. Arms, legs, feet, hands, torso, head. flesh, bones. A similar thing happens with our minds. In order to cope with living, they simplify themselves. They concentrate on one thing at a time. But depression is a kind of quantum physics of thought and emotion. It reveals what is normally hidden. It unravels you, and everything you have known. It turns out that we are not only made of the universe, of ‘star-stuff’ to borrow Carl Sagan’s phrase, but we are as vast and complicated as it too. The evolutionary psychologists might be right. We humans might have evolved too far. The price for being intelligent enough to be the first species to be fully aware of the cosmos might just be a capacity to feel a whole universe’s worth of darkness.”
I’ve described depression as having a black whole in my chest and this quote reminds me of that. When I’m deeply depressed, it feels like ‘a whole universe’s worth of darkness.’ It does. It’s that strong and overwhelming.
I also like the format of the book. Having not done much reading (because depression – and quite possibly my medication – dulled all the parts of me that made reading a book possible or enjoyable), reading a whole book was a very daunting challenge so having short, succinct chapters made it feel much more possible. It may well be a good analogy for how we tackle depression: trying to fight it as a huge, indistinct is such a difficult, exhausting task. Breaking it down into manageable steps seems like a better idea.
Now, onto the more difficult stuff. I have to say, I found the book pretty upsetting. There were several major differences in our experiences of depression and while I know, of course, that this is his experience of depression only that he’s writing about (which is absolutely his right), I ended up feeling like we have struggled with entirely different illnesses. That, I think, made it much harder to connect to the book. I mean, I’ve just talked about how much I liked his descriptions of depression and I do but while we have both really FELT depression, our actual experiences and the circumstances around having depression are completely different. I don’t think I’m explaining this very well. Let me give you the analogy of dog breeds: they’re all essentially dogs – they all have dog DNA – but they appear in hundreds of different ways. That’s how this feels to me. We’ve both had the DNA of depression, but where his is bulldog, mine is a German Shephard (I’m not gonna lie – trying to find two different breeds of dog that are very different without belittling either of our experiences by comparing one of them to a dachshund or a Chihuahua was a challenge).
The biggest thing for me was that I felt like there was this inherent implication that, after being depressed, you will never be that low again. Because you lived through it, because you survived it, or whatever, that you have this new perspective on the world that will somehow protect you from depression. It’s a belief that many people have but for me that is just not true. Each time I think I’ve reached the lowest point I can possibly survive, there’s always more. There’s always worse.
On a similar theme, he references another common idea, that feeling the good stuff is worth feeling the bad stuff: “You know, before the age of twenty four I hadn’t known how bad things could feel, but I hadn’t realised how good they could feel either. That shell might be protecting you, but it’s also stopping you feeling the full force of that good stuff.” Let’s say that’s true. What does that matter if the bad to the good have odds like 364 to 1? Is it worth it? I’m not sure. In my experience, the bad stuff is so much more devastating than the good is good. I’m not attributing this idea to Matt specifically but I feel like it’s worth commenting on. This idea equates the strength of good and bad emotions (something that is practically impossible), and suggests that it’s acceptable (and even expected) to feel really terrible, simply because you’ve had some good moments. I’m just really wary of anything that justifies struggle and trauma.
About halfway through the book, he talks about how he overcame his separation anxiety when his partner needed him to, because she had to go to the hospital with her sick mother and someone had to be at the house. I found that really hard to read, because a lot of the time, for a lot of people, that’s not the case. For me, that’s not the case. Anxiety, depression, mental illness… they don’t go away just because you need them to. I wish they did and, if I’m honest, it just made me feel more pathetic. I can’t help thinking that it would’ve been more helpful if he’d mentioned some of the times it hadn’t been like that and then said something like, “I don’t know why it was different this time.” Just to represent that problem, to give it context. I mean, I’m making an assumption that there were moments where he couldn’t overcome his anxieties but I think it’s pretty safe to say of anyone who’s struggled with severe anxiety for an extended period of time.
The chapter ends with, “needless to say, they came back,” in reference to his paralyzing anxiety that something would happen to his partner and her parents while not in his sight. This is something that I struggle with on a daily basis but my fears not coming true hasn’t ever dulled those fears. Instead I feel like my time – my run of good luck – is running out. You can only throw heads so many times, you can only be lucky so many times before the inevitable bad thing happens. In my experience, anxiety isn’t rational and can’t be managed as if it is.
He goes on to say, “I had reasons to force myself to be strong…” which, I have to say, irritated me. We know that depression and anxiety and so on are illnesses and are therefore out of our control. It’s not logical. You can’t reason with it or simply will yourself out of it. In my experience, my reasons keep me going for a while, get me through what I need to get through, but then I crash, often lower than before. It’s great and important that he found that motivation and I don’t want to take away from that I just don’t think it’s as straightforward as that.
“…To put myself in situations I wouldn’t have put myself in. You need to be uncomfortable.” I hear this expression all the time and I HATE it. I hate it enough to put the word hate in capital letters. I am ALWAYS uncomfortable. I cannot remember the last time I was comfortable in anyway, whether it be emotionally, mentally, or physically. Maybe my ASD makes it impossible to be comfortable. Maybe there’s another explanation. So, how does that fit into this formula? I don’t know the answer. And what if there’s no good in it, no purpose? What if that’s all there is? I don’t know the answers to those questions either.
“People often use the word ‘despite’ in the context of mental illness. So-and-so did such-and-such despite having depression/anxiety/OCD/agoraphobia/what-ever. But sometimes that ‘despite’ should be a ‘because.’ For instance, I write because of depression.” I don’t disagree but I’d like to propose an addition: and. So-and-so did such-and-such and they have depression/anxiety/OCD/agora-phobia/whatever. I have struggled with identity stuff for a long time – probably from my BPD and the late diagnosis of ASD (which obviously does affect everything I do as it is something I was born with) – but I’d like to think that I am not who I am solely because of my mental illnesses. A lot of people say that their experiences with mental illness have made them kinder, more compassionate and thoughtful people and that’s amazing but I don’t think they give themselves enough credit. Everything we become we were always capable of becoming and the circumstances and coincidences that start those chain reactions shouldn’t get all the glory.
Despite the parts of the book that I struggled with, there were parts that really spoke to me. There were several quotes that I related to so strongly that my chest physically hurt when I read them:
Ultimately I have mixed feelings about this book. I can see why people love it and why people find it helpful. And I think, had this been my first experience of depression, it would’ve helped me too. I would’ve found it inspiring. But I struggled to connect with it and I found that very upsetting. Maybe it’s my fault for reading it when I did; maybe I was too depressed for anything to help. Maybe, if I’d read it when I wasn’t feeling so completely hopeless, I would’ve had a different experience. Maybe I would’ve felt the differences less and the similarities more. I’ll never know. But regardless, I’m really glad that it’s helped people. Having your struggles and your experiences validated can change everything. As Matt says in the book: “There is nothing lonelier in the world than being surrounded by a load of people on a different wavelength.” That, right there, is why I write this blog.
I hope this was interesting and I hope I’ve managed to represent my emotions about the book (reading it was a very emotional experience), rather than blindly praising it or bluntly criticising it. Despite struggling with the book, I love Matt Haig’s writing and he is one of my favourite people to follow on social media; I have great respect for him. I’m really looking forward to hearing him speak on Tuesday and to reading Notes on a Nervous Planet when it comes out.
Hey! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder, as well as a number of mental health issues. I’m also a singer-songwriter so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is now available on iTunes and Spotify, with all proceeds going to Young Minds.